Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Hi Mariel- I am so sorry for your loss. I wish you well through a very difficult time. I will surely check out the web page you posted. It is very nice for you to do something like that and pay homage to him. Take Care of yourself as well :-) Jenn (I am new to the list and just made my first post earlier this morning) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Ouch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Hi Mariel, So very sorry to hear of your loss. I can also understand your brother's feelings. When people look at 'you' and cannot see blood flowing, bones sticking out or large areas bandaged they have no way to develop true empathy. I am fortunate to have a wife who has trigeminal neuralgia (_extremely_ painful) and has been through a lot of doctors to try and get treatment. I have not yet found out if I have LD, but have been diagnosed with degenerative disk disease for about 12 years officially (started about 20 years ago.) That pain was bad enough, but now (following a tick bite that won't heal) my pain has gone up horribly. The doctors just cannot wrap their brain around the idea that I could have LD. After all, it isn't officially known/recognized here. (What a laugh,) So it gets so frustrating, as a few doctors have found out when I spoke my mind to a few of them. (felt good by the way.) Please accept our condolences for your loss. I do not know your religious belief, but I am very sure God know all about your loss, since he even keeps track of the sparrows. -----Don B >Hi, >My name is Mariel and I've been a member of the >group for Lyme a little longer than a year now. >I've never sent out a message, but I would read all of >yours and try to learn a little more about Lymes and >its affect on its victims. > >My 17 year old brother Cailean Sheeran killed himself >last Wednesday. He was struggling with >neuropsychiatric Lymes for a long time. Last Monday >he also found out he two other tick-bourne diseases in >his system. My brother became a paranoid >schizophrenic; we will never no if Lymes and these >other diseases were soley to blame for the magnitude >of his illness the past year, but there is no >disputing they took their toll on him. He had just >put back on high dose antibiotics a few weeks ago. > >I write to all of you to ask that you take care of >yourselves. Cailean was delusional, paranoid, and >felt alone. None of you are alone in your fight, and >I understand that sometimes it really can feel that >way. This is a frustrating disease; Cailean was put >on and taken off antibiotics and the diagnosis was >being thrown around all over the place. Reading your >stories I've heard that many of your expeirences are >similar. > >On Cailean's behalf, all of our friends and family are >making donations to Dr. Fallon's Neurological Lymes >Research as well as another charity, Young Concert >Artists, Inc because Cailean was an amazing guitar >player. > >I've put together a tribute page for my brother, so if >any of you would like to get to know him here is the >link... > >http://mariel.slowburn.net/cailean/ > >I wish you all well. >Mariel Sheeran > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Dear Mariel, Thank you for sharing your story about your brother with us at this difficult time. My heart goes out to you and your family. It is a tragedy. Many of us on this list understand from our own experience how Lyme Disease and co-infections can effect untoward mental functioning. And many of us have been fortunate enough to arrest the symptoms before they became life-threatening. I am so sorry for the loss of your brother while both of you were still young. Many blessings to you at this time. And may you find peace and comfort. Deanna > My name is Mariel and I've been a member of the > group for Lyme a little longer than a year now. > I've never sent out a message, but I would read all of > yours and try to learn a little more about Lymes and > its affect on its victims. > > My 17 year old brother Cailean Sheeran killed himself > last Wednesday. He was struggling with > neuropsychiatric Lymes for a long time. Last Monday > he also found out he two other tick-bourne diseases in > his system. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Mariel, I extend my sympathy to you and your family. My heart goes out to you. Your brother was so young. I can understand his plight. Lyme is so difficult. It does take its toll. I think all of here and attest to that. The depression alone is such a struggle. And many here can admit to how hard it is to keep up the battle and not let it take us down. Thank you for your kind words in keeping up the fight. It means a lot especially during this time of my own. The struggle lately has been daunting, overwhelming. It is wonderful that you have created a site for your brother. I will visit it. I am so sorry for you loss. Ali > Hi, > My name is Mariel and I've been a member of the > group for Lyme a little longer than a year now. > I've never sent out a message, but I would read all of > yours and try to learn a little more about Lymes and > its affect on its victims. > > My 17 year old brother Cailean Sheeran killed himself > last Wednesday. He was struggling with > neuropsychiatric Lymes for a long time. Quote Link to comment Share on other sites More sharing options...
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