Re: <>New member with a question

[Guest guest]

,

I initially had to get used to the topamax as well. It does cause

you to be dizzy. I am about to up another 25mg a day to see if that

will help. I am at my wits end now. I ended up taking a vicodin

before bed and all night felt a low grade headache. This is not a

single day anymore that I do not have a headache. It is normal to

have a lowgrade almost any give time of the day now.

I was on depakote for a short time as well. I was more worried of

the side effects of it and it really wasn't the miracle cure so I

stopped it as well.

It is going to be a challenge to find someone to test me for Lyme.

Lucky for me, I am very persistant and don't give up when I believe

in something. My pcp is going to think I lost my mind if I ask her

to test me for it. Of course I never told her about the tick. I

totally forgot about it until yesterday when my sister mentioned it.

With our insurance I dont need a referal to go to a specialist so I

might bypass my pcp all together. I am beginning to think she thinks

I am a druggie with all the meds i'm on!! I had to ask her for

another vicodin script a week ago, she does have to give me credit,

the last one took me 3 1/2 months to go thru 30 pills.

Did either of your sons have any other symptoms other than the

headaches and seizures? I am just wondering if I wouldn't have any

other symptoms if I had it?

Barb

> Definitely you should be tested. I have two kids with Lyme - my

son had

> the severe headaches and actually began having seizures. He was on

Topamax

> at one time (it drugged him out so much we switched to keppra and

depakote.)

> After six months of just thinking he had epilepsy, he was

finally

> diagnosed with Lyme. Three weeks into his abx treatment his

headaches were

> gone.

>

> In a weird development, my best friend has been going from

neurologist to

> neurologist because of headaches and neck pain - the fourth one

wanted to

> test for lyme and we thought there was no way she had it too. The

test came

> back this week - positive even according to CDC standards. We

live in GA.

>

> Good luck - I've heard through the grapevine that Florida is a

tough state

> in denying that they have lyme. Be persistent, be tested, but

also find a

> doctor who isn't afraid to make a clinical diagnosis. Your test

may be

> negative but that doesn't mean you don't have lyme.

>

> Feel better!

>

>

> >From: " bbgibbs99 " <bbgibbs@t...>

> >Reply-

> >

> >Subject: [ ] New member with a question

> >Date: Sat, 26 Feb 2005 04:43:51 -0000

> >

> >

> >

> >Hi, I just joined and had a few questions that I was hoping you

all

> >could help me answer. My sister read an artical today and thought

of

> >me while reading it and I thought I would do some research on what

> >she found. It was an artical in the Times magazine about a little

> >boy who was suffering from what was thought to be migraine

> >headaches, after long suffering and many pills, his homeopathic dr

> >hit on the fact that he had lyme disease and within a week or so

his

> >headaches subsided. I am sure some or maybe most of you are

familiar

> >with the article? I tried to find it but was unsucessful, so I am

> >going on 2nd hand information.

> >

> >

> >I have been suffering from severe headaches for the past year and

a

> >half. My dr says they are tension headaches with an occasional

> >rebound headache thrown in the mix. It now hurts on the side of my

> >face as well, from my eye, over to my ear and down to my jaw bone

> >and I think it may be starting to hurt on the neck as well. It is

to

> >the point now that I am taking tylenol, excedrin tension or advil,

> >or what ever else i can get my hands on, with an occasional need

for

> >prescription pain meds, every 3-4 hrs to manage the pain around

the

> >clock. Makes for many long painful nights! I am also on topamax to

> >help manage the pain, I had some relief initially but that is now

> >wearing off. Nothing has worked very long.

> >

> >I was biten by a tick approximatly 3 1/2 yrs ago after a day of

> >hunting. We live in Florida. Is it possible to have symptoms

onset 2

> >yrs after a bite? Can it harbor in the body for such a long time?

I

> >am doubtful, but wanted to ask. I guess I am hoping to finally

find

> >an answer and a relief for this agonizing pain. From what I read

> >online, 30 days was the longest I could find. Also, i never

> >developed a bulls-eye, but I read this is not necessary.

> >

> >I appreciate any help you all can give.

> >

> >Thanks!

> >

> >Barb

> >

> >

> >

> >

> >

> >

[Guest guest]

,

I agree, there are great people on here!

Thanks for the info on how long it can stay dormant, all the info I

could find last night said 30 days. Dealing with a serious health

issue with my husband taught me not to always believe statistics

that are on the web! You need to hear it from those who have " been

there done that " .

I also have mild fatigue, just no energy to do much of anything.

With 4 young boys it is tough being that way. I feel guilty.

What are your recommendations on finding a LLMD? Since I am in

Florida, I think it is going to be tough finding one here.

Barb

> >

> >

> > Hi, I just joined and had a few questions that I was hoping you

> all

> > could help me answer. My sister read an artical today and

thought

> of

> > me while reading it and I thought I would do some research on

what

> > she found. It was an artical in the Times magazine about a

little

> > boy who was suffering from what was thought to be migraine

> > headaches, after long suffering and many pills, his homeopathic

dr

> > hit on the fact that he had lyme disease and within a week or so

> his

> > headaches subsided. I am sure some or maybe most of you are

> familiar

> > with the article? I tried to find it but was unsucessful, so I

am

> > going on 2nd hand information.

> >

> >

> > I have been suffering from severe headaches for the past year

and

> a

> > half. My dr says they are tension headaches with an occasional

> > rebound headache thrown in the mix. It now hurts on the side of

my

> > face as well, from my eye, over to my ear and down to my jaw

bone

> > and I think it may be starting to hurt on the neck as well. It

is

> to

> > the point now that I am taking tylenol, excedrin tension or

advil,

> > or what ever else i can get my hands on, with an occasional need

> for

> > prescription pain meds, every 3-4 hrs to manage the pain around

> the

> > clock. Makes for many long painful nights! I am also on topamax

to

> > help manage the pain, I had some relief initially but that is

now

> > wearing off. Nothing has worked very long.

> >

> > I was biten by a tick approximatly 3 1/2 yrs ago after a day of

> > hunting. We live in Florida. Is it possible to have symptoms

onset

> 2

> > yrs after a bite? Can it harbor in the body for such a long

time?

> I

> > am doubtful, but wanted to ask. I guess I am hoping to finally

> find

> > an answer and a relief for this agonizing pain. From what I read

> > online, 30 days was the longest I could find. Also, i never

> > developed a bulls-eye, but I read this is not necessary.

> >

> > I appreciate any help you all can give.

> >

> > Thanks!

> >

> > Barb

[Guest guest]

,

Thanks for the info. Reading more on symptoms, I have noticed a few

other symptoms I have, heart palatations, nausea for the past 3

weeks or so - similiar to morning sickness YUCK!, moderate fatigue,

foggy head - my kids will talk to me and sometimes it is like they

are speaking in a foregin language, I just can't concentrate on what

they are saying, it happens with others, but is the worst with the

kids, and a sore thumb joint for the past 2-3 three months. I

thought it was just jammed or something but it isn't getting any

better. Everything else is moderate compared to the headaches.

It is amazing and sad to hear the run around that those struck with

lyme go through with the dr's!

Thanks for sharing your experience, I am sorry to hear that you are

going thru this.

Barb

> Is it possible to have symptoms onset 2

> > yrs after a bite? Can it harbor in the body for such a long time?

>

>

>

> Yes and yes. The lyme bacterium is a 'smart' bug , it will

throw off

> its own DNA to survive in a hostile environment ( a healthy body )

hiding in

> any tissue from heart to head to muscle. It will then remeerge

periodically

> to probe the environment, replicate and move around, this is how

symptoms

> can come up after long periods of time and how what starts as one

symptom,

> can change. Like me, my main symptom for years was cardiac, went

to mental

> fog , throw in some odd rashes then fatigue. No wonder it took me

30+ Drs to

> figure what was wrong! They call Lyme the great imitator, it can

seem like

> so many different things.

>

> The biggest hurdle you will face, if you do indeed have Lyme,

is getting

> a Dr to recognise it. Say a patient goes to see a Dr that doesnt

really know

> or ackoweledge Lyme, patient has the tick imbedded, Drs says, well

you ahve

> no rash, it cant be Lyme, come back if you get a rash, a week

later

> patient goes back with rash, dr says, well, you have no joint pain

or other

> symptom so it cant be Lyme, come back if you get them, another

week goes by

> and patient comes back with rash, headaches, joint pain and other

things, Dr

> says here is 3 weeks antibiotics , I dont think you have Lyme, I

think you

> have been doing to much yard work and your eyeglass prescription

may be out

> A month goes by and patient comes back with cardiac symptoms, Dr

tell him

> well, I treated you for Lyme so this all cant be from that, your

just

> getting old and everyone knows Lyme is only in new england.

Sounds funny,

> but this can be So true! I live in Texas and its all over around

here.

>

> Go to www.lymenet.org and look around, on there are 'the 2000

Guidelines

> for treating Lyme' by a Dr B , that lists the symptoms and a

clinical

> checklist for Lyme. Testing for Lyme sucks, its hit or miss, so

the CDC

> states that Lyme is firstly a clinical diagnosis. Drs miss or

ignore that

> fact. YOU have to be your own best advocate. If YOU think you

have Lyme,

> then you need to push for treatment. Lyme will only get worse if

left

> untreated ( some people get over a bite, but if you are having

symptoms

> months/years later, you havent) it may hide from time to time, but

it will

> come back and it will infect other systems. Best of luck!

Take care,

>

[Guest guest]

Barb,

The best advice for a GREAT Lyme doctor came from this board. I'm

in NY but see an LLMD in NJ because of the great recommendations I

got for her.

Does anyone know of the best LLMD in Barb's area?

Barb, maybe you can post a little more about where you are located

and what's close to you (in terms of major city's).

Also, can anyone post other Internet resources Barb can use to

locate the best LLMD in her area?

Also, a great place to get more information is in the Messages

section of this group.

Thanks,

> > >

> > >

> > > Hi, I just joined and had a few questions that I was hoping

you

> > all

> > > could help me answer. My sister read an artical today and

> thought

> > of

> > > me while reading it and I thought I would do some research on

> what

> > > she found. It was an artical in the Times magazine about a

> little

> > > boy who was suffering from what was thought to be migraine

> > > headaches, after long suffering and many pills, his

homeopathic

> dr

> > > hit on the fact that he had lyme disease and within a week or

so

> > his

> > > headaches subsided. I am sure some or maybe most of you are

> > familiar

> > > with the article? I tried to find it but was unsucessful, so I

> am

> > > going on 2nd hand information.

> > >

> > >

> > > I have been suffering from severe headaches for the past year

> and

> > a

> > > half. My dr says they are tension headaches with an occasional

> > > rebound headache thrown in the mix. It now hurts on the side

of

> my

> > > face as well, from my eye, over to my ear and down to my jaw

> bone

> > > and I think it may be starting to hurt on the neck as well. It

> is

> > to

> > > the point now that I am taking tylenol, excedrin tension or

> advil,

> > > or what ever else i can get my hands on, with an occasional

need

> > for

> > > prescription pain meds, every 3-4 hrs to manage the pain

around

> > the

> > > clock. Makes for many long painful nights! I am also on

topamax

> to

> > > help manage the pain, I had some relief initially but that is

> now

> > > wearing off. Nothing has worked very long.

> > >

> > > I was biten by a tick approximatly 3 1/2 yrs ago after a day

of

> > > hunting. We live in Florida. Is it possible to have symptoms

> onset

> > 2

> > > yrs after a bite? Can it harbor in the body for such a long

> time?

> > I

> > > am doubtful, but wanted to ask. I guess I am hoping to finally

> > find

> > > an answer and a relief for this agonizing pain. From what I

read

> > > online, 30 days was the longest I could find. Also, i never

> > > developed a bulls-eye, but I read this is not necessary.

> > >

> > > I appreciate any help you all can give.

> > >

> > > Thanks!

> > >

> > > Barb

[Guest guest]

Oooppppsss... I meant the Files section of this group...

Sorry :-)

> > > >

> > > >

> > > > Hi, I just joined and had a few questions that I was hoping

> you

> > > all

> > > > could help me answer. My sister read an artical today and

> > thought

> > > of

> > > > me while reading it and I thought I would do some research

on

> > what

> > > > she found. It was an artical in the Times magazine about a

> > little

> > > > boy who was suffering from what was thought to be migraine

> > > > headaches, after long suffering and many pills, his

> homeopathic

> > dr

> > > > hit on the fact that he had lyme disease and within a week

or

> so

> > > his

> > > > headaches subsided. I am sure some or maybe most of you are

> > > familiar

> > > > with the article? I tried to find it but was unsucessful, so

I

> > am

> > > > going on 2nd hand information.

> > > >

> > > >

> > > > I have been suffering from severe headaches for the past

year

> > and

> > > a

> > > > half. My dr says they are tension headaches with an

occasional

> > > > rebound headache thrown in the mix. It now hurts on the side

> of

> > my

> > > > face as well, from my eye, over to my ear and down to my jaw

> > bone

> > > > and I think it may be starting to hurt on the neck as well.

It

> > is

> > > to

> > > > the point now that I am taking tylenol, excedrin tension or

> > advil,

> > > > or what ever else i can get my hands on, with an occasional

> need

> > > for

> > > > prescription pain meds, every 3-4 hrs to manage the pain

> around

> > > the

> > > > clock. Makes for many long painful nights! I am also on

> topamax

> > to

> > > > help manage the pain, I had some relief initially but that

is

> > now

> > > > wearing off. Nothing has worked very long.

> > > >

> > > > I was biten by a tick approximatly 3 1/2 yrs ago after a day

> of

> > > > hunting. We live in Florida. Is it possible to have symptoms

> > onset

> > > 2

> > > > yrs after a bite? Can it harbor in the body for such a long

> > time?

> > > I

> > > > am doubtful, but wanted to ask. I guess I am hoping to

finally

> > > find

> > > > an answer and a relief for this agonizing pain. From what I

> read

> > > > online, 30 days was the longest I could find. Also, i never

> > > > developed a bulls-eye, but I read this is not necessary.

> > > >

> > > > I appreciate any help you all can give.

> > > >

> > > > Thanks!

> > > >

> > > > Barb

[Guest guest]

Makes me feel better to know I am not the only one who can't

remember! For the life of me, i am unable to rememember my own cell

phone number this week! I haven't noticed a connection with my

cycle, I haven't paid much attention, probably due to the fact that

that is all messed up for the past 8 months as well. My pcp is

currently checking me for early menapause.

Barb

> Barb, keep a list of every symptom, what may make it worse,

what may help

> etc. I know what you mean about the fog grrr I finally knew I had

> something wrong ( before dx , when Drs were thinking I was nuts)

when I was

> doing a horse show class I had done a million times and I forgot

the

> patternt, hadnt a clue what came next. Since then I have noticed

odd

> things, places I cannot recall , like I went to college, but it is

ALL gone,

> I recall the info, but not what the place looked like, almost as

if the

> short term memory of that time is gone.

> My symptoms peak a few days before my menses, everything is

worse and

> there are times I just want to crawl into a hole LOL Then about

13-14 days

> later I am wonder woman look out world!! LOL

[Guest guest]

I am just outside of Tampa, but will travel if I have too. I would

of course prefer not to travel if I didn't have too.

I am about 1 1/2 hr to the west of Orlando, 2 hrs or so south of

Gainesville.

Barb

> > > >

> > > >

> > > > Hi, I just joined and had a few questions that I was hoping

> you

> > > all

> > > > could help me answer. My sister read an artical today and

> > thought

> > > of

> > > > me while reading it and I thought I would do some research

on

> > what

> > > > she found. It was an artical in the Times magazine about a

> > little

> > > > boy who was suffering from what was thought to be migraine

> > > > headaches, after long suffering and many pills, his

> homeopathic

> > dr

> > > > hit on the fact that he had lyme disease and within a week

or

> so

> > > his

> > > > headaches subsided. I am sure some or maybe most of you are

> > > familiar

> > > > with the article? I tried to find it but was unsucessful, so

I

> > am

> > > > going on 2nd hand information.

> > > >

> > > >

> > > > I have been suffering from severe headaches for the past

year

> > and

> > > a

> > > > half. My dr says they are tension headaches with an

occasional

> > > > rebound headache thrown in the mix. It now hurts on the side

> of

> > my

> > > > face as well, from my eye, over to my ear and down to my jaw

> > bone

> > > > and I think it may be starting to hurt on the neck as well.

It

> > is

> > > to

> > > > the point now that I am taking tylenol, excedrin tension or

> > advil,

> > > > or what ever else i can get my hands on, with an occasional

> need

> > > for

> > > > prescription pain meds, every 3-4 hrs to manage the pain

> around

> > > the

> > > > clock. Makes for many long painful nights! I am also on

> topamax

> > to

> > > > help manage the pain, I had some relief initially but that

is

> > now

> > > > wearing off. Nothing has worked very long.

> > > >

> > > > I was biten by a tick approximatly 3 1/2 yrs ago after a day

> of

> > > > hunting. We live in Florida. Is it possible to have symptoms

> > onset

> > > 2

> > > > yrs after a bite? Can it harbor in the body for such a long

> > time?

> > > I

> > > > am doubtful, but wanted to ask. I guess I am hoping to

finally

> > > find

> > > > an answer and a relief for this agonizing pain. From what I

> read

> > > > online, 30 days was the longest I could find. Also, i never

> > > > developed a bulls-eye, but I read this is not necessary.

> > > >

> > > > I appreciate any help you all can give.

> > > >

> > > > Thanks!

> > > >

> > > > Barb

[Guest guest]

Hi Barb - gosh my heart goes out to you. I would definitely bypass your pcp

and go straight to a LYME LITERATE MD. This is crucial. Don't take no for

an anwer...I cannot overemphasize this point. We had doctors get hostile

with us for even mentioning Lyme in their presence. Don't let anyone

discourage you and don't stop until you find someone who knows lyme.

You asked about my children's other symptoms. My son, who is 9, started

with severe headaches, disorientation, sudden ADHD type behavior, emotional

outbursts inappropriate to the situation and finally seizures. My daughter,

age 11, was actually the most critical case...she had gastrointestinal

symptoms and couldn't keep anything down by mouth. She ended up needing

parenteral nutrition from May - January (catheters and then feeding tube.)

She has had obsessive compulsive tendencies, but when she got sick it became

a full-fledged disorder and affected the quality of her life. They started

abx treatment Dec. 20th and by Jan. 12th my daughter was eating on her own

and my son was headache free. Other symptoms - they would complain that

their " hair hurt " and we had vision problems with both kids.

I sure hope to hear your success story here soon. I have the newsweek

article you mentioned and I'm going to try to PDF it and send it to you

tommorow.

Best of luck and health,

>From: " bbgibbs99 " <bbgibbs@...>

>Reply-

>

>Subject: [ ] Re: <>New member with a question

>Date: Sat, 26 Feb 2005 14:34:30 -0000

>

>

>

>,

>

>I initially had to get used to the topamax as well. It does cause

>you to be dizzy. I am about to up another 25mg a day to see if that

>will help. I am at my wits end now. I ended up taking a vicodin

>before bed and all night felt a low grade headache. This is not a

>single day anymore that I do not have a headache. It is normal to

>have a lowgrade almost any give time of the day now.

>

>I was on depakote for a short time as well. I was more worried of

>the side effects of it and it really wasn't the miracle cure so I

>stopped it as well.

>

>It is going to be a challenge to find someone to test me for Lyme.

>Lucky for me, I am very persistant and don't give up when I believe

>in something. My pcp is going to think I lost my mind if I ask her

>to test me for it. Of course I never told her about the tick. I

>totally forgot about it until yesterday when my sister mentioned it.

>With our insurance I dont need a referal to go to a specialist so I

>might bypass my pcp all together. I am beginning to think she thinks

>I am a druggie with all the meds i'm on!! I had to ask her for

>another vicodin script a week ago, she does have to give me credit,

>the last one took me 3 1/2 months to go thru 30 pills.

>

>Did either of your sons have any other symptoms other than the

>headaches and seizures? I am just wondering if I wouldn't have any

>other symptoms if I had it?

>

>Barb

>

>

> > Definitely you should be tested. I have two kids with Lyme - my

>son had

> > the severe headaches and actually began having seizures. He was on

>Topamax

> > at one time (it drugged him out so much we switched to keppra and

>depakote.)

> > After six months of just thinking he had epilepsy, he was

>finally

> > diagnosed with Lyme. Three weeks into his abx treatment his

>headaches were

> > gone.

> >

> > In a weird development, my best friend has been going from

>neurologist to

> > neurologist because of headaches and neck pain - the fourth one

>wanted to

> > test for lyme and we thought there was no way she had it too. The

>test came

> > back this week - positive even according to CDC standards. We

>live in GA.

> >

> > Good luck - I've heard through the grapevine that Florida is a

>tough state

> > in denying that they have lyme. Be persistent, be tested, but

>also find a

> > doctor who isn't afraid to make a clinical diagnosis. Your test

>may be

> > negative but that doesn't mean you don't have lyme.

> >

> > Feel better!

> >

> >

> > >From: " bbgibbs99 " <bbgibbs@t...>

> > >Reply-

> > >

> > >Subject: [ ] New member with a question

> > >Date: Sat, 26 Feb 2005 04:43:51 -0000

> > >

> > >

> > >

> > >Hi, I just joined and had a few questions that I was hoping you

>all

> > >could help me answer. My sister read an artical today and thought

>of

> > >me while reading it and I thought I would do some research on what

> > >she found. It was an artical in the Times magazine about a little

> > >boy who was suffering from what was thought to be migraine

> > >headaches, after long suffering and many pills, his homeopathic dr

> > >hit on the fact that he had lyme disease and within a week or so

>his

> > >headaches subsided. I am sure some or maybe most of you are

>familiar

> > >with the article? I tried to find it but was unsucessful, so I am

> > >going on 2nd hand information.

> > >

> > >

> > >I have been suffering from severe headaches for the past year and

>a

> > >half. My dr says they are tension headaches with an occasional

> > >rebound headache thrown in the mix. It now hurts on the side of my

> > >face as well, from my eye, over to my ear and down to my jaw bone

> > >and I think it may be starting to hurt on the neck as well. It is

>to

> > >the point now that I am taking tylenol, excedrin tension or advil,

> > >or what ever else i can get my hands on, with an occasional need

>for

> > >prescription pain meds, every 3-4 hrs to manage the pain around

>the

> > >clock. Makes for many long painful nights! I am also on topamax to

> > >help manage the pain, I had some relief initially but that is now

> > >wearing off. Nothing has worked very long.

> > >

> > >I was biten by a tick approximatly 3 1/2 yrs ago after a day of

> > >hunting. We live in Florida. Is it possible to have symptoms

>onset 2

> > >yrs after a bite? Can it harbor in the body for such a long time?

>I

> > >am doubtful, but wanted to ask. I guess I am hoping to finally

>find

> > >an answer and a relief for this agonizing pain. From what I read

> > >online, 30 days was the longest I could find. Also, i never

> > >developed a bulls-eye, but I read this is not necessary.

> > >

> > >I appreciate any help you all can give.

> > >

> > >Thanks!

> > >

> > >Barb

> > >

> > >

> > >

> > >

> > >

> > >

>

>

>

>

>

>

[Guest guest]

,

As soon as I find one I will be making an appt. I can't say that I

am having much luck. Hopefully with offices open tomorrow I will

have better luck and will be able to find my way to a LLMD.

Are they listed as LLMD's? Or how are they listed? Or is this just a

specialty that some happen to posess and there is no title? I won't

let anyone discourage me, what my pcp is doing isn't working. I had

a really bad night again last night and this has got to stop! It is

getting worse every day now.

I am sorry to hear your kids suffered so bad. It is horrible for

little kids to go thru this and think this is what life is about.

Thank you for sharing their symptoms with me.

I am looking forward to receiving the article, thanks for offering

to send it! If you have any problems, I have a fax machine if that

will help. You can email it to me at bbgibbs@.... If it

doesn't work, let me know.

Thanks!

Barb

> > > Definitely you should be tested. I have two kids with Lyme -

my

> >son had

> > > the severe headaches and actually began having seizures. He

was on

> >Topamax

> > > at one time (it drugged him out so much we switched to keppra

and

> >depakote.)

> > > After six months of just thinking he had epilepsy, he was

> >finally

> > > diagnosed with Lyme. Three weeks into his abx treatment his

> >headaches were

> > > gone.

> > >

> > > In a weird development, my best friend has been going from

> >neurologist to

> > > neurologist because of headaches and neck pain - the fourth

one

> >wanted to

> > > test for lyme and we thought there was no way she had it too.

The

> >test came

> > > back this week - positive even according to CDC standards. We

> >live in GA.

> > >

> > > Good luck - I've heard through the grapevine that Florida is a

> >tough state

> > > in denying that they have lyme. Be persistent, be tested, but

> >also find a

> > > doctor who isn't afraid to make a clinical diagnosis. Your

test

> >may be

> > > negative but that doesn't mean you don't have lyme.

> > >

> > > Feel better!

> > >

> > >

> > > >From: " bbgibbs99 " <bbgibbs@t...>

> > > >Reply-

> > > >

> > > >Subject: [ ] New member with a question

> > > >Date: Sat, 26 Feb 2005 04:43:51 -0000

> > > >

> > > >

> > > >

> > > >Hi, I just joined and had a few questions that I was hoping

you

> >all

> > > >could help me answer. My sister read an artical today and

thought

> >of

> > > >me while reading it and I thought I would do some research on

what

> > > >she found. It was an artical in the Times magazine about a

little

> > > >boy who was suffering from what was thought to be migraine

> > > >headaches, after long suffering and many pills, his

homeopathic dr

> > > >hit on the fact that he had lyme disease and within a week or

so

> >his

> > > >headaches subsided. I am sure some or maybe most of you are

> >familiar

> > > >with the article? I tried to find it but was unsucessful, so

I am

> > > >going on 2nd hand information.

> > > >

> > > >

> > > >I have been suffering from severe headaches for the past year

and

> >a

> > > >half. My dr says they are tension headaches with an occasional

> > > >rebound headache thrown in the mix. It now hurts on the side

of my

> > > >face as well, from my eye, over to my ear and down to my jaw

bone

> > > >and I think it may be starting to hurt on the neck as well.

It is

> >to

> > > >the point now that I am taking tylenol, excedrin tension or

advil,

> > > >or what ever else i can get my hands on, with an occasional

need

> >for

> > > >prescription pain meds, every 3-4 hrs to manage the pain

around

> >the

> > > >clock. Makes for many long painful nights! I am also on

topamax to

> > > >help manage the pain, I had some relief initially but that is

now

> > > >wearing off. Nothing has worked very long.

> > > >

> > > >I was biten by a tick approximatly 3 1/2 yrs ago after a day

of

> > > >hunting. We live in Florida. Is it possible to have symptoms

> >onset 2

> > > >yrs after a bite? Can it harbor in the body for such a long

time?

> >I

> > > >am doubtful, but wanted to ask. I guess I am hoping to finally

> >find

> > > >an answer and a relief for this agonizing pain. From what I

read

> > > >online, 30 days was the longest I could find. Also, i never

> > > >developed a bulls-eye, but I read this is not necessary.

> > > >

> > > >I appreciate any help you all can give.

> > > >

> > > >Thanks!

> > > >

> > > >Barb

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> >

> >

> >

> >

> >

> >