Some Good News

[Guest guest]

Hi Group...This Lyme recovery thing is definitely trial and error. Kind of like

the rest of life. I'll share a little bit - maybe it will help someone else,

maybe someone has some input for me? I had an MRI yesterday AM, and saw my PCP

yesterday PM. At my PCP visit I learned that my heart tests (echo gram taken 10

days ago) came back normal - I have a healthy heart consistent with my age.

Good news after 2+ years of untreated hypertension. I discovered at the Lyme

Conference in January that Lyme causes hypertension (high blood pressure & high

pulse) in some of us - including me. The MRI results arrived while at the PCP -

that was also normal - no MS, no plaque, no tumors, no lesions, etc. I suppose

Lyme can cause mental fog / confusion without plaque on the brain? I had some

serious bouts with mental fog before starting Doxy 4 months ago - and still do

have spells.

My PCP asked me if I'd been scheduled for the visit with her mentor yet - the

doctor who treats the entire person. I let her know that I hadn't heard a word

about it since our last visit, and I'd also never heard anything further about

the Lyme specialist on Long Island. She put through a referral over a month

ago, but due to a few mix-ups, the paper work fell through the cracks. This

teaches me to be vigilant in following up on appointments - I can't assume

anything. After a few calls, I'm now seeing the doctor who treats the entire

person next Monday. The Lyme clinic on Long Island is Stony Brook - she was

waiting until I saw her mentor before she put through the paper work for a Lyme

specialist. I confided with her that I contacted the LDA and made my own

appointment with an LLMD. We agreed to forget about Stony Brook, and she will

support my LLMD efforts. This is good news, especially if I run into insurance

problems.

I had my high pulse medicine changed - I'm definitely allergic to Inderal LA. I

started the Inderal again in January when my pulse went sky high - and I've been

sick ever since. It's not easy to make clear decisions when you feel terrible.

Listing these events to this group helps me to sort through things. I'm on a

new beta blocker for pulse - which is working fine. My PCP is also requesting

an over-ride so that I can get more Imitrex (for Lyme migraines) through the

insurance. I'm even thinking that the Inderal allergy was triggering some of

the bad headaches. Time will tell. That's it for now - I'm looking forward to

seeing the " whole body " doctor next week, then my LLMD the following week. I

feel like I'm back on track...Tom