Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 > Dear Group > I just had a girl friend of mine tell me one of her friends got her > Spinal Tap results back which showed she has MS.. This woman has been > diagnosed and treated for Lyme for some time now. It is possible to have > both Lyme and MS at the same time? Glen, here is what I think, note I am not a Dr or nurse. I think there is MS, I also think there is MS caused by Lyme ( like me ). MS has no known cause and in its simplest terms it is Multiple Sclerosis or lesions on the brain. If the person knows they have Lyme then I would tend to assume the MS is a symptom of the Lyme and I wouldnt treat w/steroids. What my LLMD did was repeat an MRI 2 years into my abx treatment ( I went 17 years misdiagnosed) and saw that the lesions were smaller if not gone. Unless it was a life/death thing I wouldnt allow treatment w/steroids and work on treatment with an abx that will cross the blood brain barrier. lymenet.org has info on MS and Lyme in their medical abstracts and there was a Dr Bleiweiss that did research into it. I cant find the link now, but if you search Dr Bleiweiss it should bring up his article and the pertinent info is about 1/3 way down Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Hi, I feel MS is a bacterial illness because many who have " MS " and get good lyme treatment get better. Hugs, Connie, MI [ ] Lyme and MS (again) > > Dear Group > I just had a girl friend of mine tell me one of her friends got her > Spinal Tap results back which showed she has MS.. This woman has been > diagnosed and treated for Lyme for some time now. It is possible to have > both Lyme and MS at the same time? > > Glen in New Jersey > > > > > > Questions and/or comments can be directed to the list owner at -Owner > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Here's a good link that talks about lyme/MS looking the same on testing. http://home.earthlink.net/~webmedic4u/ms.html Connie Siese <Cslyme@...> wrote: Hi, I feel MS is a bacterial illness because many who have " MS " and get good lyme treatment get better. Hugs, Connie, MI [ ] Lyme and MS (again) > > Dear Group > I just had a girl friend of mine tell me one of her friends got her > Spinal Tap results back which showed she has MS.. This woman has been > diagnosed and treated for Lyme for some time now. It is possible to have > both Lyme and MS at the same time? > > Glen in New Jersey > > > > > > Questions and/or comments can be directed to the list owner at -Owner > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 Hi , There is a forum called MS unbiased that addresses all the different mindsets about MS www.thisisms.com/forums.html Check out the ABX section...notice that there is a small section about Lyme disease...maybe more of the lyme sufferers who present with MS type syptoms should post there, and let others know! They also discuss other poss. pathogens, from viral to bacterial, alot of talk about c. pnuemoniae being a co-factor, as well as HHV-6 I've wondered if those in lymeland who present with the MS presentation may be dealing with multiple pathogens, such as viral and bacterial infections.....or many bacterial agents at once Not just those listed as Lyme and Company - In , " /Rodney " <rod@g...> wrote: > > Dear Group > > I just had a girl friend of mine tell me one of her friends got her > > Spinal Tap results back which showed she has MS.. This woman has been > > diagnosed and treated for Lyme for some time now. It is possible to have > > both Lyme and MS at the same time? > > Glen, here is what I think, note I am not a Dr or nurse. I think there > is MS, I also think there is MS caused by Lyme ( like me ). MS has no known > cause and in its simplest terms it is Multiple Sclerosis or lesions on the > brain. If the person knows they have Lyme then I would tend to assume the > MS is a symptom of the Lyme and I wouldnt treat w/steroids. What my LLMD > did was repeat an MRI 2 years into my abx treatment ( I went 17 years > misdiagnosed) and saw that the lesions were smaller if not gone. Unless it > was a life/death thing I wouldnt allow treatment w/steroids and work on > treatment with an abx that will cross the blood brain barrier. > lymenet.org has info on MS and Lyme in their medical abstracts and there was > a Dr Bleiweiss that did research into it. I cant find the link now, but if > you search Dr Bleiweiss it should bring up his article and the pertinent > info is about 1/3 way down Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2005 Report Share Posted February 11, 2005 -I'm familiar with Dr. Lida Mattman and her research, if you like her theories you should invest in: Cell Wall Deficient Forms, Stealth Pathogens,3rd Edition by Lida Mattman Problem ( not too many)that can arise with some of her theories--- there are many types of sphirocetes...and not all are pathogenic to humans--and we can't really tell which is which...since testing is soooo rotten...and we pretty much know everyone carries some sort of sphirocete around--that's why it is said everyone tests positive at Bowen(??)I do not know that as fact-it is more like theory( the bowen statement, not the prior information) Many other CWI/CWD bacterias, viruses( which have no cell wall--ever, what-so-ever) and mycoplasmas can also literally *steal* the genetic material from said sphirocetes and avade( avoid) the immune system response--even the CDC agrees that certain types of pathogenic agents can do this( one of the few things they got right) But if you want to silience a group of people.....bring up some of the medical abstracts/mindsets that we discussed many moons ago on this Lymenet thread( well, about a yr ago) Link: http://flash.lymenet.org/Forum1/HTML/025133.html If you read carefully, these studies suggest that our own bone marrow becomes breached and infected...just like Dr. Mattman suggests.....but the startling part is with regards to what happens from there.... It fools your body into reproducing it'self(WHAT!! Whats going on with my idiot immune system?)WELL, Keep it simple, stupid(KISS) explaination: Your Bone marrow produces your B-cells, and the sphirocretes have breached the spinal columm and gotten into the fluid---now, this is really, really simple explaination----but it's like a B-ell factory where these tricky spirocetes invade( hitch a ride) the b-cells and replicate-----and here's the truly brilliant part.....your immune system doesn't recognize these cells as abnormal Just one of the many ways this bug survives--Tricky little bastards On second thought..don't share this with your group...unless everyone is already in remission....or you are handing out " Happy Pills " at the door (Just kidding,many already know about these theories) Take Care, CELIENE -- In , Lucher <lucher@s...> wrote: > I don't remember how I got a video tape showing Dr Mattman's research on spiroketes but it is very interesting. She shows that all MS,Parkinsons, ALS have cysts in their spinal fluids. She is/was connected with Bowen Labs so they may know about the tape and how to get it. This tape is very impressive, I showed it to my Houston Lyme group and the whole room was dead silent for a minute after the tape. > > > ravencat9461 <ravencat9461@y...> wrote: > > > > > > Dear Group > > > I just had a girl friend of mine tell me one of her friends got > her > > > Spinal Tap results back which showed she has MS.. This woman has > been > > > diagnosed and treated for Lyme for some time now. It is possible > to have > > > both Lyme and MS at the same time? > > > > Glen, here is what I think, note I am not a Dr or nurse. I > think there > > is MS, I also think there is MS caused by Lyme ( like me ). MS has > no known > > cause and in its simplest terms it is Multiple Sclerosis or lesions > on the > > brain. If the person knows they have Lyme then I would tend to > assume the > > MS is a symptom of the Lyme and I wouldnt treat w/steroids. What > my LLMD > > did was repeat an MRI 2 years into my abx treatment ( I went 17 > years > > misdiagnosed) and saw that the lesions were smaller if not gone. > Unless it > > was a life/death thing I wouldnt allow treatment w/steroids and > work on > > treatment with an abx that will cross the blood brain barrier. > > lymenet.org has info on MS and Lyme in their medical abstracts and > there was > > a Dr Bleiweiss that did research into it. I cant find the link > now, but if > > you search Dr Bleiweiss it should bring up his article and the > pertinent > > info is about 1/3 way down > > > > > > > Questions and/or comments can be directed to the list owner at Lyme- Aid-Owner@Y... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 I went last Thursday to a Neurologist that point blank told me there was " No lyme disease in the state of Tennessee. That people who think they have Lyme actually have MS. That the CDC goes to each state and takes samples of ticks and checks them for the spyrochete. " " I don't believe that crap. The receptionist at my pcp's office her husband had Lyme and it about killed him before they found out what it was. The doctor in the office tried to refer him to an infectious disease specialist told him there was no such thing as Lyme here and refused to see him. My pcp told him so you are just going to let the man die because it is your belief that there is no Lyme disease here is that what you are telling me. A few minutes later he (the infectious disease doctor called him back and make an appointment for the man. A lot of doctors just have absolutely no idea on how to treat Lyme and use every excuse they can think of to blame it on something else. I went to an infectious disease doctor who told me I did not have lyme. Had a positive ELISA showing high titers for both IgG and IgM. She did a western blot after I had been on doxy for several months at the insistance of my opthalmologist (after losing my vision twice) but the infectious disease specicalist told me I had RA. The opthalmologist had done that test in sept '03 it came back negative. The neurologist ran an RA factor that came back negative. So I think they do these things to confuse us even more about what is wrong with us. I once had a neurologist (I went to before I knew about Lyme) for severe, severe, recurrent migraines and he told me it was all in my head. And he even wrote a letter to my doctor (who is no longer my doctor) saying all I wanted was pain medication that I went in there demanding it. When the conversation was Doctor: What do they usually give you for the headaches that work? My response was percocet. He then told the doctor I went in there demanding percocet. I don't care what they give me as long as I am not in excruciating pain almost daily where I have some type of life. I have a 7 year old and a 3 year old and feel like such a failure with them because I can't stand noise, light, bending over kills me. I just pray that someone, somewhere, will come up with something that will make the medical community actually sit up and take notice that we are not crazy we are in pain and tired and ill. I am sick and tired of being sick and tired. We did not chose this. It just happened to us. Sorry to ramble on I am just so tired of being told it is one thing or another and not getting treated like a human being. God Bless you All Beverly Hi, I feel MS is a bacterial illness because many who have " MS " and get good lyme treatment get better. Hugs, Connie, MI [ ] Lyme and MS (again) > > Dear Group > I just had a girl friend of mine tell me one of her friends got her > Spinal Tap results back which showed she has MS.. This woman has been > diagnosed and treated for Lyme for some time now. It is possible to have > both Lyme and MS at the same time? > > Glen in New Jersey > > > > > > Questions and/or comments can be directed to the list owner at -Owner > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 First thing I would do is go to the CDC's OWN website that has the Lyme infection list by state, and show that to the Dr. Ask him how can the CDC state there is no Lyme in TN ,yet here it is? > I went last Thursday to a Neurologist that point blank told me there was " No lyme disease in the state of Tennessee. That people who think they have Lyme actually have MS. That the CDC goes to each state and takes samples of ticks and checks them for the spyrochete. " " I don't believe that crap. The receptionist at my pcp's office her husband had Lyme and it about killed him before they found out what it was. The doctor in the office tried to refer him to an infectious disease specialist told him there was no such thing as Lyme here and refused to see him. My pcp told him so you are just going to let the man die because it is your belief that there is no Lyme disease here is that what you are telling me. A few minutes later he (the infectious disease doctor called him back and make an appointment for the man. > > A lot of doctors just have absolutely no idea on how to treat Lyme and use every excuse they can think of to blame it on something else. > > I went to an infectious disease doctor who told me I did not have lyme. Had a positive ELISA showing high titers for both IgG and IgM. She did a western blot after I had been on doxy for several months at the insistance of my opthalmologist (after losing my vision twice) but the infectious disease specicalist told me I had RA. The opthalmologist had done that test in sept '03 it came back negative. The neurologist ran an RA factor that came back negative. So I think they do these things to confuse us even more about what is wrong with us. I once had a neurologist (I went to before I knew about Lyme) for severe, severe, recurrent migraines and he told me it was all in my head. And he even wrote a letter to my doctor (who is no longer my doctor) saying all I wanted was pain medication that I went in there demanding it. When the conversation was Doctor: What do they usually give you for the headaches that work? > My response was percocet. He then told the doctor I went in there demanding percocet. > > I don't care what they give me as long as I am not in excruciating pain almost daily where I have some type of life. I have a 7 year old and a 3 year old and feel like such a failure with them because I can't stand noise, light, bending over kills me. I just pray that someone, somewhere, will come up with something that will make the medical community actually sit up and take notice that we are not crazy we are in pain and tired and ill. I am sick and tired of being sick and tired. We did not chose this. It just happened to us. Sorry to ramble on I am just so tired of being told it is one thing or another and not getting treated like a human being. > > God Bless you All > > Beverly > > > Hi, > I feel MS is a bacterial illness because many who have " MS " and get good > lyme treatment get better. > > Hugs, > Connie, MI > [ ] Lyme and MS (again) > > > > > > Dear Group > > I just had a girl friend of mine tell me one of her friends got her > > Spinal Tap results back which showed she has MS.. This woman has been > > diagnosed and treated for Lyme for some time now. It is possible to have > > both Lyme and MS at the same time? > > > > Glen in New Jersey > > > > > > > > > > > > Questions and/or comments can be directed to the list owner at > -Owner > > > > Quote Link to comment Share on other sites More sharing options...
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