Re: Dreams-Yvonne/Lyme in England

[Guest guest]

wrote:

> I live in England; havent you heard?? we dont have any Lyme disease

> over here in England!

>

> I really wish I could get treatment, I have been ill for nine years

> and it has wrecked my life.

>

> I would love to have tests done, but my NHS GP would laugh me out of

> the surgery, and I am too ill to be able to afford private.

>

> All the Best

>

Hi,

my doc has the results of all my clinical Lyme observations and won't write

them up into my notes because he says it will be difficult, if not

impossible, to prescribe some of the many other medications I have to take.

My Dx remains as " acute motor and sensory axonal neuropathy, cardiac

syndrome-X, rheumatoid arthritis, fibromyalgia and incontincence " .

When I was last in hospital to have an arthritic rotator cuff freed I took

along an excellent seminar from the Lancet (November 2003) about Lyme

Borreliosis in the UK to show to the rheumo consultant. He said we don't get

Lyme in the UK. I said 'borreliosis then?'....Wouldn't even read it. His

nurse practitioner later told me that he [rheumo] has treated three Lyme

dxed patients in the past in our local hospital. That's an epidemic where I

live. I have met with one who said he was told he just has rheumatoid

arthritis but is on ABx like myself for Lyme. His infection was tick-borne

whilst holidaying in the States, not the UK like me.... Still, it was

denied. Why?

My GP is superb but he won't be seen to be treating me for Lyme even though

he says my medical history dictates a gestational infection and does not

doubt the borreliosis at all. I am still separately medicated for each of

the multiple symptoms (at least 12 other meds). And that all adds up to a

number of expensive, 'wasted' hospital clinic appointments; rheumatology,

urology, neurology, cardiology.....

Kezzi. . .S. Lakes, UK