Any longterm cases in here?

February 25, 2004

I have had lyme disease for over 20 years was had it three times as

a child and was treated and it went away enough for no one to

notice. Getting diagnosed with learning disabilities and emotional

disabilities. Then Bipolar and now I'm disabled. After 3 years of

bipolar treatment I found a person that had lyme disease and they

told me there symptoms. I decided to go to there doctor because no

one would listen to me. Ignoring the issue that I could have it

that long and not get properly treated. I have ackes in all my

joints, brain fog, memory problems, exhaustion. I can go on and

on. Sounds like bipolar? I never thought it did. Now I'm getting

treated for Lyme disease and west blotch said that I didn't have it

but my vitamin b was extremely low. I eat better then most and I

know I get alot of vitamins. There was alot of other things that I

didn't understand but he said that it still looked like I had it.

He never had anyone with the disease as long as me. I'm taking

Biaxin to start off with plus plavicid because I have lots of

problems with acid. I'm getting sicker like he said. I have a hard

time driving to places, driving is fine but knowing where I'm going

isn't. I can only concentrate on one thing at a time or I get

totally upset. Frustrates me. Plus people are mean to me because I

supposedly look normal and since I don't work I'm a loser. But I do

get social security do to being bipolar. The only reason I have

mood swings is because I am in pain and I can't concentrate. Post

tramatic stress disorder yes but thats it for having a mental

issue. Anyone have any similiar issues? I did talk to a lawyer

friend and he wants me to keep up with this doctor and believes that

this will work. He said he wants to take my case when I get the

final results. Like back on my feet. I lost my life. Failed at

school except when I felt good got A's and B's but that was a short

while. Couldn't keep a job. Would love to hear from you all?

Thanks

Randy Hanser

February 25, 2004

Randy,

Were you just on the lyme chat for SSDI tonight?

RE:your questions. Mostly, I am so relieved for you that you finally have a

LLMD>

I went through all of the things you mentioned and had my wits about me

enough to really question the dx of the docs or shrinks.

I found them to be very limited. A psych explained it well although I have

heard it before.

Each professional is like the blind men looking at the elephant. Each

describes what he sees from his perspective.

I feel the LLMD tries to deal with the whole elephant that is in the room.

That is just the start of the journey.

Finding the path to wellness is the difficult part. I have found listening to

Dr. Burrasco's audio's and DVD's helpful.

Among many other resources such as the lyme chat and lymenet, etc.

It is still a rough trip. It is so difficult to take drugs that seem to make

you worse instead of better in hopes that in the long run you will improve.

I have been on treatment for about 6 months of this last year.

My goal now is to keep with it for 3 years. I continue to hear from people

who seem to have 90% of their lives back after 3 years of treatment.

in California

February 26, 2004

27+ years that I'm sure about!! 45 if you count the meningitis I had as a

kid followed by bursitis and fatigue.