Re: bladder tests

November 26, 2004

Ive had all the bladder/kidney symptoms of lyme since I was 17, 20+

years now. I also had a cystoscopy, showing nothing. What Ive found,

is its some type of secondary infection (maybe candida??) caused by

the lyme throwing off the internal balance of normal bacteria, and

the only thing that fixes it for me is taking quinine daily. I take

1 gram, its herbal, no prescription, mixed with peanut butter on a

cracker every day, and the bladder incontinence goes away. When I

forget to take it, bladder/kidney symptoms return. An MD treated me

3x in a row for kidney infection, clearly seeing cloudy urine and

having it tested, and the results of the tests showed more than one

bacteria -- so they threw the tests out wrongly thinking

contamination--- this is incorrect. Lyme is one bacteria, yeast is

another, and we all know 2 can exist at once, as evidenced by

erlichia (which I had/have), chronic candida yeast infections in

lyme patients, etc.... and the other four piggybackers that lyme

ticks can give you. So when your tests are showing blood or urine

with more than one bacteria, and the lab protocol says THROW OUT

RESULT< CONTAMINATION -- this is a serious error. All your bacteria

variety are showing, and you are very sick/infected, yet they figure

oops, we contaminated it???? My samples were even given AT the lab,

so how could that be?

You might want to try quinine - its at any health food store, or

available on the net thru mail order by the pound. Very cheap -

twenty dollars a pound will do 10 people sharing for an entire year.

Incidentally, the quinine is part of the malaria remedy that many

lyme people have accidentally noticed helped their lyme -- the

quinine, NOT the fever as purported by many doctors.

(I guess they want to make money). Quinine is not regulated so its

available to all who seek it.

SALT is also the latest thing Ive found to help my sinuses, lungs,

and blood pressure. Lyme sweating causes a deathly imbalance of salt-

deprivation and this can cause death if not corrected. Read the

other post about salt, if the moderator allows you to hear about it.

SALT is necessary for life, and Morton's is not the one to use...buy

it kosher, sea salt, or halite. Without salt, we die, and in USA, a

myth abounds that salt has no value - poppycock -- look up SALT

ARCHIVES on the net to find a huge hoarde of info about salt that's

been forgotten in the states.

>

> Lori,

>

> I am about to undergo a cystoscopy ( for IC ) and desperately want

> to avoid it. I doubt I have IC - and your theory is interesting re

> spirochettes blocking the bladder? Where you able to find out

> anything on this?

>

> Thanks alot,

> sincerly

> Carmen

November 26, 2004

Carmen

I also the the lyme bladder. I have a video tape with Dr Mattman showing ketes

in the bladder lining of all IC patients. I have taken Elmiron which helps the

bladder stuff but the side effects are terrible and had to stop taking it. I

found a natural product that I think will work similar to the drug by rebuiling

the bladder lining. The abx I have taken for the last 5yrs didn't fix the

bladder.

Carmen <migragurl@...> wrote:

Lori,

I am about to undergo a cystoscopy ( for IC ) and desperately want

to avoid it. I doubt I have IC - and your theory is interesting re

spirochettes blocking the bladder? Where you able to find out

anything on this?

Thanks alot,

sincerly

Carmen

Questions and/or comments can be directed to the list owner at

-Owner

November 26, 2004

I am wondering if I should just go ahead and cancel the operation. (

cystoscopy )( Last time )They did find infection but couldn't call

it IC - aswell as oedema in my bladder wall - but they cannot 'type'

the infection. I was going to go through it all again because my

surgeon FORGOT to tell my MD I had bladder irriation - not just

urethral irriation.

So to go through it again for a neg.....welll......I'll have to

think about it....Carmen

>

> Lori,

>

> I am about to undergo a cystoscopy ( for IC ) and desperately want

> to avoid it. I doubt I have IC - and your theory is interesting re

> spirochettes blocking the bladder? Where you able to find out

> anything on this?

>

> Thanks alot,

> sincerly

> Carmen

>

> Questions and/or comments can be directed to the list owner at

-Owner@Y...

>

November 26, 2004

Hi

The b;ladder [rpblem crosses the gender line. I ahve ahd severe discomfort and

pain for the last several months even though routine tests PSA, DRE and ultra

sound were all within range. I understand that the bladder is a favorite

playground for the sprichetes.

Can yu share with me the natural approach you are folowing?

Many thanks qnd all god luck to you

JPOhn

Lucher <lucher@...> wrote:

Carmen

I also the the lyme bladder. I have a video tape with Dr Mattman showing ketes

in the bladder lining of all IC patients. I have taken Elmiron which helps the

bladder stuff but the side effects are terrible and had to stop taking it. I

found a natural product that I think will work similar to the drug by rebuiling

the bladder lining. The abx I have taken for the last 5yrs didn't fix the

bladder.

Carmen <migragurl@...> wrote:

Lori,

I am about to undergo a cystoscopy ( for IC ) and desperately want

to avoid it. I doubt I have IC - and your theory is interesting re

spirochettes blocking the bladder? Where you able to find out

anything on this?

Thanks alot,

sincerly

Carmen

November 28, 2004

Carmen,

I had MAJOR bladder issues this time last year. I couldn't go 15 minutes

without using the bathroom and would go maybe 4 times as I was trying to get

out of the house with kids waiting by the door. When I did the volume test,

I had to run back to the Dr. office to get an extra jug! Since my lyme

treatment I can say that all of my bladder symptoms are completely GONE! It

took about 6 months for it to dawn on me. Either it was the lyme or

something else bacterial, but I had the referral for the urologist all

ready - I just wanted to wait until after I saw the LLMD and put it off.

I'm glad I did because if I had gone there would have been that testing you

mentioned and if I had been diagnosed with IC there would have been more

drugs and emotions. I have a good friend with IC who is at her wits end

because she's miserable and not any better. She's going to get tested for

Lyme.

This is just my testimony regarding my bladder for what it's worth.

Beth

[ ] bladder tests

Lori,

I am about to undergo a cystoscopy ( for IC ) and desperately want

to avoid it. I doubt I have IC - and your theory is interesting re

spirochettes blocking the bladder? Where you able to find out

anything on this?

Thanks alot,

sincerly

Carmen

Questions and/or comments can be directed to the list owner at

-Owner

November 28, 2004

>

> Lori,

>

> I am about to undergo a cystoscopy ( for IC ) and desperately

want

> to avoid it. I doubt I have IC - and your theory is interesting re

> spirochettes blocking the bladder?

Hi.

Can you tell me what IC means, please?

I've finally realized that the on-again, off-again urinary symptoms I

experience are Lyme related, or Lyme itself.

The good news is that whenever I experience the symptoms now

I take a product called Cran-Actin. It works wonderfully. I believe

the way it works is to smooth the cells lining the bladder.

Symptoms I experience are the urge to urinate, then no flow. Or

sometimes, urinary urgency. While these could be considered a

typical issue for a woman of my age (58), the symptoms seem

always to arise when I am experiencing other symptoms in a

Lyme/co-infection flare-up.

Dark urine is also a symptom that sometimes appears with a

tickborne illness flare-up.

Hope this helps.

Deanna

November 28, 2004

HI, it means Interstitial Cystitis. Means microscopic bleeding

between the bladder walls. But I feel it's probably more the lyme

bladder, and severe irritation of the bladder wall - similar but not

the same. Symptoms are on good days, peeing twice per hour AT LEASt

and on a bad day, by the minute.....I have to take some hectic meds

to stop the pain and irritation as it feels just like a UTI.(

urinary tract infection ) I get cloudy urine the day b4, and I

suddenly crash into the worst depression. That is one sign I am

getting sick. Weird. I also have bladder bloated feeling, bladder

pain and spasms, , and shivers, hot flashes and insomnia.

I tried Cranberry Capsules with little help unfortunately.

Has anyone tried Moducare?

Carmen

> >

> > Lori,

> >

> > I am about to undergo a cystoscopy ( for IC ) and desperately

> want

> > to avoid it. I doubt I have IC - and your theory is interesting

re

> > spirochettes blocking the bladder?

>

> Hi.

>

> Can you tell me what IC means, please?

>

> I've finally realized that the on-again, off-again urinary

symptoms I

> experience are Lyme related, or Lyme itself.

>

> The good news is that whenever I experience the symptoms now

> I take a product called Cran-Actin. It works wonderfully. I

believe

> the way it works is to smooth the cells lining the bladder.

>

> Symptoms I experience are the urge to urinate, then no flow. Or

> sometimes, urinary urgency. While these could be considered a

> typical issue for a woman of my age (58), the symptoms seem

> always to arise when I am experiencing other symptoms in a

> Lyme/co-infection flare-up.

>

> Dark urine is also a symptom that sometimes appears with a

> tickborne illness flare-up.

>

> Hope this helps.

>

> Deanna

November 28, 2004

I tried Moducare when it first came out, it bothered me because it had soy in

it. Then they changed it and took out the soy and used something " soy free "

can't remember what is was. I still couldn't take the new one, it still caused

bloating. I don't know if they cleaned the machines and got the soy off of them

or continued using the same ones.

I never tried it again after that.