Tested Negative for Lyme

[Guest guest]

It took me 12 years to test positive for Lyme. I tested positive for

Babesiosis the first time anyone thought to test for it. You have to

watch for which lab they are using and if they're only calling it

positive if it matches CDC. I wish they would stop printing that on the

results. SSA, Medicare, Workers' Comp., etc. don't know the difference

and take it at face value.

Message: 21

Date: Mon, 22 Dec 2003 18:23:42 -0500

From: " Bill " <bbarksda@...>

Subject: Re: Tested negative for lyme

If I am giving worng info, someone please let me now. It is sometimes

hard to rely on the test, especially if you have been on abx. The little

suckers hide and cannot be detected. From my personal explerience, most

of my test have come back marginal at best, but my somptoms are so bad at

times my dr. relies on clinical symptoms.

Just my thought, any others out there.

Thanks,b

[ ] Tested negative for lyme

The latest crop of blood tests all showed up negative. They included

the Western blot, some co-infection tests (babyosis and the one with

an e) and a few other tests (sera something, etc.) My symptoms seem a

bit better but there's still some tingling going on. And I did feel

like crap over the weekend so maybe that was herxing? Also no burning

jaw or numbness (just head tingling) since I started abx so maybe

things are settling down.

My LLMD said to stay on the abx until my next visit in Feb and I

assume there will be further blood tests then. Does this sounds like

the right advice to you veterans? Is there anything else I should be

doing prior to that visit?

Thanks, Chris

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[Guest guest]

I'm sure you will get some GREAT advice from here!! I am a Chronic

Lymie. I tested Negative for 6 years.. Then I went to see a LLD in

Colmar, PA. again I tested negative but he looked at the banding in

the tests. He said I definately have Lyme Disease.

To be honest with you I thought that this was like most of the

other SCAMS that we've seen. But to make everyone happy I took the

oral ABX he gave me.. and after 2 months of Oral ABX .. I tested

Possative. Well I appologized to the Dr. and I'm not on IV Rocephin..

5th or 6th month.. WHEW I just plain FEEL BAD.. but this doesnt come

or go. I have seen some improvments but its a slow process.

My last Lyme test (Western Blot) says I'm once again negative for

Lyme. Ya know what I have to say to the CDC " BITE ME "

If your Dr. said to stay on the ABX's until Feb. I would... I dont

think its really going to hurt anything? But I'm sure there are

others on here that are full of information and can really help you..

Sorry for such a long note. But I was in a typing mood and had to

Vent... and I'm sure there are many on here that would also say " BITE

ME " to the CDC..

Ray

> The latest crop of blood tests all showed up negative. They

included

> the Western blot, some co-infection tests (babyosis and the one

with

> an e) and a few other tests (sera something, etc.) My symptoms seem

a

> bit better but there's still some tingling going on. And I did feel

> like crap over the weekend so maybe that was herxing? Also no

burning

> jaw or numbness (just head tingling) since I started abx so maybe

> things are settling down.

> My LLMD said to stay on the abx until my next visit in Feb and I

> assume there will be further blood tests then. Does this sounds

like

> the right advice to you veterans? Is there anything else I should

be

> doing prior to that visit?

>

> Thanks, Chris

[Guest guest]

In a message dated 12/26/2003 6:11:47 PM Eastern Standard Time,

rworrilow@... writes:

> If your Dr. said to stay on the ABX's until Feb. I would... I dont

> think its really going to hurt anything? But I'm sure there are

> others on here that are full of information and can really help you..

>

I would like to give you my opinion because I had only #41 on my Western blot

and ended up paralyzed from the neck down, in addition to all the other

symptoms of lyme (an ALS/Lou Gehrigs' like condition). I did 5 yrs. of abx,

including Mepron/zith for months and months, flagyl at high doses, Suprax,

Ceftin,

Dynabac, etc. I tested pos. for bartonella, mycoplasma, HHV-6, babesia,

ehrlichia, Epstein barr and nanobacteria, to name a few. I used to advocate to

everyone " You MUST do abx! "

Not anymore. Abx, in my opinion, just chase the bacteria in hopes of catching

it and eradicating it, which we all know will never be 100%. So what

happens....we take abx, herx, feel lousy for many, many months to

years....finally

show somewhat improvement, and once the abx are ceased, the symptoms slowly

creep

back with a vengeance. So we start on the treadmill again..... abx which

leads to all kinds of problems...one of the most significant is candida

albicans.

This vicious cycle has to be followed then for the rest of the persons life. I

have NEVER in the 8 yrs. of being involved with lyme advocacy (and fighting

this disease, husband was deathly ill, 5 of my 6 kids were chronic), found one

person that is permanantly 'cured'. Some claim to be cured but EVERY time I

get an e-mail 6 mos, a year, whatever later saying " it is back " . Or a person

claims to be 'done' yet they are suffering with lower back/disc problems,

headaches, shoulder pain, sinus problems, etc.... but it is not lyme, no.

So why don't we look at this disease in a different manner??

What if we were to change the internal environment so that lyme can be kept

in check....so it can lay dormant?? I am working with clients in the natural

realm of lyme disease. What this means is.... I detox the body, cleanse it,

nourish it and rebuild it. I am finding that most of my clients have the

co-infection of babesia and this is crucial. What I am using is Artemesinin from

Allergy Research Group (it is also wonderful for cancer--will send a separate

e-mail). Artemesinin is being used for the children in Africa for malaria. I am

getting wonderful results, myself included. Once the body is balanced, we then

use

the Cat's Claw or Samento or Prima Una de Gato...all the same thing. It is a

very potent, natural antibiotic which is working beautifully. (again self,

husband, clients using it with great results). This is creating a lasting effect

on the person, changing their life to a healthier lifestyle.

I work a great deal with ALS/ Lou Gehrigs/late, late stage lyme.

This is very exciting work and I believe it is a wonderful alternative for Rx

with permanant results.

sue massie, CNHP, Iridologist, Naturopathic Dr. Candidate

732 933-4011

[Guest guest]

Sue......how long has this practice been studied? How expensive is the

treatment? How long must one stay on the treatment? It sounds much better than

Doxy! I have been on Doxy since 1997 and can barely maintain....would like not

to have cysts, herxing, and all the symptoms of taking Doxy.

SueV.

What this means is.... I detox the body, cleanse it,

nourish it and rebuild it. I am finding that most of my clients have the

co-infection of babesia and this is crucial. What I am using is Artemesinin from

Allergy Research Group (it is also wonderful for cancer--will send a separate

e-mail). Artemesinin is being used for the children in Africa for malaria. I am

getting wonderful results, myself included. Once the body is balanced, we then

use

the Cat's Claw or Samento or Prima Una de Gato...all the same thing. It is a

very potent, natural antibiotic which is working beautifully. (again self,

husband, clients using it with great results). This is creating a lasting effect

on the person, changing their life to a healthier lifestyle.

I work a great deal with ALS/ Lou Gehrigs/late, late stage lyme.

This is very exciting work and I believe it is a wonderful alternative for Rx

with permanant results.

sue massie, CNHP, Iridologist, Naturopathic Dr. Candidate

732 933-4011

[Guest guest]

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Lyme Aid Owner

==========

Hi Sue,

Doxy is highly caustic. If I'm not mistaken it is a form of Penicillin

(spelling) Lots of people are allergic to pen.

Also NY State study says IV. Don't know how yours is being administered.

According to NYS study the Lyme spiralkeet has crossed over the lining of the

brain and into the spinal fluid. There are only a hand full of Biotics that

cross over the membrane and reach the brain and spinal fluid.

Humboldt County Millie

Sue Vogan <suelymer97@...> wrote:

Sue......how long has this practice been studied? How expensive is the

treatment? How long must one stay on the treatment? It sounds much better than

Doxy! I have been on Doxy since 1997 and can barely maintain....would like not

to have cysts, herxing, and all the symptoms of taking Doxy.

SueV.

[Guest guest]

Hi, Sue,

You seem to have a good solution here. So, there is a cure for Lyme and its

co-infections?

Ssadlermas@... wrote:

> In a message dated 12/26/2003 6:11:47 PM Eastern Standard Time,

> rworrilow@... writes:

>

> > If your Dr. said to stay on the ABX's until Feb. I would... I dont

> > think its really going to hurt anything? But I'm sure there are

> > others on here that are full of information and can really help you..

> >

>

> I would like to give you my opinion because I had only #41 on my Western blot

> and ended up paralyzed from the neck down, in addition to all the other

> symptoms of lyme (an ALS/Lou Gehrigs' like condition). I did 5 yrs. of abx,

> including Mepron/zith for months and months, flagyl at high doses, Suprax,

Ceftin,

> Dynabac, etc. I tested pos. for bartonella, mycoplasma, HHV-6, babesia,

> ehrlichia

What can we do for ehrlichia? Garlic or Oregano? Or, Semanto? Is there a cure

for this?

> , Epstein barr and nanobacteria, to name a few. I used to advocate to

> everyone " You MUST do abx! "

> Not anymore. Abx, in my opinion, just chase the bacteria in hopes of catching

> it and eradicating it, which we all know will never be 100%. So what

> happens....we take abx, herx, feel lousy for many, many months to

years....finally

> show somewhat improvement, and once the abx are ceased, the symptoms slowly

creep

> back with a vengeance. So we start on the treadmill again..... abx which

> leads to all kinds of problems...one of the most significant is candida

albicans.

> This vicious cycle has to be followed then for the rest of the persons life. I

> have NEVER in the 8 yrs. of being involved with lyme advocacy (and fighting

> this disease, husband was deathly ill, 5 of my 6 kids were chronic), found one

> person that is permanantly 'cured'. Some claim to be cured but EVERY time I

> get an e-mail 6 mos, a year, whatever later saying " it is back " . Or a person

> claims to be 'done' yet they are suffering with lower back/disc problems,

> headaches, shoulder pain, sinus problems, etc.... but it is not lyme, no.

> So why don't we look at this disease in a different manner??

> What if we were to change the internal environment so that lyme can be kept

> in check....so it can lay dormant?? I am working with clients in the natural

> realm of lyme disease. What this means is.... I detox the body, cleanse it,

> nourish it and rebuild it. I am finding that most of my clients have the

> co-infection of babesia and this is crucial. What I am using is Artemesinin

from

> Allergy Research Group (it is also wonderful for cancer--will send a separate

> e-mail). Artemesinin is being used for the children in Africa for malaria. I

am

> getting wonderful results, myself included. Once the body is balanced, we then

use

> the Cat's Claw or Samento or Prima Una de Gato...all the same thing. It is a

> very potent, natural antibiotic which is working beautifully. (again self,

> husband, clients using it with great results). This is creating a lasting

effect

> on the person, changing their life to a healthier lifestyle.

> I work a great deal with ALS/ Lou Gehrigs/late, late stage lyme.

> This is very exciting work and I believe it is a wonderful alternative for Rx

> with permanant results.

How permanent? Like 5 years or longer symptom free?

>

>

> sue massie, CNHP, Iridologist, Naturopathic Dr. Candidate

> 732 933-4011

I called you a few times and got no answer.

mei

[Guest guest]

On or about Sunday, January 25, 2004 10:27 PM [GMT+1=CET],

mt <mtien@...> sprinkled letters onto the page, saying:

> Hi, Sue,

>

> You seem to have a good solution here. So, there is a cure for Lyme

> and its co-infections?

>

Hmmm... I have been led to believe by many health professionals that there

is NO cure for Lyme. Unfortunately I cannot get Sue Massie to confirm her

'cure' as she seemingly refuses to answer my emails on the subject. Wouldn't

this be fantastic? The best I have come across so far is Samento liquid

extract... Many improvements, but some disappointments... Still, after 27

years I can wait. I can't remember my life being any different.

Regards,

Kezzi. . .