Re: Samento - foot pain

December 22, 2003

On or about Saturday, December 20, 2003 3:26 PM [GMT+1=CET],

Ssadlermas@... <Ssadlermas@...> sprinkled letters onto the page,

saying:

> Foot pain is not a side-effect of Samento.... but it is a symptom of

> lyme disease.

So... here's a 'for instance'. My dad, no Lyme symptoms ever, takes a

prophylactic dose of samento as myself and my mother have borreliosis.

Increasing his dose of samento he developed severe foot pain. Decreasing the

dose reduces it. I run the Samento Diaries page (http://tinyurl.co.uk/9aa4)

and this is where samento users report NEW symptoms. Many users report foot

pain NEVER experienced before. I have never been told I have Lyme, only

borreliosis... (though I now know that my dx is reported to have a 99%

probability). I cannot afford the LD tests because I can't work through

disability. (27 years dxed with progressive acute motor and sensory axonal

neuropathy - misdiagnosed GBS/CIDP). I HAD the foot pain. Samento reduced it

to the point where I have had no pain meds for over 7 weeks.

Now whilst I am prepared to believe that either there are borrelia carrying

patients who reflect no symptoms, and that all persons may have a borrelia

infection due to the possibilities of gestational and sexual infection

(amongst others) I can see how it is possible that abx or samento (not an

antibiotic but an immune-modulator) may exacerbate the symptoms of 'latent

borreliosis' whilst being used. Is this an argument for NOT taking samento

as a prophylactic? I have dramatically reduced my own dosage as I already

have a multi-system disorder and cannot afford any more symptoms. I have

'quietened' keyboard-wise lately as I cannot type with my right hand due to

a surge of 'arthralgia' and am considering stopping completely and returning

to my original protocol where I had learned to live 'comfortably' with the

disability. I can't do with another unnecessary symptom. And, yes...

arthralgia is another Lyme one too.

I still insist that samento produces many 'side-effects' including foot pain

but has varying properties depending on the seriousness of length of

illness.

Best wishes,

Kezzi. . .

" The Samento Diaries - input your symptoms " :

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