Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 I've completed 12 weeks of IV Rocephin and feel horribly worse in most ways, but especially in joint pain (even my hands are bad!)and general achiness/depression/exhaustion. I went downhill for the whole 12 weeks of IV and now off of it for a few weeks continue to feel awful. Dr P now wants me to try Bicillin injections, once a week for 6 weeks and see then if I should then try more IV or not. (I guess he had wanted me to be on Biaxin with the IV but the Dr who put me on the IV had me on Tetracycline along with it.) I guess Dr P doesn't give the injections in the office. Does anyone have experience on how these are administered? Do I have to go to the hospital for them if I am on Medicare? I have a nurse in my family who can administer injections so maybe I can just get the stuff and avoid the hospital...its such a drag having to go there at all. I have given myself injections in the past but I understand that this is a big and painful one. Any info on Bicillin will be appreciated. Thanks and happy holidays... Melina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 HI KAtherine Do you do your bicillin shots in the thigh. I am curious as to whether you were given any sort of " formula " to work out the area to give them i was just told to do it in a particular area which i marked with a permanent marker which i renew when it fades. I would like to know if there is an actual formula so i can dispense with the permanent mark. Dona Re: [ ] Bicillin Injections Melina, I give myself the injections. I also have someone help me at times. I took a look at that needle and didn't immediately jump in. But, all is going well. Knock on wood. I had a nurse show me how to give them to myself. The most difficult thing for me is getting the courage to inject the needle. I usually don't have pain. I was not steady while injecting the drug once and had a knot and bruising later. I keep it slow and steady now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2003 Report Share Posted December 21, 2003 Hi Ive got plenty of padding everywhere so the thighs are Ok with me. At least my padding comes in handy for something .! Nice talking to you. Dona Dona, I too considered marking the spot, but never did get around to it. I am giving myself a shot in the upper right hand corner of the buttocks. The doc suggested the thigh, but the nurse thought this area would be better because of more padding. HA! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2003 Report Share Posted December 21, 2003 Hi Melina I dont have any numbness in the thighs at all. i do get the occasional small lump but giving the bicillin slowly and using a light ice pack helps a lot with that. more importantly before i started on the self administered thigh shots i was having it in the hip with the huge horse needle the 1.8g comes with. the nurse would give me those. she hated it because it was such a huge needles i did nt feel anything though.. (must be the padding) i had over 200 ..i stopped counting at 200.. and even though i had some lumping in the area there is no numbness and the lumps are all cleared up now. i really have had no problems with bicillin shots hope this helps. Dona RE: [ ] Bicillin Injections Have you guys found that the areas of injection get numb and sometimes get lumps? Years back in my CFS treatment with Dr L in NYC I used to inject *alot*: Kutapressin, Vit C, Vit B-12...etc...I'm not sure if any of it really helped me but it seemed that I got alot better from IV Gammagobulin at the time and then continued with IM shots of it that left a couple of small lumps in my ...er...behind;-) I still have some numbness in my thighs from all of those self administered shots. That's part of why I'm a little worried about the Bicillin shots. I'm sure I can give them to myself...and my brother-in-law is an RN (Medical lawyer now, but still keeps up his RN and, much to his dismay, is good to go for shots)...but I'm a little hesitant because I keep remembering how horrible it was, for something like a couple of years, injecting myself all the time with all sorts of stuff.(and it seems silly because I've just come off of 12 weeks of IV Rocephin with a short line, so was getting stuck all the time at the hospital...some very bad stories from that but I didn't want a PICC line if I could avoid it;-) I used to line up 6 or 7 shots a day, some IM though most small orange needles, and just sit and do them wherever I could find a spot I hadn't used in a while. It seemed to go on for a long time. Is it better to give the Bicillin in a few small shots rather than one big one? Also, is insurance covering this? Does anyone know how much injectable runs? I'm on Medicare so have very limited Rx coverage...I can get it at the hospital if he orders it administered there but if I fill it at the pharmacy I'm paying! On the other hand, I'm so freakin' sick that it hurts to wrap the presents!...someone has to do it, so I'm just pacing myself, but it's a drag as this time off year is usually a little more joyful than the rest...oh well. Any info is appreciated, Melina (who still has a sharps container in the basement!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi Melina, I took Bicillin injections for 21/2 years and my sister gave them to me. It is not hard, I showed her how to do it, and she was a natural! I have heard of some people giving them to themsleves, but I could not do it, so she did it for me. You have to inject them slowly, because if you go too fast, it will burn. I hope this helps, and I did not have a bad herks with the Bicillin, hardly noticed it at the time. Hope everything goes good for yoy!! > > > I've completed 12 weeks of IV Rocephin and feel horribly worse in most > ways, but especially in joint pain (even my hands are bad!)and general > achiness/depression/exhaustion. I went downhill for the whole 12 weeks > of IV and now off of it for a few weeks continue to feel awful. > Dr P now wants me to try Bicillin injections, once a week for 6 weeks > and see then if I should then try more IV or not. (I guess he had wanted > me to be on Biaxin with the IV but the Dr who put me on the IV had me on > Tetracycline along with it.) > I guess Dr P doesn't give the injections in the office. Does anyone have > experience on how these are administered? Do I have to go to the > hospital for them if I am on Medicare? > I have a nurse in my family who can administer injections so maybe I can > just get the stuff and avoid the hospital...its such a drag having to go > there at all. I have given myself injections in the past but I > understand that this is a big and painful one. > Any info on Bicillin will be appreciated. > Thanks and happy holidays... > Melina Quote Link to comment Share on other sites More sharing options...
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