New to Lyme

[Guest guest]

Hello all -

I was recently diagnosed with LD, I thought for the last 7 years I

had chronic fatigue syndrome (for the 2nd time, the first time was

10 years before that, now I think it must have been Lyme all along),

so I'm reading up on Lyme and trying to find out all I can. In

December I'll be getting 2 weeks of (very expensive and not covered

by insurance) IV antibiotic therapy from a holistic MD in Kansas

City. Have any of you done this? Can you tell me anything about it?

Thanks, Ellie

[Guest guest]

I agree, the most important step to take is find an experienced Lyme Literate

MD (LLMD). If you tell us the state or region you live in, we can give

suggestions. But we are not permitted to name MDs (not even initials) through

this group. However, members would gladly contact you through your email

address personally. There aren't many MDs with the experience to treat Lyme

beyond the acute stage (first month after exposure). I live in Mass. but travel

140 miles to New York for my treatment (I went undiagnosed for 5 1/2 yrs).

If you've only been infected for a few months, with antibiotics for the

appropriate length of time (meaning probably beyond the Infectious Disease

Society Guidelines) you'll probably be fine. I got only 2 weeks of antibiotics

the second time I got bitten (had classic rash & symptoms) which was not enough.

The spirochetes went underground for a 1 1/2 yrs then health problems

began--diagnosed with hypothyroidism. By then I never made the connection

between my fatigue & occasional aches and brain fog to Lyme, thought it was

related to thyroid problem. I tell my story to emphasize the importance of

early diagnosis and treatment. The tests are not accurate. A good LLMD will

treat you based on your symptoms --after ruling out other causes. How you

respond to a trial of one or two months of antibiotics will definitely show

whether or not you have Lyme.

Best of luck,

Kim

[ ] New to Lyme

I'm new to Lyme. After experiencing two months of fatigue and achy joints, I

had a Lyme Western Blot test that showed equivically positive on the IgM Western

Blot. I have no history of exposure to ticks, but have traveled up and down the

east and west coasts of the US many times. I've never had a rash.

My Lyme Igm Western Blot from IgeneX is:

23-25 kDa IND

31 kDa 1+

39 kDa IND

41 kDa 2++

58 kDa 2++

Has anyone had good success with natural treatments? High does vitamin C? High

dose Garlic? Allimax? High does Betaine Hydrochloride?

What is the preferred treatment amount newsgroup members?