Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Has anyone heard of this? NBC25 Experimental drug may help Chronic Disease Syndrome By Mark Kraham HAGERSTOWN, MD DECEMBER 27 - It is estimated that a million Americans suffer with Chronic Fatigue Syndrome. It was once known as the Yuppie Flu because it knocked normally hard working, educated people off their feet. Today, Chronic Fatigue Syndrome is a recognized disease, but one that still puzzles experts. While there is no cure and no specific treatment, there is hope from an experimental drug. In this hundred mile per hour, twenty-four seven world we live in, it is no wonder that people are tired. However, there is tired, and there is this. " We're talking about fatigue where you're barely able to lift a tea cup up, and I was pretty well confined to bed, " explained Colvin, a Chronic Fatigue Patient. Like , Alice Badler was also bedridden by the overwhelming tiredness that was diagnosed as Chronic Fatigue Syndrome. Like many CFS patients, she also suffered from a variety of associated maladies. " I had horrible memory loss, violent migraines, light sensitivity, allergies, smell sensitivity, severe weakness in my legs, I couldn't carry my own weight, horrible pain in my joints, " stated Badler. Doctor Podell treats many patients with Chronic Fatigue Syndrome, which is why, despite some public skepticism, he is convinced it is a real disease. " What we are lacking at this point is a single simple lab test that says you have Chronic Fatigue Syndrome and you don't. But what we do have is a lot of lab tests that on average, people with CFS are more likely to be abnormal than others, " explained Doctor Podell. This may explain why this drug appears to help ease the symptoms of CFS. It is called Ampligen, and it is in a Phase Three clinical trial, which means that neither patients nor doctors know whether they actually got the active drug at first, although in the second stage of the study, all patients got Ampligen. It is a twice a week IV for up to 14 months, which is a major commitment for both and Alice, but one they feel was worth it. " The limits of my energy have expanded outwards, and, yeah I just, I trust that, that's going to continue to happen, " stated Colvin. " I am 80% probably towards the kind of life I'd like to have, " stated Badler. For more information on Chronic Fatigue Syndrome, go to www.cfs-news.org/ampligen.htm. Quote Link to comment Share on other sites More sharing options...
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