Re: thoughts on irreversable damage due to lyme

[Guest guest]

Hello,

sorry to hear of your old symptoms coming back...I don't know if I

have asked you this... but did you go on a neurotoxin ellimintion

plan after you finished antibiotics?? I have been reading more about

how after antibiotic treatment we need to cleanse the left over

toxins from our bodies that lyme leaves behind... Ritchie

Shoemaker's website is very interesting www.chronicneurotoxins.com.

This is probably something everyone already knows but me so I am

asking...Take care,

> Hi Folks

>

>

> I am new here but not new to lyme. After 4 years of treatment

and

> 5 months of being well,I am back in the cooker. Depression and

brain

> problems have always been the worst with lyme and now they have

> returned(oh well)

> I have been on everything but for an IV.(something I can't

> afford),but sometimes I get this feeling that there is

irreversable

> damage to the brain cells. Is there anyone out there who has been

> completly cured? I am back on an antidepressant,but no abx.(body

> can't handle them anymore). If this is the way it is going to

> be ,that's ok I will get by. I was just wondering what your

thoughts

> are on lasting damage.

>

> appleseed Hi hope you and are ok

[Guest guest]

,but sometimes I get this feeling that there is irreversable

> damage to the brain cells.

I use to wonder if I had irreversable brain damage from lyme but

there are days where my brain is functioning as good as ever so this

tells me that the damage is not irreversable. Provigil is really good

for brain and energy. Coffee enema's have probably stopped me from

suicide many of times. I will be feeling mentally just awful and I do

not remember the coffee enema then it seems at the last minute, I

think of it. It seems to clear out all of my symptoms, inculding the

brain symptoms. I think it stimulates the liver to dump its toxins

into the bile and bile out with the bowel movements.

Bob

[Guest guest]

has anyone here gone through this visual testing and treatment??

gloria

On Saturday, August 30, 2003, at 03:49 PM, aurora22565 wrote:

> did you go on a neurotoxin ellimintion

> plan after you finished antibiotics?? I have been reading more about

> how after antibiotic treatment we need to cleanse the left over

> toxins from our bodies that lyme leaves behind... Ritchie

> Shoemaker's website is very interesting www.chronicneurotoxins.com.

[Guest guest]

Dear Appleseed, I was completely cured in 1994 from lyme. The tick bit me on my

back, and I had neuro lyme. However, I was rebitten in 2000 on my foot, it seems

to be in my muscle, and lymph, and nerve, and am not well yet, but, I am hopeful

to be well again too. it's like being thin, you know you once were and work

towards that end, and I am working on it.

[ ] thoughts on irreversable damage due to lyme

Hi Folks

I am new here but not new to lyme. After 4 years of treatment and

5 months of being well,I am back in the cooker. Depression and brain

problems have always been the worst with lyme and now they have

returned(oh well)

I have been on everything but for an IV.(something I can't

afford),but sometimes I get this feeling that there is irreversable

damage to the brain cells. Is there anyone out there who has been

completly cured? I am back on an antidepressant,but no abx.(body

can't handle them anymore). If this is the way it is going to

be ,that's ok I will get by. I was just wondering what your thoughts

are on lasting damage.

appleseed Hi hope you and are ok

[Guest guest]

For $49.00 you can get listings of doctor's in your area. I have paid, email

meryhart@... Of course no charge, just being discreet online.

However, I just did this tonight, and cannot vouch for any.

[ ] Re: thoughts on irreversable damage due to lyme

Hello,

sorry to hear of your old symptoms coming back...I don't know if I

have asked you this... but did you go on a neurotoxin ellimintion

plan after you finished antibiotics?? I have been reading more about

how after antibiotic treatment we need to cleanse the left over

toxins from our bodies that lyme leaves behind... Ritchie

Shoemaker's website is very interesting www.chronicneurotoxins.com.

This is probably something everyone already knows but me so I am

asking...Take care,

> Hi Folks

>

>

> I am new here but not new to lyme. After 4 years of treatment

and

> 5 months of being well,I am back in the cooker. Depression and

brain

> problems have always been the worst with lyme and now they have

> returned(oh well)

> I have been on everything but for an IV.(something I can't

> afford),but sometimes I get this feeling that there is

irreversable

> damage to the brain cells. Is there anyone out there who has been

> completly cured? I am back on an antidepressant,but no abx.(body

> can't handle them anymore). If this is the way it is going to

> be ,that's ok I will get by. I was just wondering what your

thoughts

> are on lasting damage.

>

> appleseed Hi hope you and are ok

[Guest guest]

I believe you could write to Hoffmann-La Roche, who makes the rocephin, asking

for help. They have a program called Compassionate Use, for those with

illnesses that cannot afford the meds. They give meds every year. I cannot

attest to Rocephin, but you can try.

[ ] Re: thoughts on irreversable damage due to lyme

Hello,

sorry to hear of your old symptoms coming back...I don't know if I

have asked you this... but did you go on a neurotoxin ellimintion

plan after you finished antibiotics?? I have been reading more about

how after antibiotic treatment we need to cleanse the left over

toxins from our bodies that lyme leaves behind... Ritchie

Shoemaker's website is very interesting www.chronicneurotoxins.com.

This is probably something everyone already knows but me so I am

asking...Take care,

> Hi Folks

>

>

> I am new here but not new to lyme. After 4 years of treatment

and

> 5 months of being well,I am back in the cooker. Depression and

brain

> problems have always been the worst with lyme and now they have

> returned(oh well)

> I have been on everything but for an IV.(something I can't

> afford),but sometimes I get this feeling that there is

irreversable

> damage to the brain cells. Is there anyone out there who has been

> completly cured? I am back on an antidepressant,but no abx.(body

> can't handle them anymore). If this is the way it is going to

> be ,that's ok I will get by. I was just wondering what your

thoughts

> are on lasting damage.

>

> appleseed Hi hope you and are ok

[Guest guest]

Appleseed, I'm sorry I didn't read your letter a little more carefully. It was a

half baked response. Perhaps some other reader will benefit, however. Please

forgive.

[ ] thoughts on irreversable damage due to lyme

Hi Folks

I am new here but not new to lyme. After 4 years of treatment and

5 months of being well,I am back in the cooker. Depression and brain

problems have always been the worst with lyme and now they have

returned(oh well)

I have been on everything but for an IV.(something I can't

afford),but sometimes I get this feeling that there is irreversable

damage to the brain cells. Is there anyone out there who has been

completly cured? I am back on an antidepressant,but no abx.(body

can't handle them anymore). If this is the way it is going to

be ,that's ok I will get by. I was just wondering what your thoughts

are on lasting damage.

appleseed Hi hope you and are ok

[Guest guest]

www.sas.com is a good info page, i get my coffee from them,

it detoxes much better than most.

or do a serch unde coffee enemas.

a good book on it is Wellness against all odds by sherry rogers

Janet wrote:

>

> what are coffee enemas??????????????

>

[Guest guest]

Hello,

Yes, I did the visual testing...boy I really did poorly... However,

since being on rocephin for 40+ days I took the test again and did

much better over 50% better...I bought Shoemakers books and really

reccomend them....I would be happy to look up doctors on the list...

I am not in support of making people pay for that information unless

the proceeds are going directly to lyme research... I could be wrong

but, I have a password just email me.

Thanks

angela

ps I am on my docs version of his treatment without the actos...I

will be taking the meds that get rid of the cyst after the rocephin

and then CSM

>

> > did you go on a neurotoxin ellimintion

> > plan after you finished antibiotics?? I have been reading more

about

> > how after antibiotic treatment we need to cleanse the left over

> > toxins from our bodies that lyme leaves behind... Ritchie

> > Shoemaker's website is very interesting

www.chronicneurotoxins.com.

>

>

[Guest guest]

Hi,

I just went to Dr. Shoemaker's site and took the preliminary test and

the first visual contrast test.

Uh . . . . Can anyone really SEE those squares? Let alone the

direction of the lines???

Anyway, I tested positive on all. The VCS test was challenging, to

say the least. I think I scored 29 out of 90. Hmmmmmmm.

How many people have done this test and what where your results like?

How reputable is this Dr?

Blessings,

> Hello,

> Yes, I did the visual testing...boy I really did poorly... However,

> since being on rocephin for 40+ days I took the test again and did

> much better over 50% better...I bought Shoemakers books and really

> reccomend them....I would be happy to look up doctors on the list...

> I am not in support of making people pay for that information unless

> the proceeds are going directly to lyme research... I could be wrong

> but, I have a password just email me.

> Thanks

> angela

> ps I am on my docs version of his treatment without the actos...I

> will be taking the meds that get rid of the cyst after the rocephin

> and then CSM

>

>

>

>

[Guest guest]

Hello stillamappleseed,

I am also a 2x Lymer with what I believe is either a relapse or just

damage. May I suggest three things you might try.

1) Try to learn something new to help with the mental symptoms.

Learning new things stimulates new physical connections between

different areas of the brain. While some of us have lost some brain

tissue (Lyme victims, that is), we can 'pump up' what we have left.

The brain is very plastic. It accomodates all kinds of setbacks.

By learning new things, the brain physically makes new connections

between different parts of the brain. IT CAN BE RE-WIRED.

Perhaps it uses previously unused cells (remember we only use 10% of

it, so the experts say). That leave 90% left in case we need it.

I went to school as soon as I could after the first case of Lyme. It

helped, although math was impossible. Over time and continually re-

training myself, I am finally starting pre-calc (I am a biology

major), which I need to take calculus I and statistics, which I need

to graduate and do science. It is doable. I think it is doable even

with chronic or post-Lyme.

2) EAT PROTEIN. The brain needs sugar. It cannot create it on its

own, so it relys purely on the level of sugar in our blood. Eating

processed sugar is a quick fix, but is not good for us. Fructose,

from fruits, is better. Better still is to eat protein from MEAT (not

soy). Soy contains proteins called 'lectins', which can be bad for

you over time. MEAT MEAT MEAT is what you need. It is converted into

necessary sugars more slowly. Untoasted bagels contain long chains of

carbs that take a long time to break down too. Moderate carbs are

good, as meat is, in providing a more steady stream of protein into

the blood, which is converted into nutrients, such as glycogen, which

eventually is changed to glucose (sugar). On the same note, you need

to eat at regular intervals, not at 7 am and again at supper.

You also need a good vitamin regimen, especially D/calcium regimen

(remember, Lyme loves to eat up our bones and cartilege). If you are

NOT allergic to shellfish, Chondroitin seems to help rebuild

cartilege and connective tissue. DO NOT TAKE IT IF YOU HAVE ANY

ALLERGY TO SHELLFISH>

IN ANY CASE ALWAYS CHECK DIETARY ISSUES WITH YOUR DOCTOR FIRST TO

MAkE SURE THEY WILL NOT CAUSE OTHER PROBLEMS FOR YOU. Example, High

LDL cholesterol problems. Stay on top of that.

3) Proper sleep. Ok, while sick, this is rough, but you have to rest.

If you can't sleep, at least lay in bed. Hot soaks for sore

muscles,ice-for tendonitis, aromatherapy sachets/oils (rosemary works)

is good for relieving tension.

Who knows, maybe the sprirochetes live better in tense people? Maybe

we can defeat them without antibiotics someday. Point is, by doing

what you can to comfort and nourish yourself properly, you will

perhaps enable your own immune system to at least respond to new

outbreaks.

This is all my own personal theory. I am trying this out on myself

(I just started). I beat Eptstein-Barr this way. Twice.

Being run-down is easy when you have Lyme, which inhibits our natural

self-defense biological mechanisms.

I hope this helps alleviate some symptoms. But again, I urge you to

consult family physician about allergies, cholesterol or other

dietary issues you may have before making any drastic changes.

Best Wishes for Feeling Better soon...

testnerd