Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 you should start low 1.5 mg or less and check your adrenal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 You said you were hoping to get off your pain medications ... which implies you are still taking pain medications ... because what you had sounds to me like a major withdrawal from opiate meds ... Before trying LDN you need to make sure all opiates are out of your system ... 7 - 14 days out of your system. Jaxi On Wed, May 12, 2010 at 6:35 PM, newmomjenroby <jwadle@...> wrote: > I started to take LDN last Monday and had a very severe reaction to it. I had to stop taking it and only took it one time. I was taking it for undiagnosed immune disorder and pain disorder from a reaction of the Anthrax shot in the military. Anyways I took it at 10:00pm and at 12:30 am started breaking out into very severe cold sweats all over my body which would come in waves. Then almost immediately I had severe pain and restlessness all over my body. It was hard to breath and keep my temperature and if I lie still I couldn't breath and had to tense my muscles all over my body. Ended up in the emergency room and they couldn't do much for me except try to make me comfortable. I couldn't even sleep at all. The pain and restlessness were so bad in my mind all I wanted to do was get the medication out of my anyway I could to end my misery. I was like this from 12:30am till 3:00pm the next day. I wasn't back to normal till the next day around noon. I lost feeling in my whole body while coming down from the medication. The doctors concluded that Im too chemically sensative for the medication and advised me not to take it anymore. This was the worst reaction to medication I ever had. I was hoping to get off my pain medications all together but looks like that is my only option. I was wondering if anyone had severe side effects. I have been on alot of sites about LDN and haven't heard anyone with a severe side effect like I did. Also I would advise anyone going to the emergency room take documentation with you about LDN since the hospital I went to had no knowledge of it and kept accusing my that I was an alcholic and no off label use was for naltrexone. It was very frustrating plus they took two hours to see me and say they couldn't do anything for me. They kept asking me If I was drinking today and they never heard a side effect like that. I was taking 4.5mg LDN from the pharmacy in New York that Dr. Billari recommended. > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Good point, Jaxi... taking LDN with opiate pain meds is counterindicated and that information is all over the websites. Can you tell us what pain meds you were taking at the time to determine if opiates were among them? -- At 03:13 PM 5/13/2010, you wrote: >You said you were hoping to get off your pain medications ... which >implies you are still taking pain medications ... because what you had >sounds to me like a major withdrawal from opiate meds ... > >Before trying LDN you need to make sure all opiates are out of your >system ... 7 - 14 days out of your system. > >Jaxi > >On Wed, May 12, 2010 at 6:35 PM, newmomjenroby <jwadle@...> wrote: > > I started to take LDN last Monday and had a very severe reaction to > it. I had to stop taking it and only took it one time. I was taking it > for undiagnosed immune disorder and pain disorder from a reaction of the > Anthrax shot in the military. Anyways I took it at 10:00pm and at 12:30 > am started breaking out into very severe cold sweats all over my body > which would come in waves. Then almost immediately I had severe pain and > restlessness all over my body. It was hard to breath and keep my > temperature and if I lie still I couldn't breath and had to tense my > muscles all over my body. Ended up in the emergency room and they > couldn't do much for me except try to make me comfortable. I couldn't > even sleep at all. The pain and restlessness were so bad in my mind all > I wanted to do was get the medication out of my anyway I could to end my > misery. I was like this from 12:30am till 3:00pm the next day. I wasn't > back to normal till the next day around noon. I lost feeling in my whole > body while coming down from the medication. The doctors concluded that > Im too chemically sensative for the medication and advised me not to take > it anymore. This was the worst reaction to medication I ever had. I was > hoping to get off my pain medications all together but looks like that is > my only option. I was wondering if anyone had severe side effects. I > have been on alot of sites about LDN and haven't heard anyone with a > severe side effect like I did. Also I would advise anyone going to the > emergency room take documentation with you about LDN since the hospital I > went to had no knowledge of it and kept accusing my that I was an > alcholic and no off label use was for naltrexone. It was very > frustrating plus they took two hours to see me and say they couldn't do > anything for me. They kept asking me If I was drinking today and they > never heard a side effect like that. I was taking 4.5mg LDN from the > pharmacy in New York that Dr. Billari recommended. > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
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