LDN and Lyme disease

[Guest guest]

Good afternoon,

I am new on the subject LDN and am trying to figure out if it's beneficial for

chronic Lyme disease as well. I am not sure if I have developed autoimmunity,

but would like to find out if LDN is useful in general fighting Lyme and the

other co-infections which I have. I heard that with Lyme one should better not

introduce LDN… So I am not sure what to do.

Thanks!

o

[Guest guest]

LDN does not fight pathogen infections like Lyme and it's co-infections, but it helps in the battle. LDN is very good in helping with the pain and helps normalize a dysfunctional immune system, which is a common problem. That being said, a normal immune system is no match for these stealth pathogens...LDN is a good adjunct therapy. LDN can give Lyme patients better brain clarity, more energy, and less aches and pains.

I have been a patient advocate for Lyme for 9 years now, and I recommend patients talk to their doctors about taking LDN. I don't know why someone would say not take LDN...if your immune is very low (hypo humoral) it normalizes it...if your immune is too high (hyper humoral-autoimmune state) it normalizes it.

I have been on the drug since the end of August 2009. During my last doctor visit in Feb, my immune tests showed the drug has normalized my immune.

I hope this helps.

Good afternoon,I am new on the subject LDN and am trying to figure out if it's beneficial for chronic Lyme disease as well. I am not sure if I have developed autoimmunity, but would like to find out if LDN is useful in general fighting Lyme and the other co-infections which I have. I heard that with Lyme one should better not introduce LDN. So I am not sure what to do.Thanks!o

[Guest guest]

Would agree and add for me, LDN helped me confirm I had LYME, and been

on LDN since they told me I had RRMS, 8 months or so on LDN now, 3 mg/night,

along with my first 4 months of varying monthly antibiotics now. I got

worse when I got off LDN.

My original post attached……

From:

low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of ,

Bradley J.

Sent: Friday, February 19, 2010

8:34 AM

zahavi;

low dose naltrexone

Subject: RE: [low dose naltrexone]

advice needed

I have been reading here for years now, trying to figure where I

fit in.

Thank you ALL for your input, without it I wouldn’t have

tried LDN, and I don’t think I would be doing as well as I AM.

I started with an initial MS diagnosis when I began having

double vision problems for 3 months the summer of 2007, it eventually corrected

on its own.

The initial ELISA LYME tests, on spinal fluid, the summers of

2007 and 2008 were negative, my first local Western Blot the fall of 2009, was

”negative” with only one band positive, but thanks to those of you

that have talked about IGENEX Western Blot and LYME LITERATE doctors, I found

both. My IGENEX Western Blot winter of 2009 confirmed I have had

untreated Lyme the last 3.5 years, OR MORE, not MS. I have not tried any

MS CRAB Drugs, although copaxone was suggested. I have had 7 Brain

MRI’s so far showing plaques that look like MS. Never found the

tick. TOLD IT COULD EVEN BE FROM A MOSQUITO!

The opinion of this ”LYMIE” is LDN can be critical

in not only helping with LYME, but also in determining you have it!

LDN is an important reason I figured out I had LYME and pursued

more and better LYME tests! Four weeks in on LDN I had major “flare

up” and was in bed unable to walk straight for a week. Later I

found this can happen with those with undiagnosed Lyme, but I can’t find

this web post now? I stayed on the LDN (not sure this was best thing to

do now, but I did it) and LDN had helped with energy and brain fog, almost

immediately, and I believe throughout. The second doctor I found to

prescribe LDN believes in 3 mg /night, so I started there and am back on at 3

mg /night this week. STILL HELPING!

I tried to get off of LDN in last few weeks, as I

started antibiotics, and I got worse, slurring when speaking, problems with

walking (not sure if it is the antibiotic after 2.5 months, or getting off the

LDN, or both) , after 3 days back on LDN, I am feeling better, not slurring,

and walking better. The antibiotics/getting off LDN last 2 weeks,

has been nothing like what I believe was my initial HERX 4 weeks in on LDN,

when I assume my immune system was turned back on and started going after the

LYME.

I have been to a LYME literate Doctor in December

2009, and started on 4 months of ANTIBIOTICS, 2.5 months in now) before I check

back in May 2010. Was told I could get worse before better, but thinking

now LDN is keeping me better than worse.

I am 43 year old male with no other health issue

before this!

I am willing to take anyone else’s input who has

been through this especially if I might have something wrong, or am missing

something here. I am still early in the process, ~6 months on LDN, and

believe this has been going on just 3.5 years, a relatively short time to some,

but it seems like forever to me. I try to read here regularly, but not to say I

could have missed a few posts!

I still wonder if I am going to be told I have

something else before this is over, in addition to the LYME, co-infections of

some sort. It took 4 LYME tests before I was told I have LYME!

Someone posted they had LYME and MS? MAYBE THEY ARE ONE IN THE SAME?!

Again, thank you ALL for posting on LDN here!

From:

low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Torrey

Sent: Tuesday, April 20, 2010 8:53

AM

low dose naltrexone

Subject: [low dose naltrexone]

Re:LDN and Lyme disease

Importance: High

LDN does not fight pathogen infections like Lyme and it's

co-infections, but it helps in the battle. LDN is very good in helping

with the pain and helps normalize a dysfunctional immune system, which is a

common problem. That being said, a normal immune system is no match for these

stealth pathogens...LDN is a good adjunct therapy. LDN can give

Lyme patients better brain clarity, more energy, and less aches and pains.

I have been a patient advocate for Lyme for 9 years now, and I

recommend patients talk to their doctors about taking LDN. I don't know why

someone would say not take LDN...if your immune is very low (hypo humoral) it

normalizes it...if your immune is too high (hyper humoral-autoimmune state) it

normalizes it.

I have been on the drug since the end of August 2009. During my last

doctor visit in Feb, my immune tests showed the drug has normalized my immune.

I hope this helps.

Good afternoon,

I am new on the subject LDN and am trying to figure out if it's beneficial for

chronic Lyme disease as well. I am not sure if I have developed autoimmunity,

but would like to find out if LDN is useful in general fighting Lyme and the

other co-infections which I have. I heard that with Lyme one should better not

introduce LDN. So I am not sure what to do.

Thanks!

o

[Guest guest]

There were two tests...one is Interleukin 10 and I can't recall the other one, but the primary test he was looking at was the Interleukin 10.

Not sure I spelled the test correctly.

[low dose naltrexone] Re:LDN and Lyme disease

LDN does not fight pathogen infections like Lyme and it's co-infections, but it helps in the battle. LDN is very good in helping with the pain and helps normalize a dysfunctional immune system, which is a common problem. That being said, a normal immune system is no match for these stealth pathogens...LDN is a good adjunct therapy. LDN can give Lyme patients better brain clarity, more energy, and less aches and pains.

I have been a patient advocate for Lyme for 9 years now, and I recommend patients talk to their doctors about taking LDN. I don't know why someone would say not take LDN...if your immune is very low (hypo humoral) it normalizes it...if your immune is too high (hyper humoral-autoimmune state) it normalizes it.

I have been on the drug since the end of August 2009. During my last doctor visit in Feb, my immune tests showed the drug has normalized my immune.

I hope this helps.

[Guest guest]

I take two oral antibiotics AM/PM, and 3 mg of LDN daily, in the evening. After reading how you went off LDN and symptoms returned...I missed two evenings because there was a mishap with the pharmacist getting it in the mail...symptoms started creeping back...just in two nights.

Glad you are doing better on LDN.

[low dose naltrexone] Re:LDN and Lyme diseaseImportance: High

LDN does not fight pathogen infections like Lyme and it's co-infections, but it helps in the battle. LDN is very good in helping with the pain and helps normalize a dysfunctional immune system, which is a common problem. That being said, a normal immune system is no match for these stealth pathogens...LDN is a good adjunct therapy. LDN can give Lyme patients better brain clarity, more energy, and less aches and pains.

I have been a patient advocate for Lyme for 9 years now, and I recommend patients talk to their doctors about taking LDN. I don't know why someone would say not take LDN...if your immune is very low (hypo humoral) it normalizes it...if your immune is too high (hyper humoral-autoimmune state) it normalizes it.

I have been on the drug since the end of August 2009. During my last doctor visit in Feb, my immune tests showed the drug has normalized my immune.

I hope this helps.

Good afternoon,I am new on the subject LDN and am trying to figure out if it's beneficial for chronic Lyme disease as well. I am not sure if I have developed autoimmunity, but would like to find out if LDN is useful in general fighting Lyme and the other co-infections which I have. I heard that with Lyme one should better not introduce LDN. So I am not sure what to do.Thanks!o

[Guest guest]

I have been diagnosed with MS since 2002, but after much research and dialogue it is apparent to me that I may have Lyme disease.

How does one get tested??....am in Atlanta, GA., USA.

Thanks,

Tom

--- RE: [low dose naltrexone] advice needed> > I have been reading here for years now, trying to figure where I fit in.> > Thank you ALL for your input, without it I wouldn't have tried LDN, and> I don't think I would be doing as well as I AM.> > I started with an initial MS diagnosis when I began having double vision> problems for 3 months the summer of 2007, it eventually corrected on its> own.> > The initial ELISA LYME tests, on spinal fluid, the summers of 2007 and> 2008 were negative, my first local Western Blot the fall of 2009, was> "negative" with only one band positive, but thanks to those of you that> have talked about IGENEX Western Blot and LYME LITERATE doctors, I found> both. My IGENEX Western Blot winter of 2009 confirmed I have had> untreated Lyme the last 3.5 years, OR MORE, not MS. I have not tried> any MS CRAB Drugs, although copaxone was suggested. I have had 7 Brain> MRI's so far showing plaques that look like MS. Never found the tick.> TOLD IT COULD EVEN BE FROM A MOSQUITO!> > The opinion of this "LYMIE" is LDN can be critical in not only helping> with LYME, but also in determining you have it!> > LDN is an important reason I figured out I had LYME and pursued more and> better LYME tests! Four weeks in on LDN I had major "flare up" and was> in bed unable to walk straight for a week. Later I found this can> happen with those with undiagnosed Lyme, but I can't find this web post> now? I stayed on the LDN (not sure this was best thing to do now, but I> did it) and LDN had helped with energy and brain fog, almost> immediately, and I believe throughout. The second doctor I found to> prescribe LDN believes in 3 mg /night, so I started there and am back on> at 3 mg /night this week. STILL HELPING!> > I tried to get off of LDN in last few weeks, as I started antibiotics,> and I got worse, slurring when speaking, problems with walking (not sure> if it is the antibiotic after 2.5 months, or getting off the LDN, or> both) , after 3 days back on LDN, I am feeling better, not slurring, and> walking better. The antibiotics/getting off LDN last 2 weeks, has been> nothing like what I believe was my initial HERX 4 weeks in on LDN, when> I assume my immune system was turned back on and started going after the> LYME.> > I have been to a LYME literate Doctor in December 2009, and started on> 4 months of ANTIBIOTICS, 2.5 months in now) before I check back in May> 2010. Was told I could get worse before better, but thinking now LDN is> keeping me better than worse.> > I am 43 year old male with no other health issue before this!> > I am willing to take anyone else's input who has been through this> especially if I might have something wrong, or am missing something> here. I am still early in the process, ~6 months on LDN, and believe> this has been going on just 3.5 years, a relatively short time to some,> but it seems like forever to me. I try to read here regularly, but not> to say I could have missed a few posts!> > I still wonder if I am going to be told I have something else before> this is over, in addition to the LYME, co-infections of some sort. It> took 4 LYME tests before I was told I have LYME! Someone posted they> had LYME and MS? MAYBE THEY ARE ONE IN THE SAME?!> > Again, thank you ALL for posting on LDN here! > >

[Guest guest]

Tom,

Check your email. Sent you some good Lyme information.

Good luck.

KenC.

_____________________________________________________________________

I have been diagnosed with MS since 2002, but after much research and dialogue

it is apparent to me that I may have Lyme disease.

How does one get tested??....am in Atlanta, GA., USA.

Thanks,

Tom