hi to all

[Guest guest]

Dear Cher,

No need to appologize to any of us. Rebetron wasn't fun, but right now, so

far as I know, it's the only FDA approved treatment. Your vitamin list

sounds good.

Good luck, dear. We'll be here for you.

LOL,

Anne

[Guest guest]

Dear Cher,

No need to appologize to any of us. Rebetron wasn't fun, but right now, so

far as I know, it's the only FDA approved treatment. Your vitamin list

sounds good.

Good luck, dear. We'll be here for you.

LOL,

Anne

[Guest guest]

Hey Larry,wellyou finally had it done. My first mri made me think I was going

in a coffin. I freaked out them but now i have has so many Im used to them I

close my eyes and dose. I must move because they say are you ok I say yes just

dozing off lol.

I called my dr yesterday because my pain level from head to toe is at an 8,

turn out I can't get and appointment til april 15 because he is aout of town, I

said well what about this pain I can't take it any more she said she would

call in some tyenol 3 whoooopie huh? really gonna do some good.Oh well it

something I guess . Im' gonna go lay down again Im hurting realy bad so all of

you

take care.

[Guest guest]

In a message dated 3/16/2004 12:48:15 PM Eastern Standard Time,

alisaeck@... writes:

I called my dr yesterday because my pain level from head to toe is at an 8,

turn out I can't get and appointment til april 15 because he is aout of town,

I

said well what about this pain I can't take it any more she said she would

call in some tyenol 3 whoooopie huh? really gonna do some good.Oh well it

something I guess . Im' gonna go lay down again Im hurting realy bad so all

of you

take care.

I hope you feel better soon too. I hope my dr will call in something stonger

for me. I have had that before too and it does no good. hugs to you.

Joy

[Guest guest]

,

I wanted to wish you the best of luck with your surgery.

Will be thinking of you.

Jenifer

> hi everyone,

> i havent written in awhile because ive been trying to spend as much

time with my family as possible before i go in the hospital next

week.....this thursday i go for pre-ops....which in my case is just

another day...lol...

> tuesday..april 6th is my surgery to remove my esophagus....i cant

tell you how often i have fought in my head about this surgery...and

now its just 7 days away.....

> my husband feels so uneasy about this surgery but supports me in my

decision....i guess the only thing that im not looking forward to is

having a feeding tube in for 6-8 weeks.....i do have a question for

those who have had this done....

> do you eventually try to eat something or suck on a popicle while

on a feeding tube????? and......are you sent home with bags of food

for your feeding tube?????????

> thanks everyone for being there for me.....i know this weekend is

going to be a mental one..i hope i can keep my mind off the

surgery!!!!

> karen

[Guest guest]

Hi ,

I’ll be thinking of you and I’ll

focus lots of positive energy your way! Just try to be strong and think about

how much better you’ll be in the long run…it won’t be

perfect, but after the healing, it will be so much better than what you are

going through now! You are in good hands!

How long are you supposed to be in the

hospital??? If you’re still there on the 16th, maybe Deb and I

can come by and visit you!

Best of luck, You’ll

be in my thoughts and prayers!

Sandi

hi to all

hi everyone,

i havent written in awhile because ive been trying

to spend as much time with my family as possible before i go in the hospital

next week.....this thursday i go for pre-ops....which in my case is just

another day...lol...

tuesday..april 6th is my surgery to remove my

esophagus....i cant tell you how often i have fought in my head about this

surgery...and now its just 7 days away.....

my husband feels so uneasy about this surgery but

supports me in my decision....i guess the only thing that im not looking forward

to is having a feeding tube in for 6-8 weeks.....i do have a question for those

who have had this done....

do you eventually try to eat something or suck on

a popicle while on a feeding tube????? and......are you sent home with

bags of food for your feeding tube?????????

thanks everyone for being there for me.....i know

this weekend is going to be a mental one..i hope i can keep my mind off the

surgery!!!!

karen

[Guest guest]

Hi Diane,

Yes, I did experience the "runs" right after surgery and was scared to death to get on the plane. I mean it was just water coming out so it was hard to even feel the sensation like you had to go. Dr. A gave me some Imodium and that solved the problem for the plane ride home. I had to take it for two days when I got home, but then it went away after that.

Debby

[Guest guest]

I had it soooooooooooooooo bad for too long after surgery,...and to some degree liquid in- liquid out,..but the other thing I was doing that I found out was wrong, was I was drinking grapefruit juice.....anything acidic is too hard on the tummy at first. Are you drinking anything acidic?bernergirl55 <datsecondmountain@...> wrote:

Thanks for the responses. Thanks Jody for the info on the fill Dr. in NC. I've got some time to look so I'll let you know if your source will work out best for me.I love reading the e-mails!!I've got to start back to work next week and only hope the diarrhea slows once I can start on some more 'firming' foods!! It will be really embarrassing to have to jump up from cleaning someone's teeth to run to the bathroom. Did others of you have diarrhea as long as you were on liquids? I'm thinking it's liquids in - liquids out???????I've taken some imodium but it doesn't really help and I don't like to take it all the time.Dianne

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

I never had diarrhea, I was just the opposite, I could, and still have

trouble, not go at all. I am still hoping Nina will ask the doctor to

see what is the best thing to do to get rid of the constipation and

what to do so that I can be regular again.

Deborah F.

[Guest guest]

Health Plus Inc. ....do a search for them.....I just started taking the regular colon cleanse and the super colon cleanse before bed. It is psyllium,...I dilute the powder in twice as much water because it thickens and I didn't want to play with that around my band. The super colon cleanse is psyllium husk powder, senns powder, fennel seed, peppermint, papaya, rosehips, buckthorn bark, barberry root, celery and acidophilus.

Works for me...but I don't normally have a problem,...just since over tightening of band,..nothing in,..nothing out!....Deborah <fauchdee@...> wrote:

I never had diarrhea, I was just the opposite, I could, and still have trouble, not go at all. I am still hoping Nina will ask the doctor to see what is the best thing to do to get rid of the constipation and what to do so that I can be regular again.Deborah F.__________________________________________________

[Guest guest]

,

The varcies in your father's throat are caused by portal

hypertension within the liver not acid reflux. This is a result of

advancing liver damage. The blood pressure within the liver

increases when the cirrhosis restricts flow. The varices are like

swollen blood vessels and will sometimes burst causing a esophogeal

bleed. They can be tyed off or carterized to stop the bleeding.

Has your father experienced ascites, fliud retention in the abdomen?

Be sure your father eats a diet low in fat, red meat, sugar, and no

alcohol.

Glenn

>

> Hello everyone my name is and I'm not a person who has Hep

C, but my father does. In fact we almost lost him due to some

verisees (sp?) rupturing in his esophagus. This was due to the acid

reflux caused by his liver. This is particularly hard on my family

cause he nor my mom have insurance. We have discovered an

alternative to medicine and I'd like to share with those of you who

may not be able to undergo the interferon process or whatever. This

is not really a sales pitch or anything like this. It's just simply

for you to look over and see if it's for you. I'm hoping that with

this product that my father will not have to undergo the eminent

liver transplant. Here is a link to check it out

http://familyhealthalternatives.com/

>

> I hope the best for each and every one of you. This is a hard

thing to go through for both the victims and the victims families.

>

>

>

[Guest guest]

Ah okay yeah I wasn't quite sure why it had happened, and no one really informed

me I was just guessing cause he is always burping a lot and such. Yeah he has to

go in every so often now to get them tyed off. It's really bad. He's not in the

best shape and it's a serious thing, but I'm trying to stay optimistic about it.

He is a very loved man amongst many, and there are many people trying to raise

funds for him in case he does need the transplant. Also some good news I just

found out today that there are a couple insurance companies that will take my

father. this was something we didn't expect so it is a positive sign during all

this. thank you for the information. I appreciate it

hdhepper1 <grisley4@...> wrote: ,

The varcies in your father's throat are caused by portal

hypertension within the liver not acid reflux. This is a result of

advancing liver damage. The blood pressure within the liver

increases when the cirrhosis restricts flow. The varices are like

swollen blood vessels and will sometimes burst causing a esophogeal

bleed. They can be tyed off or carterized to stop the bleeding.

Has your father experienced ascites, fliud retention in the abdomen?

Be sure your father eats a diet low in fat, red meat, sugar, and no

alcohol.

Glenn

>

> Hello everyone my name is and I'm not a person who has Hep

C, but my father does. In fact we almost lost him due to some

verisees (sp?) rupturing in his esophagus. This was due to the acid

reflux caused by his liver. This is particularly hard on my family

cause he nor my mom have insurance. We have discovered an

alternative to medicine and I'd like to share with those of you who

may not be able to undergo the interferon process or whatever. This

is not really a sales pitch or anything like this. It's just simply

for you to look over and see if it's for you. I'm hoping that with

this product that my father will not have to undergo the eminent

liver transplant. Here is a link to check it out

http://familyhealthalternatives.com/

>

> I hope the best for each and every one of you. This is a hard

thing to go through for both the victims and the victims families.

>

>

>

[Guest guest]

Hello adzboxer - do you have another name we can call you? I am

so pleased you have joined the forum and I know you will find a lot of answers

to your many questions. This disease does affect families - sometimes in the

worst way possible because we really have nothing to show on the outside, and

others do not understand why we complain of feeling so unwell and so desperate

for them to understand. Often, if it is a case of partners not understanding, I

usually try to encourage the member to ask their partner to read through some

of the messages sometimes so they can get a feel of what we are suffering, and

quite often, that does help. However, with children that is a different matter.

As I said to you this morning, there IS light at the end of the tunnel, but you

have to take your health into your own hands, because the NHS have their hands

tied by the British Thyroid Association and the Royal College of Physicians

guidelines on the diagnosis and management of hypothyroidism. They are taught

ONLY to treat sufferers with synthetic thyroxine and never to give any form of

T3 - which is the active hormone that our body and brain needs.

Read everything you can, especially the 'Associated Conditions'

that go along with being hypothyroid and which must be treated. You can find

those on our web site www.tpa-uk.org.uk

under 'Hypothyroidism' and then in the drop down Menu under 'Associated

Conditions'. Do read everything there, and anything you don't understand, just

shout, and somebody will be along to help you.

You will find lots of information in our FILES, and again, just

shout if you need something interpretation.

If you are determined enough, you will get back your health, but

you must first get the knowledge and learn everything you can so that you

understand the workings of the thyroid. Knowledge is power - and will help you

regain your normal health.

luv - Sheila

Hi, I have just joined this forum. I am a 41

year old female who has been diagnosed with Hashimos for over 2 year. Since

taking Levothyroxine, I have gone down hill with many other symptoms as well as

newer ones, as you all may be aware of.I feel very guilty as not only am i

suffering, but also my children, as they see me very moody and tearful at the

slightest thing.

I feel very positive now after speaking to Sheila this morning who showed me

that there is light at the end of the tunnel. I am now going to explore this

site to find out about how to obtain Armour.

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.392 / Virus Database: 270.13.45/2286 - Release Date: 08/06/09

18:17:00

[Guest guest]

Hi Sheila and other members

Firstly thank you fro signing me up so quick. I tried frantically to set up my

own account, but it would not allow me as my son is registered already, so

I am using his as he no longer uses it.

I have found the information very useful. I am about to purchase Armour from

USA, however before doing so, would like to know whether any one has experienced

any issues with the new formula, as some people claim that the re formulation

has altered the product ?

Any advice would be appreciated

Love

Nas

>

> Hello adzboxer - do you have another name we can call you? I am so pleased

> you have joined the forum and I know you will find a lot of answers to your

> many questions. This disease does affect families - sometimes in the worst

> way possible because we really have nothing to show on the outside, and

> others do not understand why we complain of feeling so unwell and so

> desperate for them to understand. Often, if it is a case of partners not

> understanding, I usually try to encourage the member to ask their partner to

> read through some of the messages sometimes so they can get a feel of what

> we are suffering, and quite often, that does help. However, with children

> that is a different matter. As I said to you this morning, there IS light at

> the end of the tunnel, but you have to take your health into your own hands,

> because the NHS have their hands tied by the British Thyroid Association and

> the Royal College of Physicians guidelines on the diagnosis and management

> of hypothyroidism. They are taught ONLY to treat sufferers with synthetic

> thyroxine and never to give any form of T3 - which is the active hormone

> that our body and brain needs.

>

>

>

> Read everything you can, especially the 'Associated Conditions' that go

> along with being hypothyroid and which must be treated. You can find those

> on our web site www.tpa-uk.org.uk under 'Hypothyroidism' and then in the

> drop down Menu under 'Associated Conditions'. Do read everything there, and

> anything you don't understand, just shout, and somebody will be along to

> help you.

>

>

>

> You will find lots of information in our FILES, and again, just shout if you

> need something interpretation.

>

>

>

> If you are determined enough, you will get back your health, but you must

> first get the knowledge and learn everything you can so that you understand

> the workings of the thyroid. Knowledge is power - and will help you regain

> your normal health.

>

>

>

> luv - Sheila

>

>

>

> Hi, I have just joined this forum. I am a 41 year old female who has been

> diagnosed with Hashimos for over 2 year. Since taking Levothyroxine, I have

> gone down hill with many other symptoms as well as newer ones, as you all

> may be aware of.I feel very guilty as not only am i suffering, but also my

> children, as they see me very moody and tearful at the slightest thing.

> I feel very positive now after speaking to Sheila this morning who showed me

> that there is light at the end of the tunnel. I am now going to explore this

> site to find out about how to obtain Armour.

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.392 / Virus Database: 270.13.45/2286 - Release Date: 08/06/09

> 18:17:00

>

[Guest guest]

No problems taking the Armour at all.

Just to be warned, it takes a while to arrive to the UK, so re-order in plenty

of time.

>

> Hi Sheila and other members

> Firstly thank you fro signing me up so quick. I tried frantically to set up my

own account, but it would not allow me as my son is registered already, so

I am using his as he no longer uses it.

> I have found the information very useful. I am about to purchase Armour from

USA, however before doing so, would like to know whether any one has experienced

any issues with the new formula, as some people claim that the re formulation

has altered the product ?

>

> Any advice would be appreciated

>

> Love

> Nas

>

[Edit Abbrev Mod]

[Guest guest]

Hello Nas

You actually don't have to have a account to register for

membership, you can join using your own ISP email account if you wish. I have a

account but hardly ever use it, I mainly just use sheila@...

There does appear to have been a problem for some users of

Armour Thyroid who have been using the old formulae and then started using the

new one. The old formulae was manufactured in such a way that it could be taken

sublingually, and the new Armour you cannot take sublingually. Also the fillers

have been changed in the new formulae and some have notices that this appears

to be making a difference. However, I have not heard of problems from new users

and my husband and I have not experienced any problems whatsoever and neither

have a lot of our other members. I would recommend you try it for yourself and

I would not anticipate that as you are new to Armour, you would experience any

problems whatsoever. However, there are other natural thyroid extracts such as

Nature Throid and Westhroid that you could try if you don't get on with new

Armour. There are also generics available such as Thyroid-s. However, don't

complicate yourself with all of these right now, I would encourage you to try

Armour for the moment and see how you get on.

Luv - Sheila

Hi Sheila and other members

Firstly thank you fro signing me up so quick. I tried frantically to set up my

own account, but it would not allow me as my son is registered already,

so I am using his as he no longer uses it.

I have found the information very useful. I am about to purchase Armour from

USA, however before doing so, would like to know whether any one has experienced

any issues with the new formula, as some people claim that the re formulation

has altered the product ?

Any advice would be appreciated

Love

Nas

>

> Hello adzboxer - do you have another name we can call you? I am so pleased

> you have joined the forum and I know you will find a lot of answers to

your

> many questions. This disease does affect families - sometimes in the worst

> way possible because we really have nothing to show on the outside, and

> others do not understand why we complain of feeling so unwell and so

> desperate for them to understand. Often, if it is a case of partners not

> understanding, I usually try to encourage the member to ask their partner

to

> read through some of the messages sometimes so they can get a feel of what

> we are suffering, and quite often, that does help. However, with children

> that is a different matter. As I said to you this morning, there IS light

at

> the end of the tunnel, but you have to take your health into your own

hands,

> because the NHS have their hands tied by the British Thyroid Association

and

> the Royal College of Physicians guidelines on the diagnosis and management

> of hypothyroidism. They are taught ONLY to treat sufferers with synthetic

> thyroxine and never to give any form of T3 - which is the active hormone

> that our body and brain needs.

>

>

>

> Read everything you can, especially the 'Associated Conditions' that go

> along with being hypothyroid and which must be treated. You can find those

> on our web site www.tpa-uk.org.uk under 'Hypothyroidism' and then in the

> drop down Menu under 'Associated Conditions'. Do read everything there,

and

> anything you don't understand, just shout, and somebody will be along to

> help you.

>

>

>

> You will find lots of information in our FILES, and again, just shout if

you

> need something interpretation.

>

>

>

> If you are determined enough, you will get back your health, but you must

> first get the knowledge and learn everything you can so that you

understand

> the workings of the thyroid. Knowledge is power - and will help you regain

> your normal health.

>

>

>

> luv - Sheila

>

>

>

> Hi, I have just joined this forum. I am a 41 year old female who has been

> diagnosed with Hashimos for over 2 year. Since taking Levothyroxine, I

have

> gone down hill with many other symptoms as well as newer ones, as you all

> may be aware of.I feel very guilty as not only am i suffering, but also my

> children, as they see me very moody and tearful at the slightest thing.

> I feel very positive now after speaking to Sheila this morning who showed

me

> that there is light at the end of the tunnel. I am now going to explore

this

> site to find out about how to obtain Armour.

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.392 / Virus Database: 270.13.45/2286 - Release Date: 08/06/09

> 18:17:00

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.392 / Virus Database: 270.13.45/2286 - Release Date: 08/06/09

18:17:00

[Guest guest]

Well Lois...I started getting around within a week or so, but extremely limited

getting around. It was probably 2 months before I began really appearing like I

was doing things normal. I was very cautious because I didn't want to screw it

up. My first stimulator I got ahead of myself and the incision never closed up

leading to infection which then lead to having it removed....

It takes time because u want the tissue to scar around the battery n leads...if

u don't then they have to go in and fix it and u start all over again and that

really sucks.

I have found that the longer the stimulator is in the better it works or more

efficient it has become....

Deanna

Sent from my iPhone

On Aug 25, 2009, at 9:19 PM, Lois Churchill <mickyk13@...> wrote:

, I will be anxious to hear all about your trial. My date is Sept. 14th

I did appreciate it so much when Sue C wrote me quite some time ago

when I asked for information. One of my questions would be is if you

do have the permanent transplant, about how many days after that are

you getting around fairly well? Now I know everyone is different and

has different problems but I wish that more people could respond to

that question. I have neuropathy in my feet and failled back surgery

from ten years ago.

My son's brother in law that is 81 is on his trial now and doing very

well to give someone else some information that might relieve them.

I would like to write more but will wait to see if there are any responses.

Thank you in advance. Lois

[Guest guest]

Hi Lois,

I'm having a permanent Eon mini fitted. It has 16 electrodes. My secialist opted

for permanent mainly due to the amount of back operations I've already had.

I've had 2 lamenectomies and 3 fusions. All from S1 up to L3.

From what I've been told. You do have to take the first 6 - 8 weeks pretty

careful. No heavy lefting over 2kg's which is also about 3lb I think.

No excessive stretching or bending. This is because they need to get the leads

to " fuse " into the scar tissue to keep them in place. I suppose if you could

imagine a piece of string tied into say L2 on your spine and it travels all the

way down to just below your hip. You can't do anything that would make that

piece of string move. I hope that makes sense.

I've just had the hospital ring me where I'm having the procedure done. I don't

know about the trial part of it. I can only tell you what I've been told for the

permanent part. No showering for the first 3 days. Just sponge baths. I'll have

an antibiotic drip for the first 48 hours, then go onto tablet form. Either that

afternoon or the next morning they will " activate " the implant. The we alter it

from there.

I think it would be a matter of just making sure you take really good care of

yourself. Have someone near you that can help with alot of the household chores.

You will have some post operative pain. I think that's to be expected. Any form

of operation is invasive. I'm not sure if you'll be having general anasthesia or

not, but that takes awhile to clear from your system as well.

Just remember if you have to bend, lift or stretch for anything - then don't do

it. Make sure you talk to your doctor and see what he thinks you shouldn't be

doing.

I hope that helps Lois. I will be taking my laptop to hospital with me, I get

very easily bored and have to keep my mind busy. I usually keep working while

I'm in there!! So I'll be able to keep in touch and I hope that I can help you

with anything else you want to know.

But I would say that the longer members of the group would possibly be able to

give you more advice on this procedure. I'm just hoping that this will be the

last back op I ever have to have.

Warm Cheers

[Guest guest]

go to the forum of brenda.she has much experience with ms.might be able to help you

http://ldn.proboards.com/index.cgi