Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 my neuro took me off lsn and bee stings i have gotten severely worse ldn was not helping put me on cytosin imuran prednisone iv solmedrol 1 1000 dose and reg symprom meds and rebif i am sorry i have swithched i never quit smoking but did change my diet and took all supplements and vit suggested i have severe intense burning back down numbness stiffness and weakness losing my walking and now effecting arms and hans with same pattern more scary the burning and numbness is in my face jaws insice mouth palate, throat tongue and base of tongue all over body no conventional meds are working was supposed to get plasamapheresis instead og all this junk but insuracence said not proven for ms, like ldn and refused and i ended up on all this stuff plus rebif which is not even for spms i a deteriorating rapidly could wald slowly 15 min 2 week ago now down to 2 min no exaggeration i have treid patch and evrything to quit but my nerves aae giving out and thst is what i reach for and i know it prog symptoms 14% dudley and all before mont out i fear i will be in a wheelchhir they have pulld all the big guns out and my response to ldn was only good two years ago,but lost two remsisons thendue to brnchitis and never recovered wha t do you suggest i do i fear if i get of these meds now i will slide dwonhill even faster i go to a naturopath md who is trying to work with these meds with vit therapy, hyper.cha,mber and celation but nothing workd even gone to churchs all over for laying on of hand thought god might give me a miracle this has been going on now for over2 1/2 years i nevr get better nor does if even slow done has anyone ever beem in this predictment ot this bas and recovrecd please write me and pray deb copeland Quote Link to comment Share on other sites More sharing options...
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