Guest guest Posted May 5, 2010 Report Share Posted May 5, 2010 Well, I have been on LDN for 3 months alomost now, and I have to say I love it...it has given me some of my life back...I have energy..the crohns symptoms have been reduced by 50% BUT...now I have additional problems. UTI so bad that the doc., was going to put me in the hospital......we finally got rid of it, after I had to go on pain pills and antibiotics and was off LDN due to a surgery.....but now that I am back on it, for 3 months the UTI is coming back and full force. I also am getting terrible leg cramps, not like charlie horses, but almost like sharp pains, I dont know if those are from the LDN or the Tomoxifen,, which also states can give leg cramps, they are so severe that 2 nights ago, I fell busted both knees, hit my head and almost fractured my elbow LOLOLOL NOT A PRETTY SITE me laying face down on the concrete front porch LOLOL At any rate, I need some guidance here, I DO NOT want to go off LDN it has given me energy and I am much better with it, then without it. Also my urine SMELLS! I suppose from the UTI??? THANKS FOR ANY INFO! I go back to the doctor in the AM, I need to tell him what to prescribe. He listens to me, gives me what I want, he know I am researching my own health these days and we work TOGETHER@ so please I need all f you for some advice! gretchen I also take tamoxifen LDN Synthroid prevacid vit d 50,000 units Quote Link to comment Share on other sites More sharing options...
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