progress report after a weekend of LDN (ME/CFS person)

[Guest guest]

Fiona,My partner takes LDN for PLS. He suffers from muscle pain, weakness, and stiffness. He started LDN two weeks ago and as soon as he started taking it his symptoms were a little worse at certain times but a little better at certain times. Like you, he believes this is a sign the LDN is working and is very encouraged at his progress so far. He is already starting to walk a little better. He has to spend 1-2 hours every morning doing stretching exercises and he feels the stretches, as helpful as they were before the LDN, are helping now more than ever. I've seen similar posts by people taking LDN. I hope you continue to improve!

[Guest guest]

Maybe someone else on this list is familiar with your condition and can give you a better idea of what to expect. Since PLS is a neurological disease, the LDN may effect Dale in different ways and at different levels than you. Unless you experience problems, I would suggest you keep up with the LDN. Depending on your current dosage you also could increase it, although the recommended max seems to be 4.5mg.

On Mon, Mar 29, 2010 at 10:40, Fiona <f.hodgkiss@...> wrote:

> My partner takes LDN for PLS. He suffers from muscle pain, weakness, and stiffness. He started LDN two weeks ago and as soon as he started taking it his symptoms were a little worse at certain times but a little better at certain times. Like you, he believes this is a sign the LDN is working and is very encouraged at his progress so far. He is already starting to walk a little better. He has to spend 1-2 hours every morning doing stretching exercises and he feels the stretches, as helpful as they were before the LDN, are helping now more than ever. I've seen similar posts by people taking LDN. I hope you continue to improve!

>

Granted PLS is a rare condition and it isn't what I have, but there may be some similarities. In that I have needed to do a lot of stretches, but don't feel any overall progress. After all it's not normal to need to stretch like an athlete, just to do short walks etc. So I certainly relate to the need to do muscle stretches and would want the stretches to feel more effective and progress. My husband does get concerned about my moblity and would like to see it improve.

Fiona