When should I start to worry? Please help

March 2, 2010

Hi everybody,

I've been on LDN since August of last year for MS. I've been doing great on it

so far, until very recently. Last night however I had a pretty scary episode

(for me anyways). I woke up out of a dead sleep and my heart was racing (can't

remember if I was having a dream or not) and I noticed immediately that my legs

were killing me, and my entire body was warm and tingly from my face, back,

legs, arms, toes, fingers, everywhere. I was laying on my stomach at the time

and after the inital panic subsided I decided to lay on my side and see what

happens. After a few minutes the pain in my legs went away but I was still warm

and tingly all over for a while. After I started to calm down some more and my

heart was no longer racing the rest of my body started to go back to normal as

well. But when I was laying there worrying about what just happened and my

heart rate would go up again the warm and tinglys would return. It would

continue to come and go for maybe 30 min until I fell back to sleep. I remember

this happening only one other time in the middle of the night pre LDN. So

naturally this led me to believe the worst. Also, today now that I am awake my

arms are still somewhat tingly as well as my feet. Although I have to say that

I am still pretty shaken from last night. Anyways, I posted earlier this week

about some other things that have been going on for me where I explained about

the recent stress I've been under lately as well as a virus I was fighting that

has pretty much since then gone away. I also missed a day of taking my meds one

day last week. Only other thing that I can think of that I've been taking that

is different is those probiotic (Activia) yogurts as well as some pills that are

supposed to be all natural. Here are the ingredients: witch hazel leaf, horse

chesnut leaf, ginger root, blond psyllium,, hesperidin, and diosim. Could any

of this be responsible? Could the fact the my heart was racing triggered a

reaction like that? I am definitely starting to worry that it is no longer

working or is it just maybe a " glich " or one of those things that can happen

when I have all this other stuff going on? When should I start to worry and go

back and see my neuro to find out if I am progressing? One other thing, a few

weeks back, I read Sammy Jo's story about how LDN stopped working for her after

four years and to be honest it scared me to find that out. Seems like ever

since then I've been going slowly downhill. I worried so much that the same was

bound to happen to me. Could it be psychological? Until I read that, I seemed

to be doing great. Sorry for taking up all this time explaining, but any

advice, input, similar stories, or suggestions would be greatly appreciated.

Thanks in advance and God bless!

Mia

Recommended Posts