Catastrophic antiphospholipid syndrome (CAPS).

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Dear forum members,

My dad was thought to have a form of vasculitis that's called Wegener's

Granulomatosis, but now since he didn't have high ANCA values, but some other

antibodies, they think now that it's this CAPS disease, which actually looks

much worse in that even half people treated with the best therapy possible die

of it. Any people out there with it?

The doctors are performing this treatment of plasma exchange at the moment, ant

it seems that he's responding well to the treatment. Apparently they're planning

on having him on cortisone and cytoxan to make sure the disease goes into

remission.

It would be unreasonable to take him off these medications completely before

starting with LDN therapy, but it seems that these medications are not

compatible with LDN, so I understand (please correct me if I'm wrong) that he

shouldn't be taking these and LDN simultaneously. But would it be possible to

reduce cortisone and cytoxan over time, and at the same time introduce and

increase LDN doses? What would be the right way of doing this?

Any ideas on this will be helpful.

Thanks for your input.

Kind regards,

Carral.