Re: Does anyone get well?

[Guest guest]

Hi,

Your question is sure a good one....

Yes, there are people who reclaim their lives. It seems to take lots of hard

work, determination, and a blend of different modalities to get better...but

I am no expert. My son, age 16, is currently on I.V. Rocephin and flagyl

every day. Orals just didn't seem to be working, and I do believe that in his

case, I.V. was necessary to turn him around. He'd been infected in 1998 and

not diagnosed until early this year -- by that time he had just about all of

the horrible symptoms, including seizures and hallucinations. It has been a

nightmare. He is doing much better, but still has some mighty bad days. He

was infected for a very long time before treatment started, like many others.

Everyone tells me that beating Lyme takes an incredible amount of patience

and fortitude. We have spent thousands and thousands of dollars on testing,

treatment and supplements. We will beat it if it doesn't beat us first!!!!

Just kidding...we really HAVE to keep fighting with everything we've got and

keep a positive attitude.

You will get better!

~Judie

[Guest guest]

My clinic puts in a site in my hand or arm once a week. She does not like

the idea of it any other way. Picline or portacath she feels take too big a

risk for infection. I know people that have had good results with the latter

2 so I guess it just depends on the doc. Either way you have good days and

bad. My biggest problem is I get too active and blow a vein. Then return to

the clinic and get another line. My activities are sitting at the computer

and my desk working on geneology books for my children for Christmas. I go

to the library and sometimes I try to carry too much in my arms. Yes it is

sad we have to have IV however IV is better than the alturnative huh. Lyme

brain here, still cannot remember how to spell, sorry. I wish you wellness

and am praying for you

Jeri in IN USA We can do it together!

_________________________________________________________________

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[Guest guest]

Hi and welcome!

Most people with " advanced " lyme disease (like me) seem to hope mainly for

remission of symptoms and not necessarily a " cure " because that is hard to

define in practice. Are you " cured " if you have no symptoms for a month? Or

a year? Two years? Dunno.

It seems this bacteria can really hide and mutate and dodge antibiotics and

our immune system really well. You're not sure when you contracted Lyme so

it is hard to say how long you've had it. The ideal situation is to have the

bite, the rash, and then immediately get massive antibiotics to kill the

bacteria before it gets into all the nooks and crannies to hide. Most people

don't fit into this ideal unfortunately.

But, in answer to your question, people DO get well. Being well is not

necessarily the same as having no spirochetes in your body however. I think

we will always have to be more aware of what our bodies are telling us to

head off a relapse in the future if we do get well (aka asymptomatic).

I'm very glad to hear that someone has money and a good support network!

Most people don't and it's just so disheartening. I hope you find this group

supportive and informative. I do.

Jen

----- Original Message -----

From: " leanasims " <wayward@...>

I probably got Lyme last winter, but didn't get diagnosed (oops, I

diagnosed myself, of course) until August. I have Kaiser insurance,

and here in Northern California they still deny the existence of Lyme

disease. I'm amazed to read so many stories from all of you, and

completely baffled about why this disease is so political.

I'm into my third month of antibiotics, Biaxin, Flagyl and Perquinel

after three horrigying months of doxycycline and I'm suffering

mightily. What I want to know is, does anyone recover? Thanks to Dr.

D in Petaluma, California I got treatment right away but

I'm still fairly advanced, having 33 of Dr. Burrascano's symptoms at

the beginning.

Also, can anyone tell me about the IV process? Is it very painful?

Maybe I don't want to know. I think the current wisdom among LLMDs is

that you can't fix advanced Lyme without it, does anyone feel

otherwise?

I'm so happy to find you all, fellow sufferers. Somehow it helps to

know I'm not so alone. So many of your stories are the same as mine.

Fortunately I have a very loving and supportive husband and enough

money for treatment.....

[Guest guest]

People with Lyme do get well, but in my experience, it has to include the

best of three worlds - a balance between medicine, nutrition, and

spirituality. While you are undergoing the prescribed aggressive treatment

by your Lyme doctor, you must adjust your diet accordingly, and eliminate

such foods as white flour, yeast, artificial color and sweeteners and of

course sugar. Make sure you get outside every day because that will help you

avoid depression, and exercise and stretch if you are able to a little every

day.

Do something nice for yourself every day also, i.e., a hot bath, candles,

quiet time, meditation and of course if you are having a good day, there is

always shopping.

I had Lyme from 1989-1995 as did my children, and we ran around in circles

with the medical profession, not really getting well long enough to get back

to a normal and happy life, and then I as introduced to Sunrider Herbal

Foods, which gave me and my family back our lives, as we finally had energy,

brain clarity and stamina for daily living, including returning to school and

work. If you would like to learn more about this, feel free to e-mail me

personally.

Sue Rauch

Sue Rauch

[Guest guest]

I am back online and this is the 1st e-mail I saw.

The answer is YES!!!!!

I am living proof. I am a 45yr old mom of 6, ALL have lyme, and I was so sick

with lyme that I was paralyzed from the neck down in May 1999. I had EVERY

symptom of lyme and thought I was going to die. (even had the suicidal...).

My husband has been very sick also, severe tachycardia.

I have tried many, many modalities and have been writing to over 7,000 people

since 1998 as to what works and what doesn't. I have been a HUGE lyme

advocate, attending conferences, political rallies, etc. at my cost to fight

for the cause of lyme.

This has lead me to a career as a Health Practioner in which I specialize in

Iridology, which is assessing one's health, genetic make-up, toxicities and

accumulations in the colored part of the eye. Every organ, tissue and nerve

is connected via the eye and is represented. What this means is a medical dr.

cannot tell you what is going on in your liver, say, but I can. It is an

incredible tool to help people with their health.

I am also finishing my degree as a Naturopathic Dr. (Dr. of Natural Medicine)

and am a nutritionist.

I am not soliciting for business, what I AM doing is giving my background

because I have the PASSION to help others, $ is not my motivation. I have

been to hell and back with lyme and KNOW how to help others.

I encourage anyone to write me and ask whatever ?s you would like; it is

free.

Please write me @ suemassie45@... so I can personally answer it. This

e-mail address is always full.

I only represent the TOP companies when it comes to supplements/vitamins/etc.

and the cost is no more than your health food stores but MUCH better quality.

I give the information and then I expect the individual to do the research

and make up THEIR mind~~ after all, GOOD HEALTH IS YOUR CHOICE!!!

sue massie

sue in nj

[Guest guest]

Sue, re: Sunrider, I thought there weren't going to be any more

personal advertisements on this list anymore? I thought Robynn had

taken care of that?

[Guest guest]

Sue Rauch: your story is so hopeful...I think that staying away from sugars

and carbs must be helpful...I am trying hard to do this. I love veggies so

this is not a problem but my gut isn't being too kind.

Hugs,

Donna

[Guest guest]

Donna-

I was sent a private e-mail from a small group asking for us to pray for you.

PLEASE CONTACT ME!!! I can help you.

sue in nj

sue massie

I will send my home # if you would like, or I will call you.

[Guest guest]

Donna,

I know what you mean about the veggies. We can't eat that many veggies

without getting gassy and bloated. That's why I do Nuplus, which is a highly

digestible formula (powder) , which is highly concentrated veggies/food based

herbs, which nourish the body. One scoop is like eating a room full of the

best fruits and veggies on this planet, which are picked in the best parts of

the world. This and some other wonderful products is what gave me and my

family back our health. We nourished-balanced and cleansed our way back to a

normal life. I couldn't recommend it more, and will eat these foods for the

rest of my life, as millions of others are doing all over the world. These

are really the top of the line products and the only thing that worked for us.

Sue Rauch