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That would be very interesting to see ajsako! If anyone contacts you via

e-mail with some sites, please forward them on to me. I would love to see

an unbiased rundown on the risks and benefits as well.

Thanks, Camille

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Me too!

Re: help?

>From: " toroblee " <toroblee@...>

>

>That would be very interesting to see ajsako! If anyone contacts you via

>e-mail with some sites, please forward them on to me. I would love to see

>an unbiased rundown on the risks and benefits as well.

>

>Thanks, Camille

>

>

>------------------------------------------------------------------------

>

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  • 5 months later...
Guest guest

what little I know about this scoring I do know its a way the doctors

rate your cirrhosis. Each stage means different things to them. 4 is

the worst and seems to be where people get referred from transplant

options. Again, I dont have a for sure answer to this question but this

is what I know or remember.

jody

--- Leona Singleton <lona@...> wrote:

> From: Leona Singleton <lona@...>

>

> can someonf please tell me what this means, I typed

> it here last week but no

> one responded, i am not seeing my old

> gastroenterologist anymore as i found

> out a few things that had never been relayed to me

> nor my doc, (thats what ya

> get when ya dont keep old records) so i wanna know

> exactly how bad my liver

> is? i know some of you know what this jargon means

> as i have seen people

> talk about cirrosis before

> thanks a bunch guys

>

> there is chronic active hepatitis with cirrhosis.

> The scheuer score for

> portal/peripertal activity is grade 3 and for

> lobular activity is grade 2. The

> fibrosis and cirrosis score is 4.

>

>

> Lots of hugs and kisses to all

> Regards

> Leona Singleton

>

>

> ---------------------------

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  • 7 months later...
Guest guest

Cravens wrote:

>

> < So the help I need is this: If anyone knows of a Spinal/Ortho/Neuro

> doctor that is familiar with Achon spines and is in the Houston, Dallas, or

> San Area that I could get a second opinion from, would you plwase

> send me their names so I could contact them. I really appreciate this, and

> thank you for taking the time to read this letter.>

it's been a few years since i spoke with her, but you might try Dr. Regina

Kirkland at Baylor School of Medicine. also, 20/20 had a segment a few

months ago about an orthopedic surgeon who is a dwarf and specializes in

" our " field. you should be able to contact the show via the web to find out

how to contact him.

good luck,

luthien

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  • 3 weeks later...
Guest guest

kenliebl@...,

You didnt sign your name!!

You have joined a very resourceful group! If you can let us know where

you are, how old is your son, which meds and how much your son is taking,

perhaps we can make some suggestion to you.

First of all, your son should be involved in cognitive behavioural

therapy (CBT). To explain it very simply: it involves making a list of

anxiety provoking situations and rating them on the amount of anxiety they

cause him. He should be working on exposing himself to the things that cause

him anxiety. This is done daily, which should decrease or stop the behaviour

over time. This is called Exposure and Response Prevention. Talk therapy

does not work for ocd.

OCD effects the whole family. There are lots of books which might help you

feel that you can change the way things are at home. One is " OCD, New Help

for the Family " by Herb Gravitz. Its short, about 200 pages, and explains

how OCD can effect a family.

I'm going to tell you what I tell everyone else: you must take care of

yourself. If you are worn out and ready to collapse, you wont be much use to

your child, or the rest of your family. Try and make time for yourself to do

things which give you pleasure (like taking a walk, reading a book, working

in the garden, sitting in the sun, meeting a friend for coffee, or taking a

nap!) This is so important.

take care, wendy in canada wb4@...

-=-=-=-=-=-=-=-==-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-

>My son has ocd. I need help, I am taking him to a Doctor for almost

>a year now and I do not think he is helping my son, He seems to be

>getting worse. The medication he is taking is not helping him, the

>dose has been increased but I see no improvement. I relize that

>there is alot more you can do for children then just give medication

>and talk 1 time a month? I need to get a doctor in my area that can

>help my son and my family, we are all suffering from this. Pleae

>someone help me>

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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Guest guest

Hi,

Where do you live? We have members in the U.S., Canada, and Australia. Perhaps they will be able to make suggestions based on your wherabouts.

Take care.

Louis

harkins@...

Help?

My son has ocd. I need help, I am taking him to a Doctor for almost a year now and I do not think he is helping my son, He seems to be getting worse. The medication he is taking is not helping him, the dose has been increased but I see no improvement. I relize that there is alot more you can do for children then just give medication and talk 1 time a month? I need to get a doctor in my area that can help my son and my family, we are all suffering from this. Pleae someone help me>

You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name.The Archives and Links List for the OCD andParenting List may be accessed by going to/ . Enter your email address and password. Click on the highlighted list name and then click on message archives by month or links located in the toolbar.

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Guest guest

|My son has ocd. I need help, I am taking him to a Doctor for almost

|a year now and I do not think he is helping my son, He seems to be

|getting worse. The medication he is taking is not helping him, the

|dose has been increased but I see no improvement. I relize that

|there is alot more you can do for children then just give medication

|and talk 1 time a month? I need to get a doctor in my area that can

|help my son and my family, we are all suffering from this. Pleae

|someone help me>

------------------------------------

There are several places to liik toi find adequate treatment resources

for OCD. In addition to the Links below, it would be helpful for you

to tell us where you live. Our membership is very widespread and

knowledgeable about OCD treatment resources.

Dr. Jim Hatton has an article about Choosing a Therapist at :

www.angelfire.com/il/TeenOCD click on " Dr. Hat's Page " and look for

the link to the article.

www.ocfoundation.org

Check the Resources link and if needed write and ask them for " The

Treatment Providers List " which is available upon request.

www.adaa.org

" Search for Professionals....by zip code " feature

www.feelinggood.com

go to " links " and then the section called " Referrals for Treatment " --

included is the Association for the Advancement of Behavior Therapy

(AABT) directory listed by state.

jim in san diego

jjmcf@...

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Guest guest

Dear Jim,

Thanks for the links. We just visited a psychologist recommended by our

son's " non-insurance covered " psychiatrist. None of us, my husband OCD son,

nor I felt that this man would be a good match. He was agressive and barely

gave any of us a word in edge wise. It is very frustrating for us. We would

love to stay with our present psych, but the cost is prohibitive. We have to

keep searching, but in the meanwhile our son goes untreated except for the

meds that the psych has prescribed (He is reluctant to start therapy as he is

hoping we will find someone who is covered under our insurance. He's a good

guy to be worried about our wallets)

Elaine(who is in the trenches too)

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Guest guest

Jim, I live in South Plainfield, New Jersey, If you can help me, I would be

grateful.

Thank you for the links I will research them.

Pat

----------

> From: Jim <jjmcf@...>

> egroups

> Subject: Re: Help?

> Date: Monday, April 03, 2000 11:50 PM

>

>

>

> |My son has ocd. I need help, I am taking him to a Doctor for almost

> |a year now and I do not think he is helping my son, He seems to be

> |getting worse. The medication he is taking is not helping him, the

> |dose has been increased but I see no improvement. I relize that

> |there is alot more you can do for children then just give medication

> |and talk 1 time a month? I need to get a doctor in my area that can

> |help my son and my family, we are all suffering from this. Pleae

> |someone help me>

> ------------------------------------

>

> There are several places to liik toi find adequate treatment resources

> for OCD. In addition to the Links below, it would be helpful for you

> to tell us where you live. Our membership is very widespread and

> knowledgeable about OCD treatment resources.

>

> Dr. Jim Hatton has an article about Choosing a Therapist at :

> www.angelfire.com/il/TeenOCD click on " Dr. Hat's Page " and look for

> the link to the article.

>

>

> www.ocfoundation.org

> Check the Resources link and if needed write and ask them for " The

> Treatment Providers List " which is available upon request.

>

> www.adaa.org

> " Search for Professionals....by zip code " feature

>

> www.feelinggood.com

> go to " links " and then the section called " Referrals for Treatment " --

> included is the Association for the Advancement of Behavior Therapy

> (AABT) directory listed by state.

>

> jim in san diego

> jjmcf@...

>

>

>

> You may subscribe to the OCD-L by emailing

> listserv@... .

> In the body of your message write:

> subscribe OCD-L your name.

> The Archives and Links List for the OCD and

> Parenting List may be accessed by going to

> / .

> Enter your email address and password.

> Click on the highlighted list name and then click on message archives by

month or links located in the toolbar.

>

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Guest guest

Louis,

I live in South Plainfield New Jersey

Thank you

Pat

----------

From: Louis Harkins <harkins@...>

egroups

Subject: Re: Help?

Date: Monday, April 03, 2000 11:24 PM

Hi,

Where do you live? We have members in the U.S., Canada, and Australia.

Perhaps they will be able to make suggestions based on your wherabouts.

Take care.

Louis

harkins@...

Help?

My son has ocd. I need help, I am taking him to a Doctor for almost

a year now and I do not think he is helping my son, He seems to be

getting worse. The medication he is taking is not helping him, the

dose has been increased but I see no improvement. I relize that

there is alot more you can do for children then just give medication

and talk 1 time a month? I need to get a doctor in my area that can

help my son and my family, we are all suffering from this. Pleae

someone help me>

----------------------------------------------------------------------------

--

----------------------------------------------------------------------------

--

You may subscribe to the OCD-L by emailing

listserv@... .

In the body of your message write:

subscribe OCD-L your name.

The Archives and Links List for the OCD and

Parenting List may be accessed by going to

/ .

Enter your email address and password.

Click on the highlighted list name and then click on message archives by

month or links located in the toolbar.

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  • 1 year later...
Guest guest

Dinah,

Go to www., click on " my groups " , then click on " MGB_Postop " .

You should see a place for " delivery options " and should be able to change

it there. Hope it works!

Help?

> Hi, I'm suddenly receiving e-mail from the group postings, yet I am

> signed up for web only. Anyone have any advise on how to rectify

> this? It's very anoying to receive 50 to 100 e-mails at once!

> Dinah

>

>

>

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Guest guest

, Thanks but I've tried that. I'm listed as " no e-mails " but as

of yesterday I'm getting them by the tons. How do I notify the

moderator? Or do you think that would help?

Thanks!

Dinah

-- In @y..., " on " <jwmson1@b...> wrote:

> Dinah,

>

> Go to www., click on " my groups " , then click

on " MGB_Postop " .

> You should see a place for " delivery options " and should be able to

change

> it there. Hope it works!

>

>

>

> Help?

>

>

> > Hi, I'm suddenly receiving e-mail from the group postings, yet I

am

> > signed up for web only. Anyone have any advise on how to rectify

> > this? It's very anoying to receive 50 to 100 e-mails at once!

> > Dinah

> >

> >

> >

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Guest guest

Dr. R is the moderator and he as you may know is pretty hard to get in touch

with currently - sorry I don't have a better suggestion for you.

Help?

> >

> >

> > > Hi, I'm suddenly receiving e-mail from the group postings, yet I

> am

> > > signed up for web only. Anyone have any advise on how to rectify

> > > this? It's very anoying to receive 50 to 100 e-mails at once!

> > > Dinah

> > >

> > >

> > >

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  • 2 months later...

Hello!

A friend of mine and I are going through all sorts of red tape in trying to

start an official business making natural bath, body, pet, and so on care.

We wanted a license together --- with both of our names --- but they are

really putting the price up for that and making us double everything.

We have some land and a great building to start in but there are concerns

for high property taxes, insurance and hefty commercial business license

charges. Some are recommending that we choose one of our homes... get one

business license in that person's name only and go at it like that. Making

things in one home and delivering them out.

What I am desperate for is ANY help/advice/information on starting your own

business making the things we share on this list. ANYONE who is

running/operating a business (in home, out of home, in a commercial building

or whatever)... will you please consider emailing me at smile529@...

(unless the list wants the info, too) and give me some type of opinion since

you have already been through this process?

DOES anyone have ANY recommendations for links, email lists or anything that

relates to this? I really feel lost and don't know where to turn or what to

do here and my friend is just now starting in making hand made/natural items

such as we share here.

Thanks so much for taking the time to read this! Love, Sandy:)

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  • 5 months later...

Shaye you might try something along the line of " Please handle gently "

Or " Due to recent damages, please do not handle the glycerin soaps " or

" Parents, please do not allow your kids to handle the glycerin soaps "

I don't see a problem with it at all....you might include a little line

about maybe pulling the soaps from your booth if damages continue.

Sometime it only takes a single line or 2 to make folks get the message.

Terri

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HOw about YO!!!! STEP BACK AWAY FROM THE SOAP!!!!!!! hehe reminds me

of a cookie jar I saw in target yesterday.

Re: Help?

Shaye you might try something along the line of " Please handle gently "

Or " Due to recent damages, please do not handle the glycerin soaps " or

" Parents, please do not allow your kids to handle the glycerin soaps "

I don't see a problem with it at all....you might include a little line

about maybe pulling the soaps from your booth if damages continue.

Sometime it only takes a single line or 2 to make folks get the message.

Terri

Our Message Board

http://www.voy.com/21568/

Check out these great Molds!!

http://soapwerks.com/martinworld.htm

Member Kae's Site... Awesome oil Prices!

http://www.olivetreesoaps.com/

All posts to this list are copyrighted by post author. They may NOT be

forwarded, copied, or used in anyway without the permission of the post

author with the exception of answering posts to this list. Posts are

personal opinions only.

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Terri, I had this:

In order to continue to provide you with fun and creative soaps, I have to

ask that you NOT poke them with fingernails. I have had many ruined this

way.

Thanks for understanding!

But hubby thinks I should keep working on it. He says, thats not it . What

do you think?

Shaye

Re: Help?

Shaye you might try something along the line of " Please handle gently "

Or " Due to recent damages, please do not handle the glycerin soaps " or

" Parents, please do not allow your kids to handle the glycerin soaps "

I don't see a problem with it at all....you might include a little line

about maybe pulling the soaps from your booth if damages continue.

Sometime it only takes a single line or 2 to make folks get the message.

Terri

Our Message Board

http://www.voy.com/21568/

Check out these great Molds!!

http://soapwerks.com/martinworld.htm

Member Kae's Site... Awesome oil Prices!

http://www.olivetreesoaps.com/

All posts to this list are copyrighted by post author. They may NOT be

forwarded, copied, or used in anyway without the permission of the post

author with the exception of answering posts to this list. Posts are

personal opinions only.

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  • 4 weeks later...

Hi Everyone,

I am still learning about good places to buy supplies and good people with

whom to deal. Will anyone with information along these lines about 's

Soap's, Salts, & Fizzies please e-mail me privately? Thanks.

¸..·´¨¨)) -:¦:-

¸.·´ .·´¨¨))

((¸¸.·´ ..·´ -:¦:- Sage -:¦:-

-:¦:- ((¸¸.·´*

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  • 10 months later...

ETTEK --

Do you mean kind of a fluttering sound? I get this in my "good" ear all the time and wonder if it is anything. It sounds like a really fast pounding and only lasts a few seconds at a time. Hmmmmm.

Isley

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Hi Etteck,

First of all I think that you shouldn't have stopped the follow-up

visits. As my ENT explains this, it's a life long disease that has

to be watched 'forever'. I had a tympano-mastoidectomy CWD about a

year and a 1/2 ago and I go every 3 mos for a check up and cleaning

as little tumours seem to keep growing back. As for the vibration it

could be a re-occurence, so it's best to make an appt with your

doctor and get it looked at ASAP.

I seem to get that 'vibration' your talking about when I have a

lot of build up in my ear, maybe others in the group have different

experiences.

Take care & keep us informed!!

Kim

> Now I have this vibrating (for lack of a better discription)

> sensation deep within my laft ear. It's been going on for about

five

> days. Has anyone ever experienced anythink like this?

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This makes me mad. I was not given enough information. I was told to

come back for a second look surgery and didn't (got pregnant and was

scared of the general) but he never told me how ofetn it comes back

or that I would need to get monitored forever. It's been 6 1/2 years

and I assumed that I was fine since I am infection free (the reason i

had the surgery). I have even seen a different ENT (my incision got

infected years later) and he never mentioned another scan. Are all

DOctors different in how they treat this after the fact?

Amy

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  • 2 weeks later...

Warren:

I suggest that you make an appointment with an Epitologist. He

is an doctor espically trained in the field of all types of seizures. He is

more knowledgeable about epilepsy that a neurologist. An Epitologist

studies epilepsy only while a neurologist has the field of areas of the

brain.

Sounds like you need more extensive tests ran to find out exactely what

types of seizures you are having and that will give him better judgement how

to treat you.

The people in here are of great help to you. The owners and monitors are

always ready to answer questions, and you have to remember, we are all in

here for the same reason, we have seizures and epilepsy. That is the best

support you could ever ask for. Feel free to post anytime.

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Warren:

It sounds to me like you have at least 2 types of seizures. The nausea

could be an aura or it could be a simple partial seizure. The blanking out

sounds like an absence seizure or a complex partial. When you have a bunch

of them in an hour, that sounds like a " cluster " of whatever type of seizure

it is.

" Partial " means the seizure starts at a focus point in your brain (as

opposed to the whole brain at once).

" Simple " means that you do not lose consciousness or have any alteration in

your level of consciousness.

" Complex " means that there is an alteration (or loss) of consciousness.

" Generalized " means that the seizure comes from all over your brain.

" Partials " can generalize to affect more of your body.

In order to determine exactly what type you are experiencing, I would

suggest you consult your neurologist (or epileptologist--a neurologist who

specializes in epilepsy). The type of medication you are put on will depend

on what type of seizure you experience.

If you don't get an answer to a question from your doctor, keep asking. I

believe doctors should be there to serve us, and if they don't have the

answer then they should find it or send us to someone better qualified to

answer the question. Perhaps some more tests are required to determine the

cause and therefore help with the " cure " /treatment. I personally can't

stand the fact that doctors are happy with the diagnosis of " idiopathic

seizures " meaning " no known cause " . I want to know the CAUSE of the

siezures.

Good luck. (Sorry for the bit of a ramble)

>From: " Warren Simon " <wsimon@...>

>Date: Fri, 7 Feb 2003 09:11:02 +0200

>

>To the group

>

>I have heard a lot about the andrews reiter programbut have not really

>investigated it , can anyone shed light?

>

>I am a patient who has been relatively well controlled ( and I will expand

>on that further) according to my doctor. I am currently on Trileptal 600mg

>3 times daily, and Rivotril 1mg 3 times a day. I have been taking various

>vitamins and minerals including Taurine and B6 etc. This is only recently (

>the vitamins and minerals)

>

>My problem is I don't think I am that well controlled. I have no idea as to

>what well controlled means?

>

>I have the usual side effects, such as memory loss etc.

>

>The seizures i have are what I would call simple partial seizures( I

>think). I get a nausea feeling which rises from my stomach upwards. (

>anyone else?) is this a simple partial seizure?

>

>Sometimes I will get a 'blank out'. What I mean is that for an hour or so I

>will have blank outs- I won't lose consicousness at all but for say 30

>seconds or on and off so my ability to read or write , ' my comprehension'

>just goes out the window and i have to wait until it returns.

>

>That episode will last an hour or so 'on and off' and then i will be fine

>again.( what are these)

>

>I have the nausea attacks every day which vary in intensity .

>

>Occasionsly I have lost 'consiousness' , people have told me I just don't

>respond. This will last 2 minutes or so from what i am told. I have no

>memory of what happens or anything.

>

>This i assume is when a simple partial seizure develops intop a complex

>partial seizure. ( am i correct)

>

>The problem is that I am never sure when the nausea attacks will develop

>into this. It happens seldom but could just happen.

>

>I haven't had grand mal seizures since I was diagnosed which was when i was

>16 years old ( now 28)

>

>Basically like every other patient I would like to know what is my

>situation? Its not that I don't trust my doc but with the side effects and

>the fact that I am just 'sick of it' all what do i do?

>

>Have i got low blood sugar?

>

>Am i allergic to foods?

>

>could you shed some light onto the conditions above and if you feel there

>is anything that could be causing side effects ?

>

>also could you confirm if i am right in my symtoms?

>

> have tried some B vitamins and minerals and am not sure if they are

>working as I was reasonablly controlled on my medication. ( I think)

>

>Also tried Taurine with same results.

>

>anyone who has info and symptoms could you please repsond?

>

>basically

>

>HELP?

>

>

>Warren Simon ( South Africa)

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