Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 In a message dated 1/30/2006 4:59:03 P.M. Eastern Standard Time, shaye@... writes: Yep it he was at Bristol. Ohh we are getting along pretty good. Not too grumpy so far but today he treid to get up and do too much like get around or sit at my computer which IS downstairs and stuf like tht ~~~~~~~~~~~~~~~~~~~~~~ My sympathies, Shaye. My hubby blew out his knee several years ago and was home with his knee permanently bent for a little bit until he could return to work, using a wheelchair. After 6 weeks, they did surgery to rebuild it, and he was out of work and on rehab for what seemed like a year. It wasn't, of course, but it was a long time, and it was stressful, not to mention painful. It won't be easy, but the good part is that it won't last forever. :-) Best wishes to your family, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Thankyou Beth Shaye Re: Re: Help? In a message dated 1/30/2006 4:59:03 P.M. Eastern Standard Time, shaye@... writes: Yep it he was at Bristol. Ohh we are getting along pretty good. Not too grumpy so far but today he treid to get up and do too much like get around or sit at my computer which IS downstairs and stuf like tht ~~~~~~~~~~~~~~~~~~~~~~ My sympathies, Shaye. My hubby blew out his knee several years ago and was home with his knee permanently bent for a little bit until he could return to work, using a wheelchair. After 6 weeks, they did surgery to rebuild it, and he was out of work and on rehab for what seemed like a year. It wasn't, of course, but it was a long time, and it was stressful, not to mention painful. It won't be easy, but the good part is that it won't last forever. :-) Best wishes to your family, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 You must talk to your band doctor. you are right that reflux is very dangerous, with or without the Band. Bad reflux usually means your fill is too tightm and you need some removed. Just taking medication is not enough, as this does not stop the REASON for the reflux. If your band surgeon does not help, you must see a GI specialist. You seem to be losing very rapidly - which is NOT always good. With the band, we should be losing SLOWLY and SAFELY.Pleasae talk with your surgeon as soon as you can. Sandy R- -- In , claudia luna <claudialuna_2000@...> wrote: > > I had my band impanted in june 2005, after 5 months it > twisted so I had it re operated en March 18 2006, now > after 3 months I start having a very bad acid reflux, > I tried omeprazol, pepsid, mylanta, (cisaprida and > carnoprint-mexican medicine) and 4 days ago I'm taking > aciphex, but nothing works I already lost 50 pounds. I > am very upset because I do not want to take my band > out but I can't live with acid reflux I'm scare to go > to bed I raised my bed to sleep in a higher position > but is not helping too much, any suggestions? sorry > English is not my first language. > > Ten un dia maravilloso. > > > > __________________________________________________ > Correo > Espacio para todos tus mensajes, antivirus y antispam ¡gratis! > Regístrate ya - http://correo..mx/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 -- Hi, I don't know where you got your band. Was it Mexico or the US. If your Surgeon has been doing this for just a year or 2 he/she may not bexperienced enough to detect certain problems that occur years after banding. Sometimes they just don't have the knowledge or don't want to be bothered. If you are having problems and your doc won't help, go to Mexico. Doctors I'd suggest for a consultation would be Dr. Rumbaut, Ortiz or Dr. Kuri. Experience means alot with this surgery. This comes from my experience. I should have listened to my own device and gone back to Mexico rather than going to inexperienced local lap band surgeon, inexperienced gi doc etc. Nobody told me this, I had to learn it on my own. good luck, j - In , " Sandy " <MoonshadowRN@...> wrote: > > You must talk to your band doctor. you are right that reflux is very > dangerous, with or without the Band. Bad reflux usually means your > fill is too tightm and you need some removed. Just taking medication > is not enough, as this does not stop the REASON for the reflux. > If your band surgeon does not help, you must see a GI specialist. > You seem to be losing very rapidly - which is NOT always good. With > the band, we should be losing SLOWLY and SAFELY.Pleasae talk with > your surgeon as soon as you can. > Sandy R- > > > -- In , claudia luna > <claudialuna_2000@> wrote: > > > > I had my band impanted in june 2005, after 5 months it > > twisted so I had it re operated en March 18 2006, now > > after 3 months I start having a very bad acid reflux, > > I tried omeprazol, pepsid, mylanta, (cisaprida and > > carnoprint-mexican medicine) and 4 days ago I'm taking > > aciphex, but nothing works I already lost 50 pounds. I > > am very upset because I do not want to take my band > > out but I can't live with acid reflux I'm scare to go > > to bed I raised my bed to sleep in a higher position > > but is not helping too much, any suggestions? sorry > > English is not my first language. > > > > Ten un dia maravilloso. > > > > > > > > __________________________________________________ > > Correo > > Espacio para todos tus mensajes, antivirus y antispam ¡gratis! > > Regístrate ya - http://correo..mx/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 I got my band in Mexico with Dr. Huacuz. I already talked to him and did't help me too much he gave a prescription that didn't work, so I went to my primary care doctor two weeks ago and she prescribed me Aciphex and that helped me a little bit. Today I went back to my doctor and she changed my prescription to Nexium, I had a blood test my doctor says that maybe it is a bacteria, so I hope the new medicine helps. I don't have any other option because I don'n have any fill, my band is empty. If the medicine and the blood test don't work I may have my band removed. I'm scare and very sad. Ten un dia maravilloso. ___________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 , Are you in the US or in Mexico? If you're having this much trouble, you need to see go Dr. Huacuz for a full exam and fluoro to be sure the band is in the right position. all the reflux could be becuase it is NOT in the right position. Did you have any reflux before the band was put in? Do you have a hiatal hernia (many obese people do)? You must find out WHY you are having all this reflux, not just try to treat it with medications, that are not working anyway. Please see Dr Huacuz as soon as you can. I'm afrid there is not much more we can suggest to you. Please let us know what he thinks and how you are. Sandy R > > I got my band in Mexico with Dr. Huacuz. I already > talked to him and did't help me too much he gave a > prescription that didn't work, so I went to my primary > care doctor two weeks ago and she prescribed me > Aciphex and that helped me a little bit. Today I went > back to my doctor and she changed my prescription to > Nexium, I had a blood test my doctor says that maybe > it is a bacteria, so I hope the new medicine helps. I > don't have any other option because I don'n have any > fill, my band is empty. If the medicine and the blood > test don't work I may have my band removed. I'm scare > and very sad. > > Ten un dia maravilloso. > > > > > > > > ___________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 - If I may add to Sandy's advice. Do not go to any GI speacialist unless they have a couple of patient's in their practice that have a band. If they do not, they will order alot of tests, ugi, endoscopy, etc, etc. One, they may not be needed and two, if they don't have experience with a band, can do damage to itand if may not give you a the proper dx.. Make sure it's a referral from a band surgeon or go to a lap band doc, who has been doing this for a couple fo years for a second dx. -- In , " Sandy " <MoonshadowRN@...> wrote: > > You must talk to your band doctor. you are right that reflux is very > dangerous, with or without the Band. Bad reflux usually means your > fill is too tightm and you need some removed. Just taking medication > is not enough, as this does not stop the REASON for the reflux. > If your band surgeon does not help, you must see a GI specialist. > You seem to be losing very rapidly - which is NOT always good. With > the band, we should be losing SLOWLY and SAFELY.Pleasae talk with > your surgeon as soon as you can. > Sandy R- > > > -- In , claudia luna > <claudialuna_2000@> wrote: > > > > I had my band impanted in june 2005, after 5 months it > > twisted so I had it re operated en March 18 2006, now > > after 3 months I start having a very bad acid reflux, > > I tried omeprazol, pepsid, mylanta, (cisaprida and > > carnoprint-mexican medicine) and 4 days ago I'm taking > > aciphex, but nothing works I already lost 50 pounds. I > > am very upset because I do not want to take my band > > out but I can't live with acid reflux I'm scare to go > > to bed I raised my bed to sleep in a higher position > > but is not helping too much, any suggestions? sorry > > English is not my first language. > > > > Ten un dia maravilloso. > > > > > > > > __________________________________________________ > > Correo > > Espacio para todos tus mensajes, antivirus y antispam ¡gratis! > > Regístrate ya - http://correo..mx/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Joanne, thanks for this addition. I certainly agree. Even GI docs do not always know what they need to know about the band. Thankfully, this is slowly changing, as the Band becomes more widely used, but it will be a LONG time before all docs even know the basics. This is absurd, but a fact of band life that we must accept, and protect ourselves from. Sandy R > > > > > > I had my band impanted in june 2005, after 5 months it > > > twisted so I had it re operated en March 18 2006, now > > > after 3 months I start having a very bad acid reflux, > > > I tried omeprazol, pepsid, mylanta, (cisaprida and > > > carnoprint-mexican medicine) and 4 days ago I'm taking > > > aciphex, but nothing works I already lost 50 pounds. I > > > am very upset because I do not want to take my band > > > out but I can't live with acid reflux I'm scare to go > > > to bed I raised my bed to sleep in a higher position > > > but is not helping too much, any suggestions? sorry > > > English is not my first language. > > > > > > Ten un dia maravilloso. > > > > > > > > > > > > __________________________________________________ > > > Correo > > > Espacio para todos tus mensajes, antivirus y antispam ¡gratis! > > > Regístrate ya - http://correo..mx/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Hello I'm and I had my band removed yesterday by doctor Huacuz, I decided to take it off because I was tired of woke up vomiting all nigths for about a month. I didnt'n want to try any other medicines I was in pain and living a very bad life. Right now I am in pain for the surgery but I know soon I will be better. I'm a little sad but I am very sure the pounds won't be gained again I decided to start diets and exercising. I lost 60 pounds so I have more energy to do it. Doctor Huacuz said my body rejected the band I trust him. Ten un dia maravilloso. ___________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Becuase of the DS, he cannot have IVG or any transplants. Steph, I am confused by this comment. I have a son that was treated for cancer and meet several DS children who had developed leukemia. They ALL recieved IVIG during and after treatment. In addtion, two had bone marrow transplants. I do know that different states have different policies on children with DS recieving donated solid organs. But IVIG is not contraindicted in a child with Down Syndrome, however, one of his other underlying medical conditions may in fact be incompatible with the volume IVIG requires. However, on that note, SubQ would certainly be an option to reduce systemic volume overload. Just out of curiosity who told you that DS children can not have IVIG? Just wondering. I will pray for your baby. In my thoughts and prayers, _www.caringbridge.com/ny/my2angels_ (http://www.caringbridge.com/ny/my2angels) ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Also, do any of you work at home? We are getting SSI, but it just isn't cutting it. And, if he is in the hospital for more than 30 days, it is taken away. I am a single Mom, so it is all up to me. Opps, Steph, didn't see this part! LOL Once he is in the hospital for 30 days, even if it is only once, he qualifies for a medical based waiver. Since he also has a developmental delay he will qualify for the waiver for children with DD/MR. Every state has some version of this waiver. Some states call it TEFRA, others the Beckett Fund, and in NY it is the Care at Home waiver. I will do a quick search of IL and see what their program is called. I would also call the ARC and see if they have a program called Medicaid Case Management and ask to be put on their caseload. They will help you file all the correct paperwork and help you find any additional services you may be entitled. I'll let you know what I find. :-) Mommy to: Annette 17yo, selective antibody deficiency, cp, devlopmental delays, g-tube, hiv+, IVIG x 5 years, Sub Q IG x 1 yr now and LOVING it. Every bit a teenager (both for the good and the bad ) LOL. 11yo (almost 12), previous B and T cell deficiencies, IVIG x 1 year then on daily prophylaxis. He is now on IVIG high dose for his seizure disorder and doing FANTASTIC on it! We're getting our port this month. Brain tumor survivor, hearing impaired, seizure disorder, learning disabled, and one heck of a " WWE wrestler " ! Trayvon 8yo, Ivemark Syndrome, severe congenital heart defects, asplenia, malrotated intestines, microcephalic, migraines, severe reflux and an imagination I can't keep up with for one minute! Marriela 5yo, Micro premie (26 weeker, 1 lb, 12oz), NICU x 4 months, severe asthma, devlopmental delays, mild cp, reflux, and gives us a serious run for our money every single day! and last but not least, Cody 2y, Neurogenic bladder and bowel, speech delay. God has a serious sense of humor now doesn't he! LOLOLOLOL _www.caringbridge.com/ny/my2angels_ (http://www.caringbridge.com/ny/my2angels) ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Hi, I'm fairly new to the forum but just wanted to encourage you to keep working as you are to sort your own health out. I, like you take citalapram and at the moment thats ok, it helps me with day to day stuff. I spoke to Dr P about it and he said its find to continue taking it. I think a lot of us will identify with you. That depression was our first diagnosis and the levothyroxine either worked at first or didn't sort the symptoms out. From what I have read on here it seems psychiatrists are more open to T3 and prescribing it. Lets hope this is the way forward for you. I have this week decided I can't expect anything more from my GP, again he won't test free T3, well in his words 'its a very rare problem not to convert from T4' ( what if I have that rare problem? how does he know without testing) and its an expensive test. So on Tuesday I changed from 175mgs to Armour (half a tablet) I'm taking it very slowly as advised by Sheila . I've noticed changes already, my tongue is no longer swollen and my blocked ears are clearing. And I'm dreaming, something I haven't done for years, amazing. So far my energy is the same but no worse either and my temperature has come up a little. I have had no adverse side effects infact my irregular pulse is regular and much stronger. Hang in there and know you have support on the forum. Judy > j... but nearly two years later I am still at square one. My physical symptoms continue.. (severe fatigue.. hair loss.. crazy menstrual cycles etc) and I am going to my local hospital for clinical psychiatry sessions but I know my mental state is to do with hypotyroidism. I'm convinced I need T3 but my doctor says they don't test for it???? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Hello - and welcome to our forum where I hope you get the support you so obviously need. Most of us here appreciate how you are feeling and know what it's like to be at your " wits end " . How long since you were diagnosed and what dose of levothyroxine were you started on and how often has this been increased. When was your last dosage increase and can you post your last thyroid function test results here, together with the reference range for each of the tests done. Were you tested to see if you have antibodies to your thyroid? As your local laboratory doesn't test for Free t3, you can get this tested privately through Genova Diagnostics www.gdx.uk.net . Ask the nurse at your surgery if she will draw your blood for this, and if not, you can get it drawn at a private hospital for a small fee. Because you have been ill for so long, ask your GP to give you blood tests for B12, Vitamin D3, Ferritin (stored iron), Zinc, Copper and Magnesium. If any of these are low, your thyroid hormone replacement will not be able to properly utilized, and you will need to replace any losses of any of the above before your levothyroxine will work. Also, you may have low adrenal reserve, or candida antibodies. These too will stop your thyroid hormone from working if this is the case. Go to our web site www.tpa-uk.org.uk and click on 'Hypothyroidism' and then on the drop down Menu, click on 'Associated Conditions' and read all about these and how you can treat them should you be found to be suffering from any of them. You can get a 24 hour salivary adrenal profile done through Genova Diagnostics and also a test to see whether you are suffering with systemic candidiasis. Unfortunately, there is a large minority of sufferers of hypothyroidism who are unable to convert the mainly inactive hormone thyroxine (T4) to the active hormone triiodothyronine (T3). T3 is needed by every cell in your body and brain to make it function - so you need to know whether you have such a conversion problem or not. Read everything you can in our Files on this forum and also the Links, and also the information in our web site. Luv - Sheila My physical symptoms continue.. (severe fatigue.. hair loss.. crazy menstrual cycles etc) and I am going to my local hospital for clinical psychiatry sessions but I know my mental state is to do with hypotyroidism. I'm convinced I need T3 but my doctor says they don't test for it???? No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.30/2025 - Release Date: 03/27/09 18:51:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Anjelica, Get your Dr to ask for T3 only if he has a problem with his lab - if not ask him to test at another lab, they cant be allowed to put people's mental health at risk (although you might be able to get T3 from your Psych.). I know its hard, I have been hypot for years too, but something has got to come right soon, we are all working really hard to make a difference. Hang in there. Love Jane Help? I think I may be getting at my wits end. I know I have been hypo for many years and at first my doctor put me on anti-depressants until I was diagnosed hypotyroid. I'm still on citalapram and what seems to me a high dose of levothyroxine 200mg daily and I'm not feeling any better! I thought that when I was diagnosed that it would be the end of my 'problems'... but nearly two years later I am still at square one. My physical symptoms continue.. (severe fatigue.. hair loss.. crazy menstrual cycles etc) and I am going to my local hospital for clinical psychiatry sessions but I know my mental state is to do with hypotyroidism. I'm convinced I need T3 but my doctor says they don't test for it???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 They can and some do test T3, my surgery will if I ask. it does seem if your arent getting better then you may not be converting T4 to T3, its T3 we need as its the active hormone and T4 is mainly inactive, I would try and get your T3 tested and post the results here I think I may be getting at my wits end. I know I have been hypo for many years and at first my doctor put me on anti-depressants until I was diagnosed hypotyroid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Hi Anjelica, Try not to despair, I know that is easy to say. But after well over twenty years of being hypothyroid this group is the best thing that has happened to me. I have battled with my doctor for two years now about the T3 test and he has finally agreed to do it. I went this week and had the full range of thyroid blood tests taken. I am currently under the psychiatric nurse practice, have suffered fibromyalgia, had a full hysterectomy a few years ago when I was wrongly diagnosed with endometriosis, which I have since found out could have been prevented had my hypo-t been treated correctly. My cycle was 18 days of heavy bleeding and 3 or 4 days clear before it would repeat, I was anaemic, fatigued and the rest. Are there any other doctors in your practice? Would they perhaps listen better? I took loads of printed files from the ones here in to my doctor and showed those to him. For the first time someone actually listened to me and realised I wasn't being 'nutty', I actually only want my health returned. Perhaps you could do the same - show the doctor the files from here. I really do hope he will listen to you as it is half of the battle. Lynne I thought that when I was diagnosed that it would be the end of my 'problems'... but nearly two years later I am still at square one. My physical symptoms continue.. (severe fatigue.. hair loss.. crazy menstrual cycles etc) and I am going to my local hospital for clinical psychiatry sessions but I know my mental state is to do with hypotyroidism. I'm convinced I need T3 but my doctor says they don't test for it???? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 HI Lynne - it does my heart good to hear from members like you who have battled for years and then found some answers here at TPA-UK that is now putting you back on the road to good health. If ONLY there were more doctors like yours who would listen to their patients and look outside the NHS diagnosing and treating protocol for hypothyroidism to find the answers they need. Thanks for telling us your story, and I hope you go on to get your full health back. Luv - Sheila I took loads of printed files from the ones here in to my doctor and showed those to him. For the first time someone actually listened to me and realised I wasn't being 'nutty', I actually only want my health returned. Perhaps you could do the same - show the doctor the files from here. I really do hope he will listen to you as it is half of the battle. Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Hi , did I get that right? Your experience is all to commone with the NHS If you want to get well with hypothyroidism then you can get tests from genova diagnostics to check if indeed your T3 is low then it is up to you wether you want to go private or self medicate- these are the only options left if the NHs has it's head in the sand. I too was like you on thyroxine, but am now well on Armour natural thyroid and T3. Help? I think I may be getting at my wits end. I know I have been hypo for many years and at first my doctor put me on anti-depressants until I was diagnosed hypotyroid. I'm still on citalapram and what seems to me a high dose of levothyroxine 200mg daily and I'm not feeling any better! I thought that when I was diagnosed that it would be the end of my 'problems'... but nearly two years later I am still at square one. My physical symptoms continue.. (severe fatigue.. hair loss.. crazy menstrual cycles etc) and I am going to my local hospital for clinical psychiatry sessions but I know my mental state is to do with hypotyroidism. I'm convinced I need T3 but my doctor says they don't test for it???? ------------------------------------ TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 just give a name .they do not check it or use it Quote Link to comment Share on other sites More sharing options...
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