What to do about pain while on LDN? Going off, not going off, am confused...

[Guest guest]

I've been on LDN now for about 2 months. Because of a goof up at the doc's

office, I'm still on 4mgs, and have seen some improvement, but I definitely

still have issues. Lately, the joint pain has gotten worse (I have autoimmune

issues like Lupus, Sjogren's and Graves') and I worried I might be flaring

again. I have tried to be so good at taking my doses at the same time each

night but may have missed one - I'm not sure. Anyway, I suddenly got horribly

ill. The pain and Migraine issues I have almost constantly now, got very, very

bad. I went off the LDN in case I needed an ER run and pain meds. I didn't

really know what else I should do as I was in fairly serious shape. This has

lasted now about a week. I haven't had to resort to opioids yet, but I really

am teetering at the brink right now. This severe Migraine has gone on for about

8 days so far.

What does everybody here do when faced with something like a surgery or injury

etc when opioids are the only thing that is going to make your life liveable

until you get thru it?

I'm going to start back up again tonight, but am also now concerned maybe I

should titrate back up again? I had very few problems the first time up

(exacerbation of Raynaud's and pain and some dreaming), but don't want to get

any worse at this point. I'm honestly not sure I could handle anything more...

Thanks for your help.

Ellen S