New to group

[Guest guest]

Hi there, I am new to the group, just been hanging back and reading posts.

Little bit about me,

41 yr old Female living in WA State, Type 2 Diabetic since 2000, no medicated

due to successful lap band surgery in 2002.

At the same time I became pregnant in 2004 I was having many problems with

vomitting , which was put down to morning sickness. Turns out I am one of the

small number of the population that do not have pain when having a gallbladder

attack, and at 7 month pregnant had emergency surgery to remove a very infected

and poisioned gallbladder. Things where looking up, until about a year and a

half ago, when I stated having what I call 'pain days'. I would get out of bed

and within about 30 mins I would get what I called an aura, and I would know I

was going to have a bad day. Pain would start in my feet, tingling ,sharp pain,

that would then travel up and all over my boday, I couldnt even brush my hair as

it would send pain through my as well.

I would become so cold that I didnt think it was possible to ever get warm

again. and I would shake like I was mixing a margarita!! I would crawl back to

bed, pile the covers on, get the heating pad out and prey. Sometimes, if I could

get some food into me I would start to feel better, others it didnt matter, BSL

at these times were 'Normal' for me. Within a good range.

After I got 'better' it was like nothing had happend. Started to think it was

all in my head!!!

These 'pain day' happened more frequently and so off to the doctor I go, he

sends me that day for an MRI saying it could be MS, course I freak out!!!

Scans clear, thank the man up stairs... so off to other specialists to see

what's going on.

Been tested for porphyria and other immune problems all with negative results,

which believe me I'm grateful for, but frustrated that I now have NO diagnosis.

The doctors tried me on a number of drug treatments with little or no results,

and sometime Bad results. Turns out I am very sensitive to all these wonderful

drugs out there!!! In January was put on LDN and wow, what a difference to me.

All I can say is Im glad to be on this drug, I can take it and I feel so much

better for it.

The only problem that I have had on LDN, was in Feb.

I had back surgery to fuse L5/S1, was told to stop taking LDN the night before

and I SHOULD be ok. I did as directed. Listed all the drugs I was on for the

surgen and was put on Dilaudid, upon waking from surgery due to Morphin allergy.

They thought I was having an allergic reaction to the Dilaudid, and changed it.

I think I had 4 different narcotic's while in the hospital and 2 when I got

home. Everytime I had the same result, shaking ,vomiting, pain in stomach,

confusion. etc.... My husband went to the pharmasist that makes LDN for me and

she said I could go back on it. Here I was thinking that I was feeling bad,

because I hadnt taken the LDN in over a week. I took 1 tablet at 5pm and by 9

pm was taken to the ER via amublance with severe withdrawl. Crashed big time.

turns out that I am one of a very SMALL number of people that even on such a

SMALL dose of LDN I will go into a severe withdrawl if taken with Narcotics.

So now everytime I go to a doc even if its to get my little toe nail looked at ,

I make them very aware of how my body does not do what it should do when it

comes to drugs.

I was wondering if anyone else has had a reaction like mine, and if so or not,

when the doctors prescribed any of these drugs to you, they tell you about all

the complications. When I first when to the pharmasist to pick up my script, I

spent 15 mins askig her for all the information she had on this drug, due to so

many allergies, and she never once told me Naltrexone was a drug they give to

detox. When I conforted her she said she never said anything because it is such

a low dose that I Shouldnt have reacted that way. I told her Im not one of the

masses,and that I should have been told of the uses so that I would know what to

look for.

Anyway, end result.. Im fine, spent 3 days back in hospital, getting sorted

out, home now, walking taller than I have in a long time. Still having some

break through days with pain, but better than last month!

Thanks for reading my ramble..

Nikki