Guest guest Posted November 8, 1999 Report Share Posted November 8, 1999 Dear Maureen, We all sympathize here--we've been there. Tapezol worked for me, until the natural stuff kicked in. I would be curious to know your reaction to it that sent you to the hospital--usually it's well tolerated (although everyone is unique, I know). Have you looked into diet? Tofu and broccoli and other such vegetables are supposed to lower thyroid hormone output. Also, estrogen supplementation should help (tofu is a good source of plant estrogen, and there are plant estrogen supplements and creams). Also, were you doing anything differently before you got sick--different diet, new vitamins, hormone changes--anything? Lots of things can throw our systems out of balance. I don't know how to find 's list of supplements (I'm not that sophisticated on the computer), but others on this list, including , will be able to help you (he doesn't check in every day like he used to before he had to work, but he should answer you soon). I hope you don't have to go for the surgery (please see prior e-mail message re this)--good luck, and let us know how you are doing/how we can help. AntJoan P.S. Are you taking beta blockers? They protect your heart while you are hyperT, which is very important. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 Dear Pam, Please go to www.iThyroid.com for our related Website, which should have all the info you need. Best of luck, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 do any of you have hyperthyroid and what is treatment for it? i'm borderline low, and have all symptoms of it.......thanks radha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Do you mean hyPOthyroid (low thyroid)? Re: hyperthyroid do any of you have hyperthyroid and what is treatment for it? i'm borderline low, and have all symptoms of it.......thanks radha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Shalom, You may want to join the iodine group, lots of thyroid info there, and people that will help you. iodine Joan Shalom <Sstuck@...> wrote: At the moment my doctor says i have pp hyper-thyroid, but won't know if it's graves disease till I am 13 weeks pp. I am soo depressed. HOT! tired and restless. How much coconut should I or can I attempt at once. I feel llike I am being eaten alive inside. and I just feel awful. I know there's no doctors here, just suggesters. I am findig a lot of info on herbs and plants that can help but no amounts. Thanks Shalom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Addressing Thyroid related health disorders Sometimes (most often is more accurate) the thyroid gland and in general the glandular system takes over the burden of detoxification (internal cleaning) when the regular channels of elimination are overburdened. So, number one on the " to do " list with a thyroid problem is to pay attention to and help your detoxification organs (intestinal tract, liver, kidneys, and lungs) to function at full effectiveness. Doing this job will assist in relieving any detoxification burden on your thyroid gland that can be relieved. To explain the above concept further, here's an example of how the detoxification system is related to the glandular system. It is a well known medical fact, that certain forms of harmful bacteria can produce toxic substances in the intestinal tract. These toxic substances travel to the liver from the intestines and impair the liver's ability to manufacture and utilize T3 (T3 is a relative of thyroxin and it helps regulate the speed of metabolism in the tissues). Friendly bacteria are very important to stop harmful bacteria from producing these toxic substances. As a result of repopulating your intestinal tract with potent friendly bacteria, your liver should have an increased ability to function normally and this could indirectly support your thyroid gland. When you choose your friendly bacteria supplements, make sure they are microblended with a whole food rich in minerals such as: acidophilus and bifidus microblended with kelp or blue green algae - http://tinyurl.com/24ajq and http://tinyurl.com/26rur. The minerals in these sea vegetables enables the friendly bacteria to increase their speed of multiplication in the gut and will also increase the total number of organisms (friendly bacteria) that will eventually flourish in your intestines . Number two in the " to do " list is to make sure you're getting enough minerals in your diet (iodine, iron and selenium). In the past, doctors used to think that a deficiency of iodine alone was a cause of the dysfunction of the thyroid gland. But it is known today that selenium is critical in activating an enzyme responsible for controlling thyroid function. However, taking isolated iodine and selenium supplements is not a good idea because humans require only a few micrograms of these nutrients each day to meet normal needs. Too much of either of these minerals can produce toxicity. It is best to find foods high in these minerals: Blue green algae - http://tinyurl.com/g1iz, dulse, kelp and other sea vegetables are high in iodine and selenium. When consumed as part of a whole food, these minerals can be assimilated and utilized for thyroid hormone synthesis by your body without fear of toxicity. Other diatery recommendations: • Enzyme Therapy - http://tinyurl.com/mkwo: Since the endocrine glands are driven by digested foods. Correcting any digestive problems with the use of digestive enzymes is a good idea. • Coconut oil is the most healthy saturated fat for the endocrine glands. Raw butter is as good. Coconut oil stimulates thyroid function and thus promotes weight loss in those who are overweight. • Fruits and fruits smoothies are important to help modulate blood sugar and calm the adrenal glands and normalize production of thyroid hormone. • Carrots' fiber tones the bowel, binds toxins and reduces the reabsorption of estrogen. • Do not drink tap water. Some city water contains organic hydrocarbons which could result in blocking the activity of thyroid hormones. Make sure you drink only spring water. • Simplify your diet. Eat the following for a period of three months: salmon, eggs (boiled), yams, fruits, and vegetables (juice parsley, celery, carrots and apples), brown rice, seeds and nuts, coconut butter or coconut oil for cooking. • Supplements use is important: 300 to 400 mg. of CoQ10 (daily for three months) - http://tinyurl.com/f1f7. Plus for the long term, plant-based food enzymes with meals, friendly bacteria, wheat sprouts (http://tinyurl.com/6vxtu) and blue green algae supplements Following this plan, you're likely to see the potential of great improvement without the use of medications. Resources: Food Is Your Best Medicine. Henry Bieler, M.D. The Enzyme Cure. Lee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 WOW! Thanks. I would love to do a detox but i can't for about a year anyway as i am breast feeding and debating about a fourth and final pregnancy. not soon, but not in 2 yearsd either. So knowing what food to east is helpful, thanks for all the info. will look fgor that book when hubby lets me buy another book. LOL i am a nookaholic. nothing wrong with knowledge iot's what you do with it that can be harmful. Shalom Re: Hyperthyroid Addressing Thyroid related health disorders Sometimes (most often is more accurate) the thyroid gland and in general the glandular system takes over the burden of detoxification (internal cleaning) when the regular channels of elimination are overburdened. So, number one on the " to do " list with a thyroid problem is to pay attention to and help your detoxification organs (intestinal tract, liver, kidneys, and lungs) to function at full effectiveness. Doing this job will assist in relieving any detoxification burden on your thyroid gland that can be relieved. To explain the above concept further, here's an example of how the detoxification system is related to the glandular system. It is a well known medical fact, that certain forms of harmful bacteria can produce toxic substances in the intestinal tract. These toxic substances travel to the liver from the intestines and impair the liver's ability to manufacture and utilize T3 (T3 is a relative of thyroxin and it helps regulate the speed of metabolism in the tissues). Friendly bacteria are very important to stop harmful bacteria from producing these toxic substances. As a result of repopulating your intestinal tract with potent friendly bacteria, your liver should have an increased ability to function normally and this could indirectly support your thyroid gland. When you choose your friendly bacteria supplements, make sure they are microblended with a whole food rich in minerals such as: acidophilus and bifidus microblended with kelp or blue green algae - http://tinyurl.com/24ajq and http://tinyurl.com/26rur. The minerals in these sea vegetables enables the friendly bacteria to increase their speed of multiplication in the gut and will also increase the total number of organisms (friendly bacteria) that will eventually flourish in your intestines . Number two in the " to do " list is to make sure you're getting enough minerals in your diet (iodine, iron and selenium). In the past, doctors used to think that a deficiency of iodine alone was a cause of the dysfunction of the thyroid gland. But it is known today that selenium is critical in activating an enzyme responsible for controlling thyroid function. However, taking isolated iodine and selenium supplements is not a good idea because humans require only a few micrograms of these nutrients each day to meet normal needs. Too much of either of these minerals can produce toxicity. It is best to find foods high in these minerals: Blue green algae - http://tinyurl.com/g1iz, dulse, kelp and other sea vegetables are high in iodine and selenium. When consumed as part of a whole food, these minerals can be assimilated and utilized for thyroid hormone synthesis by your body without fear of toxicity. Other diatery recommendations: . Enzyme Therapy - http://tinyurl.com/mkwo: Since the endocrine glands are driven by digested foods. Correcting any digestive problems with the use of digestive enzymes is a good idea. . Coconut oil is the most healthy saturated fat for the endocrine glands. Raw butter is as good. Coconut oil stimulates thyroid function and thus promotes weight loss in those who are overweight. . Fruits and fruits smoothies are important to help modulate blood sugar and calm the adrenal glands and normalize production of thyroid hormone. . Carrots' fiber tones the bowel, binds toxins and reduces the reabsorption of estrogen. . Do not drink tap water. Some city water contains organic hydrocarbons which could result in blocking the activity of thyroid hormones. Make sure you drink only spring water. . Simplify your diet. Eat the following for a period of three months: salmon, eggs (boiled), yams, fruits, and vegetables (juice parsley, celery, carrots and apples), brown rice, seeds and nuts, coconut butter or coconut oil for cooking. . Supplements use is important: 300 to 400 mg. of CoQ10 (daily for three months) - http://tinyurl.com/f1f7. Plus for the long term, plant-based food enzymes with meals, friendly bacteria, wheat sprouts (http://tinyurl.com/6vxtu) and blue green algae supplements Following this plan, you're likely to see the potential of great improvement without the use of medications. Resources: Food Is Your Best Medicine. Henry Bieler, M.D. The Enzyme Cure. Lee. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.20/1260 - Release Date: 2/5/2008 9:44 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Thanks Shalom Re: Hyperthyroid Shalom, You may want to join the iodine group, lots of thyroid info there, and people that will help you. iodine Joan Shalom <Sstuck@...> wrote: At the moment my doctor says i have pp hyper-thyroid, but won't know if it's graves disease till I am 13 weeks pp. I am soo depressed. HOT! tired and restless. How much coconut should I or can I attempt at once. I feel llike I am being eaten alive inside. and I just feel awful. I know there's no doctors here, just suggesters. I am findig a lot of info on herbs and plants that can help but no amounts. Thanks Shalom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Before you do anything, please go to the graves_support@groups with your concerns. There are quite a few people there with situations like yours. I am presently there for my daughter. I was diagnosed with graves myself years ago, but I am now hypothyroid. As far as coconut oil, my experience with it has been that it caused my metabolism to increase, and I am not sure if that is a good thing for you until you are finished being diagnosed as having graves. Your heart is already probably racing from time to time, and coconut oil may cause it to race even more at this time. Just my opinion. F. > > At the moment my doctor says i have pp hyper-thyroid, but won't know if it's graves disease till I am 13 weeks pp. I am soo depressed. HOT! tired and restless. How much coconut should I or can I attempt at once. I feel llike I am being eaten alive inside. and I just feel awful. I know there's no doctors here, just suggesters. I am findig a lot of info on herbs and plants that can help but no amounts. > Thanks > Shalom > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Shalom When i was diagnosed with hyperthyroidism, i cut down my vco consumption from 3T to 1T and continued to useco for cooking. I had to take pills for one year to get TSH down a bit. Now TSH is normal at the low end of the scale. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Hi Is it the fluoride locally added to water? Bob > > > > > Hi nne, > > my cat is hyperthyroid and my vet says that it is now one of the most common feline conditions in her surgery. She reckons that it's something in the water.............. > > julia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 My sister has had two cats with hyper-T; and she now has a dog with hypo-T. Our water doesn't have any extra, added fluoride. I thought one of the theories as to why hyper in cats is increasing in North America is that it's caused by chemicals in furnishings and carpets, things like fire retardants; because cats roll around on these and then ingest the chemicals. Presumably that would apply to the UK too? Louise. > > Hi > > Is it the fluoride locally added to water? > > Bob > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Hi Louise, That might be the brominated fire retardants? Brominated like iodinated? Bob > > My sister has had two cats with hyper-T; and she now has a dog with hypo-T. Our water doesn't have any extra, added fluoride. > I thought one of the theories as to why hyper in cats is increasing in North America is that it's caused by chemicals in furnishings and carpets, things like fire retardants; because cats roll around on these and then ingest the chemicals. Presumably that would apply to the UK too? > > Louise. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Hi Louise In dogs, hypothyroidism might very well be the same cause as in humans, with lowered iodine and seleniumm in their diets, arising from environmental deficits. Much as the fluoride might disrupt thyroid function in unpredictable ways. Bob > > My sister has had two cats with hyper-T; and she now has a dog with hypo-T. Our water doesn't have any extra, added fluoride. > I thought one of the theories as to why hyper in cats is increasing in North America is that it's caused by chemicals in furnishings and carpets, things like fire retardants; because cats roll around on these and then ingest the chemicals. Presumably that would apply to the UK too? > > Louise. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Following my reaction to petrol/car exhaust fumes today, I wouldn't mind betting that petrochemicals (also used in carpet manufacture) might be partly responsible. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 I think it was something to do with brominated fire retardants yes. Ooh er, this made me have a look at brominated stuff. Apparently brominated vegetable oil is used in fizzy drinks (to do with flavouring) :0( Good job I don't drink them then. It says that animals fed this can have their thyroid function suppressed because the bromine displaces the iodine. I wonder if this oil is used in pet food in some way? The other thing I remember reading about thyroid problems in pets was to with the plastic linings in the tins containing bisphenol A; I think that's an endocrine disruptor too. Louise. > > Hi Louise, > > That might be the brominated fire retardants? > Brominated like iodinated? > > Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2010 Report Share Posted April 9, 2010 Has anyone here used or know of use of LDN for hyperthyroid problem? I also have several goiter nodules on thyroid. Thanks. K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Here are the level ranges from the Association of Endocrinologist, they changed in 2003 and some labs/doctors are using the old level ranges. Some people say radioactive iodine is an old school treatment. I had it done when I had Thyroid cancer. I also understand you can take Iodine tablets to help with the Hyper side. CC: From: Robicheaux@... Date: Mon, 7 Jun 2010 20:53:10 -0500 Subject: Re: Hyperthyroid is 14, we found out a few weeks ago that he has Hyperthyroidism. It could be Graves disease which would require a radioactive iodine treatment that will destroy his thyroid. Or it could be Hashimoto syndrome that just causes the symptoms to come and go and it is treated with Meds to control the symptoms as needed What we have done so far is have him do some test in nuclear medicine, that told us it was hyper. At that time they found what they called " toxic goiters " (sp?), that is a sign of Graves Disease. So we went in this morning for an ultrasound of his thyroid, which is supposed to tell which one he has. We are scheduled tomorrow morning at 8am for the radioactive treatment, but no one has let me know what the results of the ultrasound were. I told them I wanted to wait for the results, they said they would call,,,,now it is almost 9pm and have no idea what is going on for tomorrow His symptoms are a very high heart rate, irritability, insomnia, dry skin, -------------------------------------------------- From: " Barbara Rizk " <rizk22@...> Sent: Monday, June 07, 2010 5:27 PM " cshos " <cshos@...> Cc: < > Subject: Re: Hyperthyroid > All the info that I have found on Hyperthyroid and ds points to Graves > disease (an auto-immune disease) but meds do not usually take care of > it (causes HYPOthyroidism). In all cases studied with the less common > treatment was needed with kids with DS. radioiodine. Has anyone been > down that road? > > I am completely getting ahead of myself here in the name of learning. > We are going to repeat Sam's test in 2 months and see where the levels > are, then. His TSH was on the extremely low side but his FT4 levels > were normal. It seems that Hyperthyroidism is over-represented in > the DS community, but nowhere near the percentage of kids (with DS) > with HYPOthyroidism. > > I love this group, you are all a wealth of information! > > Barb > > > On Jun 7, 2010, at 3:13 PM, cshos wrote: > >> It is common. The medical guidelines for people with ds recommend >> testing for thyroid annually. >> >> Shirley >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 They use radioactive iodine not because of the iodine, but because the thyroid will absorb iodine naturally and the radioactive part helps to destroy the over active thyroid and prevent a thyroid storm. Iodine will block some of the thyroid hormone, but I would be weary of treating hyperthyroid with just iodine tablets/ Hyper thyroid is a serious condition and should be dealt with asap. A thyroid storm can result in an admission to the icu with a very serious prognosis. The heart ends up beating so fast for so long the the muscle can get some severe damage. I had a freind who's husband passed away after a thyroid storm and two agonizing weeks in the icu on a ventilator. The treatment is not as scary as it sounds. All you do is drink this liquid with the radioactive iodine in it. It is supposed to be flavored, but I have never tried it. Then for a week you eat with disposable silverware and flush a couple times after going to the bathroom. It is very effective and the side effects are really minimal. Especially when you consider the side effects of doing nothing. Yes, you will have to take a thyroid replacement pill after that, but having an over active thyroid is like having a ticking time bomb inside you. Some additional info: Thyroid Storm Overview The thyroid gland <http://www.emedicinehealth.com/script/main/art.asp?articlekey=5778>, located at the front part of the neck <http://www.emedicinehealth.com/script/main/art.asp?articlekey=16929>, is responsible for making substances (thyroid hormones <http://www.emedicinehealth.com/script/main/art.asp?articlekey=5780>) that are important for all body cells to work properly. In certain conditions, the thyroid becomes over-active and produces too much of its hormones, a situation called hyperthyroidism <http://www.emedicinehealth.com/script/main/art.asp?articlekey=80588>. People with hyperthyroidism have problems that reflect over-activity of the organs of the body, resulting in symptoms such as sweating <http://www.emedicinehealth.com/script/main/art.asp?articlekey=9299>, feeling hot, rapid heartbeats, weight loss <http://www.emedicinehealth.com/script/main/art.asp?articlekey=53393>, and sometimes eye problems. When the levels of thyroid hormones become very high in a patient who has hyperthyroidism, the symptoms get worse and can result in a serious condition called thyroid storm. One major sign of thyroid storm that differentiates it from plain hyperthyroidism is a marked elevation of body temperature, which may be as high as 105-106 ºF. Thyroid storm is unusual, but when it occurs, it is a life-threatening emergency. People experiencing symptoms of thyroid storm should be taken to an emergency department <http://www.emedicinehealth.com/script/main/art.asp?articlekey=12156>. Thyroid Storm Causes * Infections, especially of the lung * Thyroid surgery <http://www.emedicinehealth.com/script/main/art.asp?articlekey=5603> in patients with overactive thyroid gland <http://www.emedicinehealth.com/script/main/art.asp?articlekey=3594> * Stopping medications given for hyperthyroidism * Too high of thyroid dose * Treatment with radioactive iodine <http://www.emedicinehealth.com/script/main/art.asp?articlekey=15318> * Pregnancy <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58752> * Heart attack <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58679> or heart <http://www.emedicinehealth.com/script/main/art.asp?articlekey=3668> emergencies Thyroid Storm Symptoms * Rapid heart beats * Greatly increased body temperature * Chest pain <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58673> * Shortness of breath * Anxiety <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58900> and irritability * Disorientation * Increased sweating * Weakness * Heart failure <http://www.emedicinehealth.com/script/main/art.asp?articlekey=3672> People experiencing thyroid storm are not able to function normally. This is a life-threatening emergency. People experiencing symptoms of thyroid storm should be taken to the emergency department. Dink-Bork Phoebe 5 Our lively sparkle girl Ds & Cf Nolan 7 Our loving smart all boy child " Truth alone will endure; all the rest will be swept away before the tide of time....What may appear as truth to one person will often appear as untruth to another person. But that need not worry the seeker. Truth and untruth often co-exist; good and evil often are found together. Use truth as your anvil, nonviolence as your hammer and anything that does not stand the test when it is brought to the anvil of truth and hammered with nonviolence, reject it " ~Gandhi On 6/7/2010 10:52 PM, Marcia Loomas wrote: > Here are the level ranges from the Association of Endocrinologist, they changed in 2003 and some labs/doctors are using the old level ranges. Some people say radioactive iodine is an old school treatment. I had it done when I had Thyroid cancer. I also understand you can take Iodine tablets to help with the Hyper side. > > > > CC: > From: Robicheaux@... > Date: Mon, 7 Jun 2010 20:53:10 -0500 > Subject: Re: Hyperthyroid > > > > > > is 14, we found out a few weeks ago that he has Hyperthyroidism. It > could be Graves disease which would require a radioactive iodine treatment > that will destroy his thyroid. Or it could be Hashimoto syndrome that just > causes the symptoms to come and go and it is treated with Meds to control > the symptoms as needed > > What we have done so far is have him do some test in nuclear medicine, that > told us it was hyper. At that time they found what they called " toxic > goiters " (sp?), that is a sign of Graves Disease. > So we went in this morning for an ultrasound of his thyroid, which is > supposed to tell which one he has. We are scheduled tomorrow morning at 8am > for the radioactive treatment, but no one has > let me know what the results of the ultrasound were. I told them I wanted > to wait for the results, they said they would call,,,,now it is almost 9pm > and have no idea what is going on for tomorrow > > His symptoms are a very high heart rate, irritability, insomnia, dry skin, > > -------------------------------------------------- > From: " Barbara Rizk " <rizk22@...> > Sent: Monday, June 07, 2010 5:27 PM > " cshos " <cshos@...> > Cc:< > > Subject: Re: Hyperthyroid > > >> All the info that I have found on Hyperthyroid and ds points to Graves >> disease (an auto-immune disease) but meds do not usually take care of >> it (causes HYPOthyroidism). In all cases studied with the less common >> treatment was needed with kids with DS. radioiodine. Has anyone been >> down that road? >> >> I am completely getting ahead of myself here in the name of learning. >> We are going to repeat Sam's test in 2 months and see where the levels >> are, then. His TSH was on the extremely low side but his FT4 levels >> were normal. It seems that Hyperthyroidism is over-represented in >> the DS community, but nowhere near the percentage of kids (with DS) >> with HYPOthyroidism. >> >> I love this group, you are all a wealth of information! >> >> Barb >> >> >> On Jun 7, 2010, at 3:13 PM, cshos wrote: >> >> >>> It is common. The medical guidelines for people with ds recommend >>> testing for thyroid annually. >>> >>> Shirley >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 They will not admit it but I was made to put Ben on Levothyroxine....generic for Synthroid which he has taken all his life. For two months we were in the ER 3x with sweating, fast heart rate, vomiting, chest pain and elevated blood pressure. A Dr. finally commented as the only change we had made was the medication and the wandered if he was going from Hypo to Hyper and was absoring the medication to quickly too bad we didn't think to do bloodwork until it was too late. Someone from Riley children's hospital told me is you start generic, stay generic and if you are on brand name stay on brand name. The differences are to minute and can cause real problems for some people so we will never go generic again with the Synthroid. mloomas@...; From: julie@... Date: Tue, 8 Jun 2010 14:06:56 -0500 Subject: Re: Hyperthyroid They use radioactive iodine not because of the iodine, but because the thyroid will absorb iodine naturally and the radioactive part helps to destroy the over active thyroid and prevent a thyroid storm. Iodine will block some of the thyroid hormone, but I would be weary of treating hyperthyroid with just iodine tablets/ Hyper thyroid is a serious condition and should be dealt with asap. A thyroid storm can result in an admission to the icu with a very serious prognosis. The heart ends up beating so fast for so long the the muscle can get some severe damage. I had a freind who's husband passed away after a thyroid storm and two agonizing weeks in the icu on a ventilator. The treatment is not as scary as it sounds. All you do is drink this liquid with the radioactive iodine in it. It is supposed to be flavored, but I have never tried it. Then for a week you eat with disposable silverware and flush a couple times after going to the bathroom. It is very effective and the side effects are really minimal. Especially when you consider the side effects of doing nothing. Yes, you will have to take a thyroid replacement pill after that, but having an over active thyroid is like having a ticking time bomb inside you. Some additional info: Thyroid Storm Overview The thyroid gland <http://www.emedicinehealth.com/script/main/art.asp?articlekey=5778>, located at the front part of the neck <http://www.emedicinehealth.com/script/main/art.asp?articlekey=16929>, is responsible for making substances (thyroid hormones <http://www.emedicinehealth.com/script/main/art.asp?articlekey=5780>) that are important for all body cells to work properly. In certain conditions, the thyroid becomes over-active and produces too much of its hormones, a situation called hyperthyroidism <http://www.emedicinehealth.com/script/main/art.asp?articlekey=80588>. People with hyperthyroidism have problems that reflect over-activity of the organs of the body, resulting in symptoms such as sweating <http://www.emedicinehealth.com/script/main/art.asp?articlekey=9299>, feeling hot, rapid heartbeats, weight loss <http://www.emedicinehealth.com/script/main/art.asp?articlekey=53393>, and sometimes eye problems. When the levels of thyroid hormones become very high in a patient who has hyperthyroidism, the symptoms get worse and can result in a serious condition called thyroid storm. One major sign of thyroid storm that differentiates it from plain hyperthyroidism is a marked elevation of body temperature, which may be as high as 105-106 ºF. Thyroid storm is unusual, but when it occurs, it is a life-threatening emergency. People experiencing symptoms of thyroid storm should be taken to an emergency department <http://www.emedicinehealth.com/script/main/art.asp?articlekey=12156>. Thyroid Storm Causes * Infections, especially of the lung * Thyroid surgery <http://www.emedicinehealth.com/script/main/art.asp?articlekey=5603> in patients with overactive thyroid gland <http://www.emedicinehealth.com/script/main/art.asp?articlekey=3594> * Stopping medications given for hyperthyroidism * Too high of thyroid dose * Treatment with radioactive iodine <http://www.emedicinehealth.com/script/main/art.asp?articlekey=15318> * Pregnancy <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58752> * Heart attack <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58679> or heart <http://www.emedicinehealth.com/script/main/art.asp?articlekey=3668> emergencies Thyroid Storm Symptoms * Rapid heart beats * Greatly increased body temperature * Chest pain <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58673> * Shortness of breath * Anxiety <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58900> and irritability * Disorientation * Increased sweating * Weakness * Heart failure <http://www.emedicinehealth.com/script/main/art.asp?articlekey=3672> People experiencing thyroid storm are not able to function normally. This is a life-threatening emergency. People experiencing symptoms of thyroid storm should be taken to the emergency department. Dink-Bork Phoebe 5 Our lively sparkle girl Ds & Cf Nolan 7 Our loving smart all boy child " Truth alone will endure; all the rest will be swept away before the tide of time....What may appear as truth to one person will often appear as untruth to another person. But that need not worry the seeker. Truth and untruth often co-exist; good and evil often are found together. Use truth as your anvil, nonviolence as your hammer and anything that does not stand the test when it is brought to the anvil of truth and hammered with nonviolence, reject it " ~Gandhi On 6/7/2010 10:52 PM, Marcia Loomas wrote: > Here are the level ranges from the Association of Endocrinologist, they changed in 2003 and some labs/doctors are using the old level ranges. Some people say radioactive iodine is an old school treatment. I had it done when I had Thyroid cancer. I also understand you can take Iodine tablets to help with the Hyper side. > > > > CC: > From: Robicheaux@... > Date: Mon, 7 Jun 2010 20:53:10 -0500 > Subject: Re: Hyperthyroid > > > > > > is 14, we found out a few weeks ago that he has Hyperthyroidism. It > could be Graves disease which would require a radioactive iodine treatment > that will destroy his thyroid. Or it could be Hashimoto syndrome that just > causes the symptoms to come and go and it is treated with Meds to control > the symptoms as needed > > What we have done so far is have him do some test in nuclear medicine, that > told us it was hyper. At that time they found what they called " toxic > goiters " (sp?), that is a sign of Graves Disease. > So we went in this morning for an ultrasound of his thyroid, which is > supposed to tell which one he has. We are scheduled tomorrow morning at 8am > for the radioactive treatment, but no one has > let me know what the results of the ultrasound were. I told them I wanted > to wait for the results, they said they would call,,,,now it is almost 9pm > and have no idea what is going on for tomorrow > > His symptoms are a very high heart rate, irritability, insomnia, dry skin, > > -------------------------------------------------- > From: " Barbara Rizk " <rizk22@...> > Sent: Monday, June 07, 2010 5:27 PM > " cshos " <cshos@...> > Cc:< > > Subject: Re: Hyperthyroid > > >> All the info that I have found on Hyperthyroid and ds points to Graves >> disease (an auto-immune disease) but meds do not usually take care of >> it (causes HYPOthyroidism). In all cases studied with the less common >> treatment was needed with kids with DS. radioiodine. Has anyone been >> down that road? >> >> I am completely getting ahead of myself here in the name of learning. >> We are going to repeat Sam's test in 2 months and see where the levels >> are, then. His TSH was on the extremely low side but his FT4 levels >> were normal. It seems that Hyperthyroidism is over-represented in >> the DS community, but nowhere near the percentage of kids (with DS) >> with HYPOthyroidism. >> >> I love this group, you are all a wealth of information! >> >> Barb >> >> >> On Jun 7, 2010, at 3:13 PM, cshos wrote: >> >> >>> It is common. The medical guidelines for people with ds recommend >>> testing for thyroid annually. >>> >>> Shirley >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Definitely don't change from brand to generic or vice versa, also be careful there are 2 generics Out of office, Marcia On Jun 8, 2010, at 1:13 PM, CINDY MATTERN <cindymattern@...> wrote: > > They will not admit it but I was made to put Ben on > Levothyroxine....generic for Synthroid which he has taken all his > life. For two months we were in the ER 3x with sweating, fast heart > rate, vomiting, chest pain and elevated blood pressure. A Dr. > finally commented as the only change we had made was the medication > and the wandered if he was going from Hypo to Hyper and was absoring > the medication to quickly too bad we didn't think to do bloodwork > until it was too late. Someone from Riley children's hospital told > me is you start generic, stay generic and if you are on brand name > stay on brand name. The differences are to minute and can cause > real problems for some people so we will never go generic again with > the Synthroid. > > > > > > > > > > > > mloomas@...; > From: julie@... > Date: Tue, 8 Jun 2010 14:06:56 -0500 > Subject: Re: Hyperthyroid > > > > > > They use radioactive iodine not because of the iodine, but because the > thyroid will absorb iodine naturally and the radioactive part helps to > destroy the over active thyroid and prevent a thyroid storm. Iodine > will block some of the thyroid hormone, but I would be weary of > treating > hyperthyroid with just iodine tablets/ > > Hyper thyroid is a serious condition and should be dealt with asap. A > thyroid storm can result in an admission to the icu with a very > serious > prognosis. The heart ends up beating so fast for so long the the > muscle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 As a side note watch calcium levels with hyper, can get low Out of office, Marcia On Jun 8, 2010, at 1:13 PM, CINDY MATTERN <cindymattern@...> wrote: > They will not admit it but I was made to put Ben on > Levothyroxine....generic for Synthroid which he has taken all his > life. For two months we were in the ER 3x with sweating, fast heart > rate, vomiting, chest pain and elevated blood pressure. A Dr. > finally commented as the only change we had made was the medication > and the wandered if he was going from Hypo to Hyper and was absoring > the medication to quickly too bad we didn't think to do bloodwork > until it was too late. Someone from Riley children's hospital told > me is you start generic, stay generic and if you are on brand name > stay on brand name. The differences are to minute and can cause > real problems for some people so we will never go generic again with > the Synthroid. > > > > > > > > mloomas@...; > From: julie@... > Date: Tue, 8 Jun 2010 14:06:56 -0500 > Subject: Re: Hyperthyroid > > They use radioactive iodine not because of the iodine, but because the > thyroid will absorb iodine naturally and the radioactive part helps to > destroy the over active thyroid and prevent a thyroid storm. Iodine > will block some of the thyroid hormone, but I would be weary of > treating > hyperthyroid with just iodine tablets/ > > Hyper thyroid is a serious condition and should be dealt with asap. A > thyroid storm can result in an admission to the icu with a very > serious > prognosis. The heart ends up beating so fast for so long the the > muscle > can get some severe damage. I had a freind who's husband passed away > after a thyroid storm and two agonizing weeks in the icu on a > ventilator. > > The treatment is not as scary as it sounds. All you do is drink this > liquid with the radioactive iodine in it. It is supposed to be > flavored, but I have never tried it. Then for a week you eat with > disposable silverware and flush a couple times after going to the > bathroom. It is very effective and the side effects are really > minimal. Especially when you consider the side effects of doing > nothing. Yes, you will have to take a thyroid replacement pill after > that, but having an over active thyroid is like having a ticking time > bomb inside you. > > Some additional info: > > Thyroid Storm Overview > > The thyroid gland > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=5778>, > located at the front part of the neck > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=16929>, > is responsible for making substances (thyroid hormones > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=5780>) > that are important for all body cells to work properly. > > In certain conditions, the thyroid becomes over-active and produces > too > much of its hormones, a situation called hyperthyroidism > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=80588>. > People with hyperthyroidism have problems that reflect over-activity > of > the organs of the body, resulting in symptoms such as sweating > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=9299>, > feeling hot, rapid heartbeats, weight loss > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=53393>, > and sometimes eye problems. When the levels of thyroid hormones become > very high in a patient who has hyperthyroidism, the symptoms get worse > and can result in a serious condition called thyroid storm. One major > sign of thyroid storm that differentiates it from plain > hyperthyroidism > is a marked elevation of body temperature, which may be as high as > 105-106 ºF. Thyroid storm is unusual, but when it occurs, it is > a life-threatening emergency. People experiencing symptoms of thyroid > storm should be taken to an emergency department > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=12156>. > > Thyroid Storm Causes > > * Infections, especially of the lung > > * Thyroid surgery > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=5603> > in patients with overactive thyroid gland > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=3594> > > * Stopping medications given for hyperthyroidism > > * Too high of thyroid dose > > * Treatment with radioactive iodine > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=15318> > > * Pregnancy > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58752> > > * Heart attack > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58679> > or heart > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=3668> > emergencies > > Thyroid Storm Symptoms > > * Rapid heart beats > > * Greatly increased body temperature > > * Chest pain > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58673> > > * Shortness of breath > > * Anxiety > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=58900> > and irritability > > * Disorientation > > * Increased sweating > > * Weakness > > * Heart failure > <http://www.emedicinehealth.com/script/main/art.asp?articlekey=3672> > > People experiencing thyroid storm are not able to function normally. > This is a life-threatening emergency. People experiencing symptoms of > thyroid storm should be taken to the emergency department. > > Dink-Bork > Phoebe 5 Our lively sparkle girl Ds & Cf > Nolan 7 Our loving smart all boy child > > " Truth alone will endure; all the rest will be swept away before the > tide of time....What may appear as truth to one person will often > appear > as untruth to another person. But that need not worry the seeker. > Truth > and untruth often co-exist; good and evil often are found together. > Use > truth as your anvil, nonviolence as your hammer and anything that does > not stand the test when it is brought to the anvil of truth and > hammered > with nonviolence, reject it " ~Gandhi > > On 6/7/2010 10:52 PM, Marcia Loomas wrote: > > Here are the level ranges from the Association of Endocrinologist, > they changed in 2003 and some labs/doctors are using the old level > ranges. Some people say radioactive iodine is an old school > treatment. I had it done when I had Thyroid cancer. I also > understand you can take Iodine tablets to help with the Hyper side. > > > > > > > > CC: > > From: Robicheaux@... > > Date: Mon, 7 Jun 2010 20:53:10 -0500 > > Subject: Re: Hyperthyroid > > > > > > > > > > > > is 14, we found out a few weeks ago that he has > Hyperthyroidism. It > > could be Graves disease which would require a radioactive iodine > treatment > > that will destroy his thyroid. Or it could be Hashimoto syndrome > that just > > causes the symptoms to come and go and it is treated with Meds to > control > > the symptoms as needed > > > > What we have done so far is have him do some test in nuclear > medicine, that > > told us it was hyper. At that time they found what they called > " toxic > > goiters " (sp?), that is a sign of Graves Disease. > > So we went in this morning for an ultrasound of his thyroid, which > is > > supposed to tell which one he has. We are scheduled tomorrow > morning at 8am > > for the radioactive treatment, but no one has > > let me know what the results of the ultrasound were. I told them I > wanted > > to wait for the results, they said they would call,,,,now it is > almost 9pm > > and have no idea what is going on for tomorrow > > > > His symptoms are a very high heart rate, irritability, insomnia, > dry skin, > > > > -------------------------------------------------- > > From: " Barbara Rizk " <rizk22@...> > > Sent: Monday, June 07, 2010 5:27 PM > > " cshos " <cshos@...> > > Cc:< > > > Subject: Re: Hyperthyroid > > > > > >> All the info that I have found on Hyperthyroid and ds points to > Graves > >> disease (an auto-immune disease) but meds do not usually take > care of > >> it (causes HYPOthyroidism). In all cases studied with the less > common > >> treatment was needed with kids with DS. radioiodine. Has anyone > been > >> down that road? > >> > >> I am completely getting ahead of myself here in the name of > learning. > >> We are going to repeat Sam's test in 2 months and see where the > levels > >> are, then. His TSH was on the extremely low side but his FT4 levels > >> were normal. It seems that Hyperthyroidism is over-represented in > >> the DS community, but nowhere near the percentage of kids (with DS) > >> with HYPOthyroidism. > >> > >> I love this group, you are all a wealth of information! > >> > >> Barb > >> > >> > >> On Jun 7, 2010, at 3:13 PM, cshos wrote: > >> > >> > >>> It is common. The medical guidelines for people with ds recommend > >>> testing for thyroid annually. > >>> > >>> Shirley > >>> > >>> Quote Link to comment Share on other sites More sharing options...
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