Can anyone explain why LDN made me worse- MS patient

[Guest guest]

Hi,

I started 3mg LDN in Jan 08 and for the first 4-6 weeks felt great - my balance

improved slightly, legs were a bit stronger, was over the moon.

But from then i started to get worse, quite quickly (much quicker than i

normally progress) - since the one relapse before daignoses 8 yrs ago i dont

relapse just progress.

My balance/legs strength, mobility got much worse, worse than before i started

LDN.

I panicked and thought i must change the dose so tried from 3.7mg, 4.5mg, 6mg,

but i was still getting worse.

I deteriorated after about 4-6 weeks of starting 3mg LDN for about one month

later.

It was only when i tried 2mg LDN that i completely stopped getting worse.

So for the last 2 years i have been on 2mg and have not gotten any worse.

I have always been curious why i suddenly got worse when i dont get relapses

(besides one which led to diagnoses 8 yrs ago).

Has anyone had a simiar situation?

Does anyone know why this could happen?

P.S - i got tested for lyme disease twice (western blot) and had 2 negatives -

no bands shown.

So then had a LTT-MELISA test which came back positive.

So for the last year have tried several lyme treatments - BUT NONE OF THEM DONE

ANYTHING, I HAD NO REACTION/IMPROVEMENT.

i tried:

Rife machine (doug coil machine) - Salt & vitamin C protcol - Colloidal silver -

Oral antibiotics .

So the fact i had No reaction/improvement on lyme treatments clearly indicates

the ltt-melisa was a false positive.

- - i dont have any lyme symptoms just MS ones : mobility, legs strength,

balance, stiffness, bladder problems, weught loss.

Sorry for the long post and any opinions are appreciated

Adam