Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Hello everyone, I have rrms for 3 years now and been on LDN for 10 months and I have been relapse free since being on LDN and I am 99% symptom free. I have been following the disscussion of how the ms society does and knows very little for us who have ms. I agree 100% and feel something must be done. They continue to stick their head in the ground about LDN, CCSVI and diet and anything that might help us besides letting us inject our bodys with harmful expensive drugs that make us sicker than better. Now the question of the day is. How do we the sick people take control of the ms society and run it for the patients and not for the big pharma companies? They have our money and are filling their pockets and the pockets of big pharma. We need to get LDN trials and CCSVI testing available and need it done NOW. We should not have to go to Poland or elesewhere to have CCSVI done or fight with our doctors to get on LDN. Two very important things for people with ms. We elect the idiots in Ottawa and Washington and every other capitol and they do very little for us. How do we make people stand up and take notice that we are not going away and we demand LDN trials and CCSVI testing and treatment in Canada and the USA for ms. Lets here what everyone has to think. Sorry for the rant but I am pissed off and I think we all are at how we are being treated. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.