re: new LDN MS patient

[Guest guest]

Who told you to take 6mg? 4.5mg is considered the maximum dose for long term

use. It`s certainly not on this site that you`ve seen anyone advocating the use

of more than 4.5mg a night. I know some people have tried upping their dose if

going through a flare but no one stays at that level.

[Guest guest]

My MS/LDN story/1988 - 2009

http://tinyurl.com/mejs2t

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's MS/LDN story

http://tinyurl.com/yab5eap

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Low Dose Naltrexone Forum

http://ldn.proboards.com/index.cgi?

>

> Greetings,

>

> I've been taking 6mg of LDN for just over two weeks. I've read quite

> a bit on the website about LDN and M.S. and was hoping to talk to

> others who have M.S. and have been taking this medication. I've taken

> Copaxone, Avonex, and an experimental medication over the last 10

> years since my diagnosis. The medication that had worked the best for

> me was the experimental medication that I've taken since December

> 2005. It has been miraculous but it is no longer being made and I've

> had to investigate other options. I really didn't want to try the

> normal M.S. drugs since they really don't seem to do much more than

> have many side-effects and somewhat keep the disease at bay. Well,

> other than cost a great deal too. The experimental medication boosted

> my immune system and allowed it to perform much better. I haven't had

> any kind of cold or flu over this time. Does anyone have any similar

> experiences with LDN? If I've read correctly, I think I've understood

> that LDN also boosts the immune system as well. I would welcome

> other's with M.S., etc. who would like to talk about their situations

> and compare notes from a patient perspective. I would welcome

> physician input as well. Thanks for the time and God bless.

>

>

>

[Guest guest]

This came to my personal email address and it was meant for the group, I think.

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Hi

I was first diagnosed with ms March 07 I then started on Rebif Sept 07. My last

Rebif was June 10th 09 and my first 4.5mg LDN was June 11th 09. I will never

take Rebif ever again as I know it was slowly killing me from the inside out.

I would like to share my wonderful experience so far being on LDN. I live in

Saskatchewan Canada I am a 47 year old male. I have had RRMS for almost 3 years

now. I was on Rebif up until 9 months ago when I started LDN. I finally found a

doctor that is prescribing it to other MS patients. She prescribed 4.5 mg for me

and sent me on my way.

I stopped the Rebif injections, it was my own decision. Reason being is that LDN

promotes the immune system and Rebif suppresses it. I did not want that internal

battle going on within my body.

My symptoms at the start of me taking LDN were. I had cold numbness in my hands

and feet, to the point that it was painful to wear socks and shoes and gloves or

mitts. I also had the sensation of bands around both of my knees. I also had a

sinus infection at the time of starting LDN. I also had no energy and was full

of aches and pains. My mental awareness and thinking skills were diminishing. In

general my health was maybe 50% of what I was prior to the start of ms.

Within 3 days of taking 4.5 mg of LDN I noticed improvements in my hands and

feet and the bands around my knees were gone. My sinus infection was gone in 3

days with no other medication than LDN. My general health and mental awareness

strongly improved. After 1 week on LDN I was a new man. I went from feeling like

I was an 80-year-old man getting close to a wheelchair to a 30 year old man full

of energy and excitement. I became alive again and got out and was able to be

" Normal " . My wife says to everyone now I can't keep up to him it's wonderful.

It is 9 months now since starting LDN and my hand and feet are almost numb free

and I have had no side effects from using LDN. I feel like I am 30 years old

again. I know that I will be on LDN until there is a cure. LDN has changed my

life forever. I hope that everyone else has the same results. LDN is a wonder

drug for me. Another bonus being on LDN is I have not had a cold or the flu in 9

months. My wife and 3 kids have all had the flu and colds in this time and I

have not even had a symptom. This is quite common for people on LDN, we don't

get colds or the flu but everyone is different. In my mind I kind of feel like

Superman but I am very cautious saying that I just feel that way especially how

I feel today.

I have helped 2 other people get on LDN and have been contacted by many others.

The problem is convincing the rest that this is not snake oil or something

weird. Two weeks ago Thursday a friend of mine got on LDN and by her first

Sunday her shakes had stopped and or energy level increased etc. She will keep

me up to date. I now know 3 people personally who are on LDN and everyone says

the same as I do.

If you have any questions or just want to talk about LDN or mine or your success

please feel free to contact me.

Regards

Cam Phythian