Re: re: when to expect results

[Guest guest]

On Sat, 24 Apr 2010 12:14:31 -0300, Maureen Christensen

<christensenmo@...> wrote:

> I started taking LDN last Tuesday evening (4/20) for Crohn's disease. I

> was wondering when I should expect results. I feel like I have been

> taking a sugar pill. I don't feel worse but I don't feel better either.

> I have been having some back pain (started Tuesday during the day) and

> have been taking Advil and Aleve for it. I know people have suggested a

> change in diet but I believe that those who have been a part of the Penn

> State clinical trials did not change their diet and still had a success

> with the drug. I also spoke with my GI doctor and she said that during

> my recent colonoscopy in March she did look for yeast and did not find

> any so she didn't think that would be an issue for me. I don't feel any

> worse, which I think might indicate yeast, but I feel exactly the same.

> I even bought an over-the-counter sleep aid in case I couldn't sleep and

> that has not been a problem either. I don't know if I'm expecting too

> much too soon but I was really

> hoping this would work for me.

> Some have even said they lost weight on LDN (anti-craving drug) but I

> don't feel myself less hungry and losing weight has always been a

> problem for me.

> Any help you can provide would be appreciated.

> Thanks, Maureen

>

I can't really speak to why you're not feeling any different after taking

the LDN for Crohn's, because I certainly did, and virtually immediately.

Within five days my years'-long bone-wearying fatigue disappeared.

However, I am combining LDN with the Specific Carbohydrate Diet (SCD), and

for me -- and from what I've seen, being on list with hundreds of people

with Crohn's -- I definitely need to combine the two. A regular high-carb

North American diet is deadly for the vast majority of Crohn's sufferers.

Not having yeast is certainly not the only issue. Thinking is -- and it's

been confirmed for many thousands of us -- that Crohn's sufferers simply

can't properly digest sugars and starches. So when you cut those out

(except for fruit and a little honey, as necessary) you quit feeding bad

bacteria in your gut (which isn't necessarily all or even mostly Candida

yeast) and your gut starts to heal; the LDN accelerates the process.

For more than a year now I've been taking LDN and have also been on the

SCD and feel better than I have for most of my life. The diet calls for

eating as much of the following as works for you: meat (except

sugar-cured/added deli meats, including ham, etc.) eggs, aged cheese

(which is pretty much lactose free -- I also am lactose intolerant),

veggies (except starchy things like potatoes, sweet potatoes and a few

other root vegetables), fruit and nuts; and part of the diet is making

your own yogurt (the higher cream content the better), fermented 24 hours

so that all the lactose gets eaten up in the fermenting process.

The LDN, not incidentally, has also greatly reduced my asthma and allergy

symptoms, as well as helping with the Crohn's and preventing the normal

high number of colds, other infections, etc., that I used to get

routinely. That said, I'm quite sure that with LDN without the diet would

I would not be feeling the extent of positive effects I'm experiencing.

n

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[Guest guest]

How much did you start on?

Maureen Christensen wrote:

I started taking LDN last Tuesday evening (4/20) for

Crohn's disease. I was wondering when I should expect results. I feel

like I have been taking a sugar pill. I don't feel worse but I don't

feel better either. I have been having some back pain (started Tuesday

during the day) and have been taking Advil and Aleve for it. I know

people have suggested a change in diet but I believe that those who

have been a part of the Penn State clinical trials did not change their

diet and still had a success with the drug. I also spoke with my GI

doctor and she said that during my recent colonoscopy in March she did

look for yeast and did not find any so she didn't think that would be

an issue for me. I don't feel any worse, which I think might indicate

yeast, but I feel exactly the same. I even bought an over-the-counter

sleep aid in case I couldn't sleep and that has not been a problem

either. I don't know if I'm expecting too much too soon but I was

really hoping this would work for me.

Some have even said they lost weight on LDN (anti-craving

drug) but I don't feel myself less hungry and losing weight has always

been a problem for me.

Any help you can provide would be appreciated.

Thanks, Maureen

[Guest guest]

I forgot to mention in my initial email that I am taking 4.5 mg/night.

I started taking LDN last Tuesday evening (4/20) for Crohn's disease. I was wondering when I should expect results. I feel like I have been taking a sugar pill. I don't feel worse but I don't feel better either. I have been having some back pain (started Tuesday during the day) and have been taking Advil and Aleve for it. I know people have suggested a change in diet but I believe that those who have been a part of the Penn State clinical trials did not change their diet and still had a success with the drug. I also spoke with my GI doctor and she said that during my recent colonoscopy in March she did look for yeast and did not find any so she didn't think that would be an issue for me. I don't feel any worse, which I think might indicate yeast, but I feel exactly the same. I even bought an over-the-counter sleep aid in case I couldn't sleep and that has not been a problem either. I don't know if I'm expecting too much too soon but I was

really hoping this would work for me.

Some have even said they lost weight on LDN (anti-craving drug) but I don't feel myself less hungry and losing weight has always been a problem for me.

Any help you can provide would be appreciated.

Thanks, Maureen

[Guest guest]

Ah, OK. Just wondered if you'd only started at 1.5mg.  Most people

notice something eg. vivid dreams or slightly changed sleeping patterns

the first few days which lets them know it is in their system.  Where

are you getting it from and is there anything else you're taking that

could be working against it?

Maureen Christensen wrote:

I forgot to mention in my initial email that I am taking

4.5 mg/night.