PLS (was Re: progress report after a weekend of LDN (ME/CFS person))

March 30, 2010

Hi Fiona,

There are a number of us using LDN for PLS quite successfully. I've

been using it for over 6 years now. Are you aware of the

LDN-for-PLS-HSP group? (LDN-for-PLS-HSP )

Cheers,

On Mon, Mar 29, 2010 at 10:40, Fiona <f.hodgkiss@...>

wrote:

> My partner takes LDN for PLS. He suffers from

muscle pain, weakness, and stiffness. He started LDN two weeks ago and

as soon as he started taking it his symptoms were a little worse at

certain times but a little better at certain times. Like you, he

believes this is a sign the LDN is working and is very encouraged at

his progress so far. He is already starting to walk a little better. He

has to spend 1-2 hours every morning doing stretching exercises and he

feels the stretches, as helpful as they were before the LDN, are

helping now more than ever. I've seen similar posts by people taking

LDN. I hope you continue to improve!

>

Granted PLS is a rare condition and it isn't what I have, but there may

be some similarities. In that I have needed to do a lot of stretches,

but don't feel any overall progress. After all it's not normal to need

to stretch like an athlete, just to do short walks etc. So I certainly

relate to the need to do muscle stretches and would want the stretches

to feel more effective and progress. My husband does get concerned

about my moblity and would like to see it improve.

Fiona

Recommended Posts