Day one of LDN - tomorrow 18th March.

[Guest guest]

Dear all,

Last week I posted a query regarding LDN users in the UK and how I could go about obtaining LDN for my partner, Phil who is in his 8th year of MS which is now secondary progressive. I received some wonderful and inspiring replies - I will of course respect confidentility and not name people individually, but you know who you are as I have responded to you one by one to thank you for your help.

Through the support of this group I have managed to obtain a prescription and a supplier (Thank you, Dicksons, way up in Glasgow, for your kind, helpful and prompt attention) and Phil is going to commence his LDN journey from tomorrow evening, 18th March. He has nothing to lose, being that his Consultant was stopping his Rebif anyway as it was no longer helping him, but giving him the usual side effects of flu like symptoms etc with no benefit otherwise.

I will report back as often as I can in the hope it will help/inspire other people - I won't be able to do this on a daily basis as I work full time (days) part time (eves) and am studying for a HND as well as looking after Phil, the house and pets, and my 16 year old son, so the computer is a bit of a luxury really. I will endeavour to report back as often as I can though and definately when there are any changes to report.

In addition to this, I discovered one of the ladies I work with has a sister in law with SPMS and she was not aware of LDN at all. I have prepared a covering letter and made a little pack with lots of information and links including this group and sent it to her. I hope this goes a little way towards repaying the kindness you have all shown to Phil and myself. Thank you x