First Post - introduction, results - ME/CFIDS

[Guest guest]

Hello everyone,

I have been lurking on and off for a while. I have ME/CFIDS, FMS, and

dysautonomia (OI/POTS). Other issues but pain, fatigue and chronic infection

are biggest in that order.

I have been ill for 11 years now - about 20% on Disability Scale. Sometimes 10%

and sometimes 30%.

I was on Darvocet 100's at night and Tramadol (200mg) during the day. I tapered

off Darvocet in 2 weeks and Tramadol in about a week. Switched to Mobic and

Celebrex for pain relief along with herbal II inhibitors (Nexrutine,

Boswellia, Curcumin).

On Valtrex for Chronic EBV and HSV I. On Florinef for POTS, On Methocarbomal

for FMS. On L-theanine and GABA for correcting circadian rhythm and sleep. On

basic supplements, C, E, A, D, good multi mineral, etc. Hypothyroid on T3 only.

Mild adrenal fatigue but not on cortisol.

I began LDN (purchased without prescription at All Day Chemist).

Self-prescribing/monitoring.

Began at 1.5 mg - too much. Heart palps all night.

Dropped to 0.5mg the next three days and slightly reduced T3.

Increased to 1.0 for the next three days. Vivid, bizarre dreams, slightly less

physical discomfort. Better sleep.

Increased to 1.5 for three days. Good sleep, better pain mgmt.

Currently at 2.0 and plan to stay here for 1 week and move up 0.5mg every week

till I get to 4.5.

Good results, not enough pain relief but hope it will come at 4.5 mg dose.

Already had good sleep (thanks to l-theanine and GABA) but no disruption to

current sleep patterns. No other physical discomfort. I feel very fortunate.

----Would like advice as to dosing - too fast, too slow, just right? (Very

sensitive to meds, liver dysfunction)

----Would like advice as to other forms of pain relief - I have reviewed the

list of allowed analgesics but would like to know the combinations that people

are actually using. (I have Mobic, Celebrex, Voltaren, Baclofen, Tylenol,

Alleve, L-phenylalanine)

All the best,

Marti