newbie checking in

[Guest guest]

Hi,

I am so happy to have found LDN - it is my last hope.

I have Dermatomyositis (DX november 2006) and Scleroderma (recently diagnosed).

My DM seems to be pretty much under control, especially since I weaned myself

off prednisone.

None of my 3 docs would prescribe LDN, went via phone consult (yet to have the

consult, waiting on the paperwork).

I am most concerned about scleroderma. I know everyone is different BUT any

input would be helpful.

Mine has progressed terribly rapidly over 6 months with deformity in most

fingers (swan neck) and my thumbs - just wondering if anyone with scleroderma or

RA has regained function fully or partially in fingers after taking LDN.

thanks so much - gonna start reading past posts now to see what is happening

with you all.

rachel

[Guest guest]

,I take LDN for Multiple Sclerosis, but also take an herbal supplement called Sclero-Eze. I found this supplement online after reading of a study being done for MS. Hydrangea Root is being studied for MS and is an ingredient of Sclero-Eze. I took 2 capsules of Sclero-Eze twice a day for 4 or 5 months. When I started to run low, I reduced my dosage to 2 capsules a day. Then I ran out completely and didn't order more. After 2 weeks, my MS symptoms were considerably worse. I contacted Ervin (the man who created Sclero-Eze for his Scleroderma) and was told that the improvements can be so subtle that you don't even realize that it is helping you. Maybe I would've gotten worse anyway if I hadn't stopped taking it. But, just in case the Sclero-Eze was working, I took Ervin's suggestion and am now taking 7 capsules a day to try to reverse some of my more recent disability.So far, I'm still pretty bad, but I intend to keep taking it. You

may want to consider it for yourself. In addition to MS and Scleroderma, Ervin told me that people take it for a number of other disorders. For people with Rheumatoid Arthritis, Ankylosing Spondylitis, Psoriasis, Crohn’s, and Vasculitis, Ervin said people are responding positively in 1 to 3 months and that these illnesses are primarily inflammatory in nature.For people with Scleroderma, Fibromyalgia, Multiple Sclerosis, Mixed Connective Tissue Disease, and Lupus, positive responses are taking 2 ½ to 5 months. Per Ervin, the difference is that these illnesses involve more tissue and organ involvement. He said that those people will be able to see the difference in their blood work prior to feeling it… a Sed Rate test.Good luck!Carolynhttp://www.changshansupplement.com/From: womanofmoon <thankgod@...>low dose naltrexone Sent: Sat, April 10, 2010 11:42:34 AMSubject: [low dose naltrexone] newbie checking in

Hi,

I am so happy to have found LDN - it is my last hope.

I have Dermatomyositis (DX november 2006) and Scleroderma (recently diagnosed).

My DM seems to be pretty much under control, especially since I weaned myself off prednisone.

None of my 3 docs would prescribe LDN, went via phone consult (yet to have the consult, waiting on the paperwork).

I am most concerned about scleroderma. I know everyone is different BUT any input would be helpful.

Mine has progressed terribly rapidly over 6 months with deformity in most fingers (swan neck) and my thumbs - just wondering if anyone with scleroderma or RA has regained function fully or partially in fingers after taking LDN.

thanks so much - gonna start reading past posts now to see what is happening with you all.

rachel