Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 HI Karla: IT was great to meet you on chat last Sunday. Hope to see you again this Sunday. That is our regularly scheduled chat time, but people can set up other times if they wish, or have impromptu chats. There was one thing you wrote that did set of a bit of an alarm bell: >but her therapist says >>we need to validate her feelings and go from there. I hope it >>works. Effective treatment for OCD does not validate the feelings/thoughts/behaviors caused by OCD. IN fact E & RP is all about challenging these fears, " spitting in the eye " of OCD, and not doing what OCD tells the OCDer to do. That is not to say that we do not recognize how tremendously upsetting these feelings are for our beloved OCDers, but that they learn that these are error messages from their brain. Dr. Chansky calls this " junk mail " . Religious scrupulosity can often be best treated by including a religious advisor whom the person with OCD trusts to be their " moral compass " in designing E & RP. Good luck to Tara in her journey of learning ot boss back her scrup. I advise you to ask her CBT therapist about the goals of therapy and how you will measure success in therapy. Take care, aloha, Kathy (H) kathyh@... At 05:34 PM 11/30/2000 +0000, you wrote: >I wanted to tell you all thanks for responding to my long winded >post. It helps to know that others out there can relate. > >Tara's therapy right now is consisting of " bossing back " her fears. >Unfortunately, that is not working out real great as she feels that >is " mean. " I was also told to keep record of what so called sins she >feels she has committed to cause these bad things to happen and then >once we go back to her appointment she will show me what to do from >there. It's confusing to me because I know it is nothing she is >doing to cause these scarry things to happen but her therapist says >we need to validate her feelings and go from there. I hope it >works. > >I will definately try to come back to the chat on Sunday. I noticed >that thier was some trouble with the servers but enjoyed being >there. My only problem is that I really sometimes have a hard time >talking about it especially when other parents are going through way >harder times. Then I feel as if I am whining and I don't want to do >that but I will definately try to come to the chat again. I assume >that Sunday is the only day for the chats? > >Again, thanks for your responses. It really has helped me this >week. Do take care and I hope to see you all in chat sometime. Karla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 Hi Karla, you wrote: > I wanted to tell you all thanks for responding to my long winded > post. It helps to know that others out there can relate. Not long-winded! Type until your fingers lock up is my motto :-) > Tara's therapy right now is consisting of " bossing back " her fears. > Unfortunately, that is not working out real great as she feels that > is " mean. " I was also told to keep record of what so called sins she > feels she has committed to cause these bad things to happen and then > once we go back to her appointment she will show me what to do from > there. It's confusing to me because I know it is nothing she is > doing to cause these scarry things to happen but her therapist says > we need to validate her feelings and go from there. I hope it > works. It sounds like the therapist may be getting ready to do E & RP. Bossing back is part of this, and the record of sins might be the beginnings of a heirarchy, ranking Tara's compulsions from easiest to hardest to resist doing. How many sessions has Tara had with this therapist? Working from memory, I think Kathy H. has said, Fred Penzel has said, actual E & RP should begin within 4 or 5 sessions, or move on, you are wasting your effort and money. In my (limited) experience, even therapists who embrace E & RP like to throw some traditional " feelings " stuff in there too for good measure. I would keep an eye on this, don't let Tara's therapy head too far down the path of feelings. OCD feels bad, it shouldn't take much therapy time to validate that. By the way, my daughter also felt it was mean to do anything to " hurt " OCD. It was hard for her to begin to see OCD as the enemy rather than some poor pitiful " creature " who was mean to her unintentionally. She also feared E & RP may not work, and then OCD would get her back by becoming much worse. > I will definately try to come back to the chat on Sunday. I noticed > that thier was some trouble with the servers but enjoyed being > there. My only problem is that I really sometimes have a hard time > talking about it especially when other parents are going through way > harder times. Then I feel as if I am whining and I don't want to do > that but I will definately try to come to the chat again. I assume > that Sunday is the only day for the chats? Most of us take our turns whining and complaining, actually venting the frustration of living with OCD is healthy and a great use of the list and chat IMO. Sunday is the only scheduled chat, but the chat function is there 24/7 if you can connect with someone and suggest going there. Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Hi, . Seeing the ENT on a regular basis definitely offers some much-needed relief. I wish I could say that these regular visits prevent recurrence, but even after regular visits, he still had recurrences (although they were minor, compared to the first one). I'm not sure if there is a way to prevent cholesteatoma from returning, except keeping the ear dry. Since the age of 3, my son has had approximately six recurrences (he is now 9). The majority of these surgeries were canal wall up's, so no cutting was necessary behind the ear (thanks goodness). The last recurrence was several months ago, and the cholesteatoma was so small, the doctor removed it in his office (using numbing drops). The more frequent the appointments, the better. It had been six months between appointments for Troy and six months was definitely too long. He had had some discharge and ended up on Cipro drops for several weeks. The doctor will see him again in three months and will continue to do so until necessary. I feel confident that with the shorter time frame, we are better off. Take care, Terri (mom of Troy) -----Original Message-----From: Burnett [mailto:davidb@...]Sent: Saturday, May 17, 2003 5:07 PMcholesteatoma Subject: Thanks for your helpI am a new member to this group and have been "eavesdropping" for about a month. My 15 year old son had a tympanoplasty with ossicular reconstruction when he was about 7. This past Thursday he had a mastoidectomy and it seemed to go great. Great from the standpoint the cholsteatoma is out and he's doing well. He will have roughly 50% hearing loss, but doesn't seem to be in any discomfort and his attitude is good. After the procedure when he was 7 I just did not have a good understanding of this entire thing. I've used this group to gather a lot of informaiton this last month and it is very helpful. It's given me a number of quesitons I have asked and will ask at his post-op appointment. I do have one question. I feel some relief that he will have to undergo periodic examinations/cleanings at his ENT's office from the standpoint this won't sneak up on him in the future. Am I correct? Will these appointments prevent recurrence or just minimize the chances? Thank you all again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Hi , I had a CWD surgery on my right ear 32 yrs ago and have had no recurrence of ctoma. I have regular exams and cleanings and I keep the ear dry. I had a CWD on my left ear 2 yrs ago and have had no recurrence there either. I see my Otologist every 4 to 6 months. Even though it has been so many years since my surgery on the right ear, I still maintain the appointments so that if there is a recurrence, it can be spotted as soon as possible. Ilona Burnett <davidb@...> wrote: I am a new member to this group and have been "eavesdropping" for about a month. My 15 year old son had a tympanoplasty with ossicular reconstruction when he was about 7. This past Thursday he had a mastoidectomy and it seemed to go great. Great from the standpoint the cholsteatoma is out and he's doing well. He will have roughly 50% hearing loss, but doesn't seem to be in any discomfort and his attitude is good. After the procedure when he was 7 I just did not have a good understanding of this entire thing. I've used this group to gather a lot of informaiton this last month and it is very helpful. It's given me a number of quesitons I have asked and will ask at his post-op appointment. I do have one question. I feel some relief that he will have to undergo periodic examinations/cleanings at his ENT's office from the standpoint this won't sneak up on him in the future. Am I correct? Will these appointments prevent recurrence or just minimize the chances? Thank you all again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Hi , Welcome, and sorry you need to be here! Yes, your son should have periodic checkups at the ENT's, regular doc's don't really know what to look for. If the C-toma comes back the sooner they diagnose it the less damage it would cause.The doc may choose to put tube's in which is somewhat controversial. The idea would be to keep the eardrum from retracting, but some say it helps start c-tomas. Jane >From: " Burnett " <davidb@...> >Reply-cholesteatoma >cholesteatoma >Subject: Thanks for your help >Date: Sat, 17 May 2003 21:06:44 -0000 > >I am a new member to this group and have been " eavesdropping " for >about a month. My 15 year old son had a tympanoplasty with ossicular >reconstruction when he was about 7. This past Thursday he had a >mastoidectomy and it seemed to go great. Great from the standpoint >the cholsteatoma is out and he's doing well. He will have roughly >50% hearing loss, but doesn't seem to be in any discomfort and his >attitude is good. After the procedure when he was 7 I just did not >have a good understanding of this entire thing. I've used this group >to gather a lot of informaiton this last month and it is very >helpful. It's given me a number of quesitons I have asked and will >ask at his post-op appointment. I do have one question. I feel some >relief that he will have to undergo periodic examinations/cleanings >at his ENT's office from the standpoint this won't sneak up on him in >the future. Am I correct? Will these appointments prevent >recurrence or just minimize the chances? Thank you all again. > > > > _________________________________________________________________ Tired of spam? Get advanced junk mail protection with MSN 8. http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2010 Report Share Posted March 6, 2010 Hi All You are all great and thanks for your support, We are now top of the list unfortunatly we won nothing on the ticket but maybe next week. To add a bit of fun to all this clicking and commenting I have bought 3 lotto tickets for Next Fridays 10,000,000 euro draw and anyone who supports the proposal I have, will get an equal share in what ever the ticket win's. the numbers are at the end of this email Just click here www.ldndatabase.com/proposal.html register and click on support (Support is important) and leave a comment if you would. Just let me know you have done it and you are in next Fridays draw. If you have already signed please send me any one of the email's you have got from Your Country Your Call and you will be in tonights draw too You can check the numbers at www.lotto.ie at about 10pm GMT tonight. Please do not reply to this tread just email me direct john@... If the ticket wins under 100 euro I will pick a name from the list by picking a number 1 to what ever amount af names are there and send all the money to that person. Good luck a. 21 29 31 40 44 star 07 08 b. 04 05 09 18 42 star 03 06 c. 27 30 37 41 42 star 01 04 www.ldndatabase.com Quote Link to comment Share on other sites More sharing options...
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