Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Hi, my name is and I am wading through unfamiliar waters. This is my story: In 2002, when I was 28 I had my first flare of colitis and was soon diagnosed with chronic active colitis. I would flare once a year and have it treated by prednisone and the flare would be gone in 3 days. In 2007, following some serious stressors, I flared again, but this time, nothing helped it (all the ASA drugs, sulfazine, prednisone at doses up to 70 mg). Finally, right before I either had to have my colon removed or die, I began Remicade and I was fine 1 week after beginning it. So, I have been on Remicade and have remained in remission for 2.5 years. Last spring, my urine began to change color and we just found out I am in stage 3 kidney disease. The nephrologist recommends I stop Remicade, even though he is not SURE Remicade led to this problem. Anyway, I am looking into LDN for management of my crohn's and UC AND the kidney disease which is likely inflammation related. Does anyone have any experience with UC/C and Kidney disease and using LDN? I am very scared and desperate. I live in Houston and do not have a doctor who is willing to prescribe LDN. How do I go about getting an Rx? Thanks for any help! kelly Quote Link to comment Share on other sites More sharing options...
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