First 5 days on LDN for MS

March 24, 2010

My wonderful partner, Phil, has secondary progressive MS and the last couple of

months prior to him starting LDN were very dire indeed. His mobility was all but

over. " mobilising " consisted of lurching about from chair, to coffee table, to

window sill etc to get around indoors.Wheechair needed outdoors, always. His

concentration and memory were shot away, his spasms were ruthless, lengthy and

painful, he had chronic fatigue, occasional overwhelming depression, muscle

aches, urinary urgency/infrequency, very broken sleep patterns, severe loss of

appetite and of course loss of balance, amongst other things.

5 doses x 1.5 mg of LDN later:

Phil can walk at least 5 metres unaided (obviously still a little bit wobbly)

Can climb the stairs - 13 steps - carrying his laptop. Spasms have decreased to

the point where he no longer cries out in pain. Fatigue gone - totally. Appetite

increased to the point where I will need to get another job soon just to fund

it!! Sleeps through the night, waking only once to eat something (he is having

early dinners so LDN taken on empty stomache, therefore hungry by 2am!!) Can

crouch down and get back to standing position unaided 3 TIMES IN A ROW....

Urinary urgency/infrequency gone completely.

Can I add here, I am very aware that we are lucky to have seen so many

improvements this quickly - I also need to say that I am one of the biggest

sceptics you could ever come across and will only believe something if there is

overwhelming and concrete evidence to back up the theory. There is no way at all

I would write the above if I hadn't fully witnessed every single thing myself,

but I have. I hope that perhaps if you are considering trying LDN the above may

help you decide. (Although I know it does not work for everybody in the same

way) If there is anything else I can do to help anybody, I will. I am still very

emotional seeing the huge changes in Phil, and have found myself in tears on

several occasions when telling friends and colleagues what has happened (whereas

he is of the mindset " woo hoo, this is working - lets get on with doing some

living " )

It has been a short but overwhelming journey this first week. We are so glad we

joined this forum and so glad we tried LDN. Thank you everybody for your

support.

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