RE: [rheumatoidarthritis-low dose naltrexone] Re: RA and LDN

[Guest guest]

I am on 4.5 mg

Pat

From:

rheumatoidarthritis-low dose naltrexone

[mailto:rheumatoidarthritis-low dose naltrexone ] On Behalf Of

Sent: Thursday, April 08, 2010 6:25 PM

rheumatoidarthritis-low dose naltrexone

Cc: low dose naltrexone

Subject: Re: [rheumatoidarthritis-low dose naltrexone] Re:

[low dose naltrexone] RA and LDN

WHAT DOSAGE OF LDN IS EVERYONE ONE? Thanks!

On Thu, Apr 8, 2010 at 1:37 PM, Kathe Brenay <kbrenay22@...> wrote:

Krystyna:

I was injecting .8 ml methotrexate per week until I heard about and

researched LDN. I watched quite a few YouTube videos, I listened to an

hour radio broadcast where Sherri White was being interviewed and was able to

introduce the listeners to LDN and tell of her experience with MS and LDN, and

I've gone to the LDN on-line data bases where you can view lots and lots of

first-hand info regarding names, age, sex, diagnosed with/date, meds

taken, when started LDN, the experience with LDN, and whether that person will

continue on LDN and why, and date entered so one can see how current

the data base information is.

I quit injecting - HAPPILY! - on Feb. 7th and on February 10th I ordered LDN

without a prescription from (I thought) Canada. It was to come Express

Mail to me here on St. in the US Virgin Islands in 7-10 days. It

didn't come and didn't come. Long story short, I was without methotrexate

(the only thing I had been taking except an occasional Advil) for 5

weeks before I finally received the LDN! I am having a very,

very difficult time with pain. I started LDN at 1.5 ml, got overly

anxious and possibly increased the dose too quickly and actually vomited and

sweat profusely for a few minutes. And then it was over with no other

problems other than I was scared. So I wrote this wonderful Group and

they suggested that I skip one night of LDN and go back to 1.5

ml. I did that for a long while, then to 2.5 ml for a few nights, then to

3.5 for a while, and last night I finally made it to 4.5 ml!! I

never expected I would go to 4.5 ml but here I am, still hoping for

improvement.

I read every post and have been so full of pain that I didn't feel like

replying... and I certainly don't want to be a wet blanket. I

believe LDN will work for the RA in my body. Wish me luck at 4.5 ml.

SO... Krystyna, here is my 2 cents worth of advice: Don't stop

the methotrexate until you have the LDN in your hands! It was my

intension to stop 2 weeks before I started LDN. You can make up your own

mind, because you know your body.

The very best to you! Let us know how you do.

Kathe

low dose naltrexone ;

rheumatoidarthritis-low dose naltrexone

From: mschooling@...

Date: Wed, 7 Apr 2010 23:46:29 -0700

Subject: [rheumatoidarthritis-low dose naltrexone] Re: [low dose naltrexone] RA and

LDN

Some members of the RA-ldn group

have weaned, or are weaning themselves off at least some of the meds you

mention so I'm copying this there. There's also discussion of the question in

past messages. The address is rheumatoidarthritis-low dose naltrexone/

As for diet, there doesn't seem to be one single answer, although perhaps red

meat (beef, pork) is one that most members learn to avoid. Also going gluten

and sometimes dairy free helps some. But perhaps the most important is to eat

fresh, preferably organic (i.e. not processed foods) if you don't already and

some people have found some relief by only eating raw foods.

I think most members use high quality omega 3 with high epa and dha (I get mine

from iHerb.com). Before I could get hold of my LDN last year I took that with

Vit E 400 and was amazed at how it helped reduce the inflammation. Vit D3 is

another one you might like to check out - currently being discussed.

A point that comes over loud and clear is we have to learn to " listen

to " our own bodies. When we take LDN it helps our unique immune system

deal with the unique situation in our bodies.

Good luck

Margaret

From: Krystyna Kukielka <kak@...>

" low dose naltrexone " <low dose naltrexone >

Sent: Wed, April 7, 2010 10:44:47 PM

Subject: [low dose naltrexone] RA and LDN

Hello everyone,

I was diagnosed with RA a little over 5 years ago. I'm on

methotrexate, sulfasalazine and hydroxychloriquine.

What should I do to switch to LDN?

How long do I have to wait after quitting the methotrexate? How should

I modify mu diet, etc.?

I appreciate all the information you can give me, I like to know as

much as possible before I start.

Thank you,

Krystyna

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