Re: ldn for Ehler-Danlos syndrome

[Guest guest]

I've visited your site and have to congratulate you. I have to use google translation which is sometime very good, sometimes makes no sense at all, but it's better than nothing.MargaretFrom: z100a2002 <zahavi100@...>low dose naltrexone Sent: Fri, February 19, 2010 10:10:41 AMSubject:

[low dose naltrexone] ldn for Ehler-Danlos syndrome

Nice results with LDN for Ehler-Danlos syndrome.

A person with Ehler-Danlos syndrome that takes part in my forum was advised by me to go to a doctor who works with bio-identical hormones and to ask also for LDN. She immediately got LDN and nothing else before the results of the tests were known.

Now, a few months later, she wrote her results. She used to have a lot of pains and no medication would help. When she started LDN the pains decreased dramatically, after a few days she slept the whole night through and she had lively dreams. After 30 years of severe pains it was strange for her to have so much less pain.

Ehler-Danlos syndrome is no auto-immune disease, but the endorphines probably help with the pains. One more wonderful result with LDN.

For people in the Netherlands and the neighbouring countries who want help with LDN and a prescribing doctor here is an extra address:

http://hormonaledis bal.forum2go. nl/low-dose- naltrexone- ldn-c6.html

[Guest guest]

thank you

[Guest guest]

It's strange you should mention EDS. I was doing some reading on the

pathobiology of collagen while researching Crohn's disease, and of course EDS

crops up. If the researcher Alan Ebringer is correct, Crohn's and ankylosing

spondylitis are ultimately diseases of collagen, presumably genetic with a

strong microbial link- a link that ultimately lies in diet (too many starches,

too many carbohydrates). It is conceivable that EDS is similar in that there is

a genetic component, but only once certain environmental conditions are met (for

example, diet) does disability appear.

In this context, if there is a microbial link of some sort (as with Klebsiella

pneumoniae in Crohn's disease and ankylosing spondylitis, group B streptococcus

in rheumatic heart disease, a variety of organisms in Reiter's syndrome, Proteus

mirabilis in rheumatic arthritis, and possibly Chlamydia pneumoniae in multiple

sclerosis), then perhaps naltrexone is helping by boosting the immune system and

allowing for the proper " defense " to be provided against these organisms- or at

least tipping the immune response in favor of the host, rather than resulting in

inflammation and disability.

Pure conjecture, but speculation that is rooted in scientific research. Check

out " molecular mimicry, " particularly with rheumatic fever and Reiter's

syndrome. Creepy stuff, and it's probably causing more damage than anyone- even

me- suspects.

[Guest guest]

thank you very much for the theory/explanation.it is intresting that ny wife has AS and the diet was carb diet.bread,potatoes,cookies,cakes.

colgen problems has to do also with stress,you can find it when you read about adrenal fatigue.you can find some info in the site of dr rind

[Guest guest]

>

> thank you very much for the theory/explanation.it is intresting that ny wife

has AS and the diet was carb diet.bread,potatoes,cookies,cakes.

> colgen problems has to do also with stress,you can find it when you read about

adrenal fatigue.you can find some info in the site of dr rind

>

If Ebringer is right, then AS and CD are more closely related than anyone

thinks- many people with AS have intestinal ulcers, and many people with CD have

spine and arthritis problems. Of course, many people with CD believe that their

symptoms get worse with stress- so it would not be out of line for folks with AS

to have worse problems with stress, too.

ly, they're probably the same disease, separated by HLA-B27; your wife is

most likely in the ~4% of the population that is HLA-B27 positive. Almost all

Crohnies are HLA-B27 negative.

Anyway- if what Ebringer says is correct, taking out the starch stops feeding

the Klebsiella, and the autoimmune reaction slowly damps down. This can take

several months, and I suspect that a very low carb diet (on top of removing all

starch, and all grains) is required for greatest efficacy. I have no proof of

that assertion, along with the next one: naltrexone probably helps.

Good luck and best wishes.

[Guest guest]

thank you again for the info. part of it is not new to me. the only thing is that we have to make compromises in life. after being treated for many years (12) with NSAID's and after that prednison for 22 years considerable damage has been done to the gut and digestive system. many of the food sources for proteins can't be used and also with adrenal problems without some carbs there is no energy. LDN plus 3 x 500 mg d-phenylalanine cut most of the pain.

[Guest guest]

again dr mercola mention ldn for ms and dr berkson

http://articles.mercola.com/sites/articles/archive/2010/02/25/ms-drug-continues-to-cause-disastrous-side-effects.aspx