Re: Re: Hostile Take over time.

[Guest guest]

I know of two Drs in the UK who have submitted applications for

trials for LDN with the MS Society and both got turned down – what was

submitted didn’t meet their criteria. Now they have changed their goalposts

and will only support research applications from academic institutions. This

happened once LDN started getting a lot of media awareness.

Odd that?!

Jayne Crocker

Chairperson

www.LDNNow.com

Important! Please sign our LDN petition to the

European Parliament by clicking here (please note no funding

required, please ignore the second page)

tel: +44 (0) 7877 492 669

Dr Steele MBE, talking about LDN

LDNNow are a political/pressure group of individuals dedicated

to getting Low Dose Naltrexone (LDN) accepted into modern medicine and trialled

for the myriad of uses it shows benefit for.

..

From: low dose naltrexone

[mailto:low dose naltrexone ] On Behalf Of FrancieS

Sent: 04 April 2010 16:06

low dose naltrexone

Subject: [low dose naltrexone] Re: Hostile Take over time.

As a person who will no longer donate to the MS

Society, I do understand a part of the problem. They can support only those

proposals sent to them. As far as I can see, nobody has proposed a trial that

is in the realm that they can support financially. It is hard to bitch about

being turned down if we have never asked, right? I might be wrong in this and

they have refused funding to a valid test, but I have not heard about that. If

we want the MS Society to support testing for LDN, we have to send them a test

in the proper format.

Is there a way to do this? Can we do some brain storming on it? Then if they

turn it down, we can raise heck over that too. " Any publicity is good

publicity. "

Francie

http://www.LDN-for-MS.com

> I have been following the disscussion of how the ms society does and knows

very little for us who have ms. I agree 100% and feel something must be done.

They continue to stick their head in the ground about LDN, CCSVI and diet and

anything that might help us besides letting us inject our bodys with harmful

expensive drugs that make us sicker than better.

>

> Now the question of the day is. How do we the sick people take control of

the ms society and run it for the patients and not for the big pharma

companies? They have our money and are filling their pockets and the pockets of

big pharma.

>

> We need to get LDN trials and CCSVI testing available and need it done

NOW. We should not have to go to Poland or elesewhere to have CCSVI done or

fight with our doctors to get on LDN. Two very important things for people with

ms.

>

[Guest guest]

I was under the impression that almost all the "research societies" such as American Cancer Society or MS Society were under the influence of big pharma, which would explain why they would have no interest in something that promotes no profits for them.

Please advise if I am incorrect.

[low dose naltrexone] Re: Hostile Take over time.

i think you are wrong and they were asked many times

[Guest guest]

On Sun, 04 Apr 2010 18:40:22 -0300, Joanne <jo.murphy@...>

wrote:

> I was under the impression that almost all the " research societies " such

> as American Cancer Society or MS Society were under the influence of big

> pharma, which would explain why they would have no interest in something

> that promotes no profits for them.

>

> Please advise if I am incorrect.

>

No, you're not incorrect. (And that includes the Crohn's and Colitis

Foundation of America. They're pretty much useless for Crohn's patients,

in my view -- being one myself.)

n

> [low dose naltrexone] Re: Hostile Take over time.

>

>

>

> i think you are wrong and they were asked many times

>

--

______________________________

A funny, touching gift book for cat lovers. Signed copies, free shipping

(U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the

10 Cats Who Caused My Addiction by n Van Til

www.wordpowerpublishing.com

[Guest guest]

I have colitis and our group has been pretty useless too. Debbie

Sent from my iPhone

On Apr 4, 2010, at 7:16 PM, " n Van Til " <mvantil@...>

wrote:

>

>

> On Sun, 04 Apr 2010 18:40:22 -0300, Joanne <jo.murphy@...

> >

> wrote:

>

>> I was under the impression that almost all the " research societies "

>> such

>> as American Cancer Society or MS Society were under the influence

>> of big

>> pharma, which would explain why they would have no interest in

>> something

>> that promotes no profits for them.

>>

>> Please advise if I am incorrect.

>>

> No, you're not incorrect. (And that includes the Crohn's and Colitis

> Foundation of America. They're pretty much useless for Crohn's

> patients,

> in my view -- being one myself.)

>

> n

>

>> [low dose naltrexone] Re: Hostile Take over time.

>>

>>

>>

>> i think you are wrong and they were asked many times

>>

>

>

> --

>

> ______________________________

>

>

> A funny, touching gift book for cat lovers. Signed copies, free

> shipping

> (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With

> the

> 10 Cats Who Caused My Addiction by n Van Til

> www.wordpowerpublishing.com

>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

In my opinion it also applies to arthritis charities. When I asked one why they didn't discuss LDN they said it hadn't been approved so its inclusion would be against their guidelines. As it is their message is stay cheerful, eat properly, exercise, buy gadgets to help in the house and do what your doctor tells you to.The idea that LDN can help is of no interest to them whatever.MargaretFrom: Debbie Del Priore <Delp4all@...>n Van Til <mvantil@...>Cc: "low dose naltrexone " <low dose naltrexone >Sent: Mon, April 5, 2010 5:20:20 PMSubject: Re: [low dose naltrexone] Re: Hostile Take over time.

I have colitis and our group has been pretty useless too. Debbie

Sent from my iPhone

On Apr 4, 2010, at 7:16 PM, "n Van Til" <mvantilroadrunner (DOT) com>

wrote:

>

>

> On Sun, 04 Apr 2010 18:40:22 -0300, Joanne <jo.murphycomcast (DOT) net

> >

> wrote:

>

>> I was under the impression that almost all the "research societies"

>> such

>> as American Cancer Society or MS Society were under the influence

>> of big

>> pharma, which would explain why they would have no interest in

>> something

>> that promotes no profits for them.

>>

>> Please advise if I am incorrect.

>>

> No, you're not incorrect. (And that includes the Crohn's and Colitis

> Foundation of America. They're pretty much useless for Crohn's

> patients,

> in my view -- being one myself.)

>

> n

>

>> [low dose naltrexone] Re: Hostile Take over time.

>>

>>

>>

>> i think you are wrong and they were asked many times

>>

>

>

> --

>

> ____________ _________ _________

>

>

> A funny, touching gift book for cat lovers. Signed copies, free

> shipping

> (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With

> the

> 10 Cats Who Caused My Addiction by n Van Til

> www.wordpowerpublis hing.com

>

>

>

>

>

> ------------ --------- --------- ------

>

>

[Guest guest]

I'm such a cynic with all these organizations "to find the cure"....ha ha .....these folks on top make high 6figure salaries....and then there's the Jerry type telethons...forget it. They don't get a penny from me. It's sad but TRUE.

[low dose naltrexone] Re: Hostile Take over time.>>>>>>>> i think you are wrong and they were asked many times>>>>> -- >> ____________ _________ _________>>> A funny, touching gift book for cat lovers. Signed copies, free > shipping> (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With > the> 10 Cats Who Caused My Addiction by n Van Til> www.wordpowerpublis hing.com>>>>>> ------------ --------- --------- ------>>