Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Thank you for sharing your experience. This is great news! I am hoping to find a doctor who would do the same procedure here in Seattle. All the best! > > I just wanted to share my experience of getting the proper diagnosis for ccsvi. I had three tests which indicated no stenosis including a ct scan, ultrasound , and mrv of the neck. I was told not to pursue but I asked to perform one more test to verify stenosis of the azygous vein. When the venogram was performed , they found stenosis of the azygous but also stenosis of the right jugular vein. The doctor became a believer and performed the angioplasty. The diagnosis used was venous stenosis not ccsvi. The angioplasty was strictly ballooning and no stents placed. A reporter covered the story and will be posted in a well known paper in the USA. My doctors included a vascular surgeon and interventional radiologist. Dr. Simon , an amazing doctor, performed the venogram and the angioplasty. He was very excited about the new theory. The procedures wereperformed at Jfk medical center in Edison, NJ. Please note the venogram is the best test to verify stenosis. Otherwise, like me , you will not find results. I will continue on Ldn but I do believe in Dr. Zamboni's theory of CCSVI. I wish you all the best and I hope we all cured of this horrible monster known as ms. Between the Ldn and the angioplasty, I believe that I am cured. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.