disappointed about having to use Prednisone for kidney deterioration

March 8, 2010

I just got my LDN in the mail last Thursday and began to take it for my UC/C.

Although I was a little jittery and experienced a racing heart the first couple

of days (I believe due to undiagnosed hypothyroidism and adrenal fatigue), I was

so glad to be able to use it and felt like it made a difference in my fatigue,

even on low doses (1 ml, 2ml). My kidney function is worsening, however, and

quite quickly, so I have to use some immunosuppressants for a bit to get that

under control; else begin dialysis and then have a transplant. i REALLY hate

them, and am looking forward to the day when I can taper them off and begin

again with LDN. I am having trouble finding a protocol for this. Does anyone

have any experience doing this on their own? My Doctors are NOT on board with

the LDN at all, so I am pretty sure I cannot rely on them to help me do it

safely. I will start prednisone this afternoon at 40 mg, after some blood tests

are done. In the past, I have responded quite well to prednisone, but my

kidneys have been inflamed for almost a year, so I might be using prednisone for

quite some time and maybe another immunosuppressant with it. I am hoping that

won't be the case, but I am already formulating a plan to taper off all of that

crap when I am stable and begin the LDN again. I just need some guidance. I

realize none of you are doctors, but if you have a former experience with this,

and can help, that would be great. Do I need to wait 8 weeks after tapering the

prednisone before beginning the LDN, like I did when I was on Remicade? Thanks,

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