Re: What are most people ill here with?

[Guest guest]

I began taking LDN because I have MS.  However, I am hopeful it might help my osteoarthritis, asthma, allergies (all autoimmune disorders), and also my Restless Leg Syndrome and depression.  There have been a lot of reports of improvement with these other disease processes I have.  I have only been on LDN for about 5 weeks, and am starting low in order to let my body adjust and hopefully then not have to deal with any side effects.  I'm up to 1.5 mg nightly, and have had no problems.  I know lots of folks feel that is a wimpy way to start, but I want this to work, and I want to not have to put up with side effects if at all possible.  So for me, that's what works.  No changes so far, negative or positive, but my dose is so low yet, so I don't expect any changes yet.

On another note, my neuro refused to prescribe, but my family practice doc is on board.  Just saw the neuro last week and she really pushed that I should go back on the Copaxone.  And also stressed that she does not support the LDN, but that of course it is my decision.  Just basically doing the " cover your butt " stuff, I think.

Wisconsin, USA  On 28 March 2010 10:20, Fiona <f.hodgkiss@...> wrote:

 

I was wondering what most people are ill with? What's the biggest patient group/diagnosis that's using LDN?

The thing is I have ME/CFS and was told I had " atypical fibromyalgia " . I don't really buy the latter as a diagnosis, it was more of a bull**** fob-off and I know a lot of the pain has related to being hypothyroid, being a poor thyroid hormone converter. In addition to my thyroid problems, I have low adrenal reserve. I also have asthma.

I get the impression that people are taking LDN for various reasons actually but there seems to be a lot of MS talk and that MS people are hoping to halt their MS progression with it.

There is so much to learn.

Fiona