Re: Why I will stop LDN (also MOLD concerns)

[Guest guest]

i am one of those on LDN, LIVING IN A MOLDY HOUSE AND DIDNT EVEN KNOW IT.

MY DOCTOR HAD ME GET THE TEST KITS, AND EVEN THOUGH IT TOOK ALL OUR SAVINGS, WE HAD IT REMOVED...U MUST GET RID OF THE MOLD.!

I STAYED ON LDN THOUGH BECAUSE I WAS BED BOUND AT THAT POINT...I AM SLOWLY IMPROVING...TOO SLOW BUT AFTER I LEARNED WHAT MOLD CAN DO TO THE BODY, THERE WAS REALLY NO CHOICE.

TERRI

From: Wales <samologist@...>Subject: [low dose naltrexone] Why I will stop LDN (also MOLD concerns)low dose naltrexone Date: Thursday, March 18, 2010, 10:58 PM

I am stopping LDN now. I took it for one month.Concerned about mold.3 times I had severe nausea for many hours, followed byvomiting. It was accompanied by bad sinuses, bad mold, IBS,diarrhea, and whole-body sweating. I often have low levelnausea (occasionally moderate), bad sinuses, bad mold,varying IBS, and abdominal / pelvic sweating, but it isunusual to have the severe nausea and vomiting.The third time, I just could not vomit for a long time. Astrange type of non-vomit-feeling partial regurgitation waseasy, but it wasn't much. When I finally did vomit, thestomach contents were large, despite not eating for hours.I wonder if there was some type of delayed gastric emptying.Benadryl and licorice failed to make a dent in the nausea.I don't know for sure that it is the LDN that caused that,but it seems likely. I have heard of people getting viralsymptoms on LDN, and

perhaps pushing through it is correct.But this time it felt like the right thing to do was tostop.I am concerned about whether LDN is appropriate for people,like me, who have SEVERE mold issues. I have been takingLamisil tablets (for 10 years), Nystatin tablets (for 5 orso years), and caprylic acid (for a couple of years).Despite that, I have mold in the lungs that cause chroniccough, frequent bad sinuses (shows up on MRI and CT) andmany other mold symptoms.I don't want LDN to make that worse.My dosage:- I take Benadryl every other night- On Benadryl nights, I can take about 1.5mg LDN withoutbad experiences during the night. Perhaps I could domore.- On non-Benadryl nights, I can take about 0.5mg LDNwithout experiencing migrating pain through the night.I don't think I could do more.I had brief periods of feeling an effect that is logical toattribute to

LDN. It was nice, but brief, and not worth theother times.I felt some kind of effect the other times. Hard todescribe. Maybe as if the receptors were still blocked, butat this dose, I don't know if that is possible. (Our bodiesdo vary, however. Perhaps some people do not metabolize thedrug quickly enough.) I felt a slight lessening ofallergies, a kind of less-pleasant Benadryl feeling, withouta positive effect on mold.I might restart LDN later, but want a good reason.I don't know for certain what diseases I have, but I fitsevere (bedbound, /very strict/ Canadian criteria,definitely less than 10 on the Bell scale) M.E. and Lyme,and there are other strong possibilities, including immuneissues. I am concerned that there appears to be littleinformation about LDN for these conditions in particular --and for mold issues. I was not able to do enough researchto confirm.I

definitely believe all the people who experience an effecton VLDN. Whatever study showed that d<1.5mg has no effectcan't have been right for everybody.I don't buy the idea that we know that LDN is safe and canonly have a beneficial effect, especially when it has notbeen studied for one's disease. However, when you aredesperate enough, it is only logical to consider the cost /benefit of LDN. I tried it. Did I try it enough?If any of you want to address the mold issues or encourageme to stick with LDN, please do. I would like to learn moredirectly from you who have experienced LDN.-- Q: How many CDC "scientists" does it take to change a lightbulb?A: "You only think it's dark." [CDC has denied a deadly disease for 25 years]==========Retrovirus: http://www.wpinstit ute.org/xmrv/

index.html

[Guest guest]

have you tried using colloidal silver? along with LDN?

pretty good antiviral, antifungal, wide spectrum immune enhancer/modulator.

in my experience and also reading it helps with neuro & autoimmune issues.

have to use enough to be effective, which is at least a few ounces/day and

NOT teaspoons... affordable and even cheap if you make your own.

not so great for lyme, but maybe helpful.

digestive enzymes might help???

> [low dose naltrexone] Why I will stop LDN (also MOLD concerns)

>

> I am stopping LDN now. I took it for one month.

>

> Concerned about mold.

>

> 3 times I had severe nausea for many hours, followed by

> vomiting. It was accompanied by bad sinuses, bad mold, IBS,

> diarrhea, and whole-body sweating. I often have low level

> nausea (occasionally moderate), bad sinuses, bad mold,

> varying IBS, and abdominal / pelvic sweating, but it is

> unusual to have the severe nausea and vomiting.

>

> The third time, I just could not vomit for a long time. A

> strange type of non-vomit-feeling partial regurgitation was

> easy, but it wasn't much. When I finally did vomit, the

> stomach contents were large, despite not eating for hours.

> I wonder if there was some type of delayed gastric emptying.

> Benadryl and licorice failed to make a dent in the nausea.

>

> I don't know for sure that it is the LDN that caused that,

> but it seems likely. I have heard of people getting viral

> symptoms on LDN, and perhaps pushing through it is correct.

> But this time it felt like the right thing to do was to

> stop.

>

> I am concerned about whether LDN is appropriate for people,

> like me, who have SEVERE mold issues. I have been taking

> Lamisil tablets (for 10 years), Nystatin tablets (for 5 or

> so years), and caprylic acid (for a couple of years).

> Despite that, I have mold in the lungs that cause chronic

> cough, frequent bad sinuses (shows up on MRI and CT) and

> many other mold symptoms.

>

> I don't want LDN to make that worse.

>

> My dosage:

>

> - I take Benadryl every other night

> - On Benadryl nights, I can take about 1.5mg LDN without

> bad experiences during the night. Perhaps I could do

> more.

> - On non-Benadryl nights, I can take about 0.5mg LDN

> without experiencing migrating pain through the night.

> I don't think I could do more.

>

> I had brief periods of feeling an effect that is logical to

> attribute to LDN. It was nice, but brief, and not worth the

> other times.

>

> I felt some kind of effect the other times. Hard to

> describe. Maybe as if the receptors were still blocked, but

> at this dose, I don't know if that is possible. (Our bodies

> do vary, however. Perhaps some people do not metabolize the

> drug quickly enough.) I felt a slight lessening of

> allergies, a kind of less-pleasant Benadryl feeling, without

> a positive effect on mold.

>

> I might restart LDN later, but want a good reason.

>

> I don't know for certain what diseases I have, but I fit

> severe (bedbound, /very strict/ Canadian criteria,

> definitely less than 10 on the Bell scale) M.E. and Lyme,

> and there are other strong possibilities, including immune

> issues. I am concerned that there appears to be little

> information about LDN for these conditions in particular --

> and for mold issues. I was not able to do enough research

> to confirm.

>

> I definitely believe all the people who experience an effect

> on VLDN. Whatever study showed that d<1.5mg has no effect

> can't have been right for everybody.

>

> I don't buy the idea that we know that LDN is safe and can

> only have a beneficial effect, especially when it has not

> been studied for one's disease. However, when you are

> desperate enough, it is only logical to consider the cost /

> benefit of LDN. I tried it. Did I try it enough?

>

> If any of you want to address the mold issues or encourage

> me to stick with LDN, please do. I would like to learn more

> directly from you who have experienced LDN.

>

>

>

> --

> Q: How many CDC " scientists " does it take to change a lightbulb?

> A: " You only think it's dark. " [CDC has denied a deadly

> disease for 25 years]

> ==========

> Retrovirus: http://www.wpinstitute.org/xmrv/index.html

>

[Guest guest]



Bleach does a great job on the walls. I had issues some years back. Bad Stuff....

[low dose naltrexone] Why I will stop LDN (also MOLD concerns)low dose naltrexoneDate: Thursday, March 18, 2010, 10:58 PM

I am stopping LDN now. I took it for one month.Concerned about mold.3 times I had severe nausea for many hours, followed byvomiting. It was accompanied by bad sinuses, bad mold, IBS,diarrhea, and whole-body sweating. I often have low levelnausea (occasionally moderate), bad sinuses, bad mold,varying IBS, and abdominal / pelvic sweating, but it isunusual to have the severe nausea and vomiting.The third time, I just could not vomit for a long time. Astrange type of non-vomit-feeling partial regurgitation waseasy, but it wasn't much. When I finally did vomit, thestomach contents were large, despite not eating for hours.I wonder if there was some type of delayed gastric emptying.Benadryl and licorice failed to make a dent in the nausea.I don't know for sure that it is the LDN that caused that,but it seems likely. I have heard of people getting viralsymptoms on LDN, and perhaps pushing through it is correct.But this time it felt like the right thing to do was tostop.I am concerned about whether LDN is appropriate for people,like me, who have SEVERE mold issues. I have been takingLamisil tablets (for 10 years), Nystatin tablets (for 5 orso years), and caprylic acid (for a couple of years).Despite that, I have mold in the lungs that cause chroniccough, frequent bad sinuses (shows up on MRI and CT) andmany other mold symptoms.I don't want LDN to make that worse.My dosage:- I take Benadryl every other night- On Benadryl nights, I can take about 1.5mg LDN withoutbad experiences during the night. Perhaps I could domore.- On non-Benadryl nights, I can take about 0.5mg LDNwithout experiencing migrating pain through the night.I don't think I could do more.I had brief periods of feeling an effect that is logical toattribute to LDN. It was nice, but brief, and not worth theother times.I felt some kind of effect the other times. Hard todescribe. Maybe as if the receptors were still blocked, butat this dose, I don't know if that is possible. (Our bodiesdo vary, however. Perhaps some people do not metabolize thedrug quickly enough.) I felt a slight lessening ofallergies, a kind of less-pleasant Benadryl feeling, withouta positive effect on mold.I might restart LDN later, but want a good reason.I don't know for certain what diseases I have, but I fitsevere (bedbound, /very strict/ Canadian criteria,definitely less than 10 on the Bell scale) M.E. and Lyme,and there are other strong possibilities, including immuneissues. I am concerned that there appears to be littleinformation about LDN for these conditions in particular --and for mold issues. I was not able to do enough researchto confirm.I definitely believe all the people who experience an effecton VLDN. Whatever study showed that d<1.5mg has no effectcan't have been right for everybody.I don't buy the idea that we know that LDN is safe and canonly have a beneficial effect, especially when it has notbeen studied for one's disease. However, when you aredesperate enough, it is only logical to consider the cost /benefit of LDN. I tried it. Did I try it enough?If any of you want to address the mold issues or encourageme to stick with LDN, please do. I would like to learn moredirectly from you who have experienced LDN.-- Q: How many CDC "scientists" does it take to change a lightbulb?A: "You only think it's dark." [CDC has denied a deadly disease for 25 years]==========Retrovirus: http://www.wpinstitute.org/xmrv/index.html

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.791 / Virus Database: 271.1.1/2755 - Release Date: 03/18/10 12:33:00

[Guest guest]

You should join the LDN Forum and ask , she will help you

http://ldn.proboards.com/index.cgi

>

> I am stopping LDN now. I took it for one month.

>

> Concerned about mold.

>

> 3 times I had severe nausea for many hours, followed by

> vomiting. It was accompanied by bad sinuses, bad mold, IBS,

> diarrhea, and whole-body sweating. I often have low level

> nausea (occasionally moderate), bad sinuses, bad mold,

> varying IBS, and abdominal / pelvic sweating, but it is

> unusual to have the severe nausea and vomiting.

>

> The third time, I just could not vomit for a long time. A

> strange type of non-vomit-feeling partial regurgitation was

> easy, but it wasn't much. When I finally did vomit, the

> stomach contents were large, despite not eating for hours.

> I wonder if there was some type of delayed gastric emptying.

> Benadryl and licorice failed to make a dent in the nausea.

>

> I don't know for sure that it is the LDN that caused that,

> but it seems likely. I have heard of people getting viral

> symptoms on LDN, and perhaps pushing through it is correct.

> But this time it felt like the right thing to do was to

> stop.

>

> I am concerned about whether LDN is appropriate for people,

> like me, who have SEVERE mold issues. I have been taking

> Lamisil tablets (for 10 years), Nystatin tablets (for 5 or

> so years), and caprylic acid (for a couple of years).

> Despite that, I have mold in the lungs that cause chronic

> cough, frequent bad sinuses (shows up on MRI and CT) and

> many other mold symptoms.

>

> I don't want LDN to make that worse.

>

> My dosage:

>

> - I take Benadryl every other night

> - On Benadryl nights, I can take about 1.5mg LDN without

> bad experiences during the night. Perhaps I could do

> more.

> - On non-Benadryl nights, I can take about 0.5mg LDN

> without experiencing migrating pain through the night.

> I don't think I could do more.

>

> I had brief periods of feeling an effect that is logical to

> attribute to LDN. It was nice, but brief, and not worth the

> other times.

>

> I felt some kind of effect the other times. Hard to

> describe. Maybe as if the receptors were still blocked, but

> at this dose, I don't know if that is possible. (Our bodies

> do vary, however. Perhaps some people do not metabolize the

> drug quickly enough.) I felt a slight lessening of

> allergies, a kind of less-pleasant Benadryl feeling, without

> a positive effect on mold.

>

> I might restart LDN later, but want a good reason.

>

> I don't know for certain what diseases I have, but I fit

> severe (bedbound, /very strict/ Canadian criteria,

> definitely less than 10 on the Bell scale) M.E. and Lyme,

> and there are other strong possibilities, including immune

> issues. I am concerned that there appears to be little

> information about LDN for these conditions in particular --

> and for mold issues. I was not able to do enough research

> to confirm.

>

> I definitely believe all the people who experience an effect

> on VLDN. Whatever study showed that d<1.5mg has no effect

> can't have been right for everybody.

>

> I don't buy the idea that we know that LDN is safe and can

> only have a beneficial effect, especially when it has not

> been studied for one's disease. However, when you are

> desperate enough, it is only logical to consider the cost /

> benefit of LDN. I tried it. Did I try it enough?

>

> If any of you want to address the mold issues or encourage

> me to stick with LDN, please do. I would like to learn more

> directly from you who have experienced LDN.

>

>

>

> --

> Q: How many CDC " scientists " does it take to change a lightbulb?

> A: " You only think it's dark. " [CDC has denied a deadly disease for 25 years]

> ==========

> Retrovirus: http://www.wpinstitute.org/xmrv/index.html

>

[Guest guest]

If you think the mold is a small problem and decide to try and rid your home of it yourself, i would still get a test kit afterwords and that way you will know if its gone or if there is more you just dont see. And if you do it yourself, wear a mask over your nose and mouth so you dont breath in any airborne mold as you clean. Also if you have a large fan, use it to pull out the old air in your home...(cross ventilation)....that will help too. The man that did our home started by pulling out old air as they demolded our home.

be careful and i wish u the best.

terri

From: Wales <samologist@...>Subject: [low dose naltrexone] Why I will stop LDN (also MOLD concerns)low dose naltrexone Date: Thursday, March 18, 2010, 10:58 PM

I am stopping LDN now. I took it for one month.Concerned about mold.3 times I had severe nausea for many hours, followed byvomiting. It was accompanied by bad sinuses, bad mold, IBS,diarrhea, and whole-body sweating. I often have low levelnausea (occasionally moderate), bad sinuses, bad mold,varying IBS, and abdominal / pelvic sweating, but it isunusual to have the severe nausea and vomiting.The third time, I just could not vomit for a long time. Astrange type of non-vomit-feeling partial regurgitation waseasy, but it wasn't much. When I finally did vomit, thestomach contents were large, despite not eating for hours.I wonder if there was some type of delayed gastric emptying.Benadryl and licorice failed to make a dent in the nausea.I don't know for sure that it is the LDN that caused that,but it seems likely. I have heard of people getting viralsymptoms on LDN, and

perhaps pushing through it is correct.But this time it felt like the right thing to do was tostop.I am concerned about whether LDN is appropriate for people,like me, who have SEVERE mold issues. I have been takingLamisil tablets (for 10 years), Nystatin tablets (for 5 orso years), and caprylic acid (for a couple of years).Despite that, I have mold in the lungs that cause chroniccough, frequent bad sinuses (shows up on MRI and CT) andmany other mold symptoms.I don't want LDN to make that worse.My dosage:- I take Benadryl every other night- On Benadryl nights, I can take about 1.5mg LDN withoutbad experiences during the night. Perhaps I could domore.- On non-Benadryl nights, I can take about 0.5mg LDNwithout experiencing migrating pain through the night.I don't think I could do more.I had brief periods of feeling an effect that is logical toattribute to

LDN. It was nice, but brief, and not worth theother times.I felt some kind of effect the other times. Hard todescribe. Maybe as if the receptors were still blocked, butat this dose, I don't know if that is possible. (Our bodiesdo vary, however. Perhaps some people do not metabolize thedrug quickly enough.) I felt a slight lessening ofallergies, a kind of less-pleasant Benadryl feeling, withouta positive effect on mold.I might restart LDN later, but want a good reason.I don't know for certain what diseases I have, but I fitsevere (bedbound, /very strict/ Canadian criteria,definitely less than 10 on the Bell scale) M.E. and Lyme,and there are other strong possibilities, including immuneissues. I am concerned that there appears to be littleinformation about LDN for these conditions in particular --and for mold issues. I was not able to do enough researchto confirm.I

definitely believe all the people who experience an effecton VLDN. Whatever study showed that d<1.5mg has no effectcan't have been right for everybody.I don't buy the idea that we know that LDN is safe and canonly have a beneficial effect, especially when it has notbeen studied for one's disease. However, when you aredesperate enough, it is only logical to consider the cost /benefit of LDN. I tried it. Did I try it enough?If any of you want to address the mold issues or encourageme to stick with LDN, please do. I would like to learn moredirectly from you who have experienced LDN.-- Q: How many CDC "scientists" does it take to change a lightbulb?A: "You only think it's dark." [CDC has denied a deadly disease for 25 years]==========Retrovirus: http://www.wpinstit ute.org/xmrv/

index.html

[Guest guest]

once the mold is killed and removed you must change the environmental conditions that enourage growth in the first place or it will come right back.

you can never kill all the spores... they are ubiquitous everywhere... but can't grow where there is enough natural light, lack of moisture (leakage & humidity control), and fresh air. modern quality paint technology discourages mold pretty well, at least so it's not yummy food for mold to grow on.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of TerriSent: Friday, March 19, 2010 11:21 AM WalesCc: my groupSubject: Re: [low dose naltrexone] Why I will stop LDN (also MOLD concerns)

[Guest guest]

The guy that did the mold removal told us that our home will stay mold free because after he was done removing the mold, he used a antimicrobial agent over the entire house.....our home got that way from leaky pipes....little did I know that behind the ceiling mold was everywhere. We stripped the house...had to throw away a lot of things and do a wash from inside out. It really did a number on my health too.

From now on, i will retest with the mold test kit (cheap and simple) yearly. We had black and green mold, and it was a lot...i am so glad my doctor suggested i get a test kit...he said many people are very sick and dont know its because of mold where u live.

I am still working to get better and go next week for new blood work...i am wondering if it takes time for mold to be gone from the body...does anyone know?

Terri

From: bob Larson <boblist@...>Subject: RE: [low dose naltrexone] Why I will stop LDN (also MOLD concerns)"'Terri'" <slogul3000@...>, low dose naltrexone Date: Friday, March 19, 2010, 5:04 PM

once the mold is killed and removed you must change the environmental conditions that enourage growth in the first place or it will come right back.

you can never kill all the spores... they are ubiquitous everywhere... but can't grow where there is enough natural light, lack of moisture (leakage & humidity control), and fresh air. modern quality paint technology discourages mold pretty well, at least so it's not yummy food for mold to grow on.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of TerriSent: Friday, March 19, 2010 11:21 AM WalesCc: my groupSubject: Re: [low dose naltrexone] Why I will stop LDN (also MOLD concerns)

[Guest guest]

the best place to learn about mold is doug kaufmann know the cause

[Guest guest]

Hi ,

In your message you mentioned these symptoms: nausea, vomiting, diarrhea, and

sweating. As soon as I saw those, I immediately thought " opiate withdrawal. " Are

you taking any medications for pain? And have you ever been tested for an

allergy to gluten?

You are correct that 1.5 mg of naltrexone may not be the lowest effective dose

of LDN. In addition to the anecdotal reports of people who have tried lower

doses, I recently read about a research study in which patients with IBS showed

some improvement when treated with 0.5 mg of naltrexone daily for four weeks.

Although it was only a small pilot study, it does lend support to the idea that

highly sensitive patients who do not tolerate LDN well may be able to derive

some benefit from doses as low as 0.5 mg per day. You can read the research

paper's abstract here:

http://www.ncbi.nlm.nih.gov/pubmed/17080248

Phil

>

> I am stopping LDN now. I took it for one month.

>

> Concerned about mold.

>

> 3 times I had severe nausea for many hours, followed by

> vomiting. It was accompanied by bad sinuses, bad mold, IBS,

> diarrhea, and whole-body sweating. I often have low level

> nausea (occasionally moderate), bad sinuses, bad mold,

> varying IBS, and abdominal / pelvic sweating, but it is

> unusual to have the severe nausea and vomiting.

>

> The third time, I just could not vomit for a long time. A

> strange type of non-vomit-feeling partial regurgitation was

> easy, but it wasn't much. When I finally did vomit, the

> stomach contents were large, despite not eating for hours.

> I wonder if there was some type of delayed gastric emptying.

> Benadryl and licorice failed to make a dent in the nausea.

>

> I don't know for sure that it is the LDN that caused that,

> but it seems likely. I have heard of people getting viral

> symptoms on LDN, and perhaps pushing through it is correct.

> But this time it felt like the right thing to do was to

> stop.

>

> I am concerned about whether LDN is appropriate for people,

> like me, who have SEVERE mold issues. I have been taking

> Lamisil tablets (for 10 years), Nystatin tablets (for 5 or

> so years), and caprylic acid (for a couple of years).

> Despite that, I have mold in the lungs that cause chronic

> cough, frequent bad sinuses (shows up on MRI and CT) and

> many other mold symptoms.

>

> I don't want LDN to make that worse.

>

> My dosage:

>

> - I take Benadryl every other night

> - On Benadryl nights, I can take about 1.5mg LDN without

> bad experiences during the night. Perhaps I could do

> more.

> - On non-Benadryl nights, I can take about 0.5mg LDN

> without experiencing migrating pain through the night.

> I don't think I could do more.

>

> I had brief periods of feeling an effect that is logical to

> attribute to LDN. It was nice, but brief, and not worth the

> other times.

>

> I felt some kind of effect the other times. Hard to

> describe. Maybe as if the receptors were still blocked, but

> at this dose, I don't know if that is possible. (Our bodies

> do vary, however. Perhaps some people do not metabolize the

> drug quickly enough.) I felt a slight lessening of

> allergies, a kind of less-pleasant Benadryl feeling, without

> a positive effect on mold.

>

> I might restart LDN later, but want a good reason.

>

> I don't know for certain what diseases I have, but I fit

> severe (bedbound, /very strict/ Canadian criteria,

> definitely less than 10 on the Bell scale) M.E. and Lyme,

> and there are other strong possibilities, including immune

> issues. I am concerned that there appears to be little

> information about LDN for these conditions in particular --

> and for mold issues. I was not able to do enough research

> to confirm.

>

> I definitely believe all the people who experience an effect

> on VLDN. Whatever study showed that d<1.5mg has no effect

> can't have been right for everybody.

>

> I don't buy the idea that we know that LDN is safe and can

> only have a beneficial effect, especially when it has not

> been studied for one's disease. However, when you are

> desperate enough, it is only logical to consider the cost /

> benefit of LDN. I tried it. Did I try it enough?

>

> If any of you want to address the mold issues or encourage

> me to stick with LDN, please do. I would like to learn more

> directly from you who have experienced LDN.

>

>

>

> --

> Q: How many CDC " scientists " does it take to change a lightbulb?

> A: " You only think it's dark. " [CDC has denied a deadly disease for 25 years]

> ==========

> Retrovirus: http://www.wpinstitute.org/xmrv/index.html

>

[Guest guest]

Hi Zahavi,

On 2010-03-18, zahavi <zahavi100@...> wrote:

> you must change diet ,check your house for mold and treat it good before you

> start again.

Did that years ago. What next?

--

Q: How many CDC " scientists " does it take to change a lightbulb?

A: " You only think it's dark. " [CDC has denied a deadly disease for 25 years]

==========

Retrovirus: http://www.wpinstitute.org/xmrv/index.html

[Guest guest]

On 2010-03-20, Wales <samologist@...> wrote:

> Did that years ago. What next?

In other words, I am saying that, despite severe measures to reduce

external mold, change diet, kill mold, I still have serious mold

issues.

Is LDN contraindicated? I would be interested in learning about

mechanism -- why -- and also about what that might teach us for

dealing with serious mold issues.

--

Q: How many CDC " scientists " does it take to change a lightbulb?

A: " You only think it's dark. " [CDC has denied a deadly disease for 25 years]

==========

Retrovirus: http://www.wpinstitute.org/xmrv/index.html

[Guest guest]

Hi ,

Some molds produce neurotoxins. It is conceivable that some of those neurotoxins

may have opiate-like effects in the body. I'm not saying that's the case for

you, only that it may be a possibility.

Another possibility is that you may be extremely sensitive to naltrexone. There

is a list of naltrexone side effects on this page:

http://www.nlm.nih.gov/medlineplus/druginfo/meds/a685041.html#side-effects

Many of the symptoms you experienced while taking LDN are on that list.

Phil

> > In your message you mentioned these symptoms: nausea, vomiting, diarrhea,

> > and sweating. As soon as I saw those, I immediately thought " opiate

> > withdrawal. " Are you taking any medications for pain? And have you ever been

> > tested for an allergy to gluten?

>

> Interesting. That increases my sense that LDN might be the cause.

> Could it induce withdrawal symptoms even if you do not take any

> opiates?

>

> I am not taking any opiates (I would have stopped them first

> if I were). They make me vomit and get spacey and nauseated

> and they make the room spin around. I was hoping that LDN

> would help with pain.

>

> I don't know if it is relevant, but I have what I think is

> described as hyperalgesia. Surgery that was supposed to

> require only half a Vicodin caused 15 hours straight of 9.99

> level pain that morphine (to the point of disrupting

> involuntary breathing and stopping urination) barely made a

> dent in. Dentists require 3x the normal lidocaine dose.

>

> I think that a GI said that I don't have Chron's. I don't

> know if I was tested for gluten or, if so, how. I do not

> eat wheat. Does that help?

>

[Guest guest]

There is a great website that might be able to answer your question better than we can. Check out http://LDNscience.org

Then click on Low Dose Naltrexone. I didn't see where it discusses mold, but it does explain how LDN works. It might help your immune system fight off the mold spores attacking your body.

Judy HTo better health through knowledgeStarted taking LDN (Low Dose Naltrexone) on 1/21/2009 for Fibromyalgia, Hypothyroid, PCOS and Restless LegsLDNforFibro/

Posted by: " Wales" samologist@... swhy@...

Sat Mar 20, 2010 10:49 pm (PDT)

On 2010-03-20, Wales <samologistgmail> wrote:> Did that years ago. What next?In other words, I am saying that, despite severe measures to reduceexternal mold, change diet, kill mold, I still have serious moldissues.Is LDN contraindicated? I would be interested in learning aboutmechanism -- why -- and also about what that might teach us fordealing with serious mold issues.

[Guest guest]

Here is an update ~10d later for anybody who is interested.

For what it's worth.

- I stopped LDN.

- I am mostly recovered (i.e. within normal variation)

from the LDN, which is slightly surprising (PEM). Part of it

might be that the weather improved, which made mold

better. Still bad, but I don't have to worry as much

whether I need IV amphoteracin B (which is toxic) or

whether there is no other solution. I still need to

find out what is wrong with my immune system that 12

years of terbinafine tablets, plus Nystatin tablets,

plus caprylic acid, plus strict mold-free diet, plus

mold hygeine, plus dry air, is not enough to kill the

mold, much less prevent the constant bad symptoms.

- Another part of it might be that LDN somehow made mold

worse, so stopping it made it better.

- I was alternating 1.5mg LDN with diphenhydramine

(Benadryl) and 0.5mg without it. (I always alternate

Benadryl.) During the 30d of trying LDN, I had 3

episodes of severe nausea, improved by vomiting. That

is an unusual frequency, so I stopped LDN.

- In the 10d following, I have only had mild nausea most

of the time and moderate nausea once, which is within

normal variation.

- I would have continued the LDN if the severe nausea had

not lasted for hours and included seeming gastroparesis

(huge stomach contents).

- I might start LDN again sometime, but if I do, I will do

0.5mg, at most, regardless of Benadryl.

--

Q: How many CDC " scientists " does it take to change a lightbulb?

A: " You only think it's dark. " [CDC has denied a deadly disease for 25 years]

==========

Retrovirus: http://www.wpinstitute.org/xmrv/index.html

[Guest guest]

Hi Jim,

Thanks for your interest.

On 2010-03-19, Jim Witte <jim.witte@...> wrote:

> On Mar 19, 2010, at 9:44 PM, Wales wrote:

>> I don't know if it is relevant, but I have what I think is

>> described as hyperalgesia

>>

>

> Do you have hypothyroid issues? Dr. Lowe (www.drlowe.com) has

> developed a protocol to treat fibromyalgia as hypothyroidism - and

> wrote a 1100 textbook/treatment-manual to back it up. The publishing

> company sells the book for only $100, or specific chapters for about

> 10-40 it looks like per section, but getting the whole book is MUCH

> more cost-effective though..

Would be interested in the comments of others.

>

> Since hyperalgesia is one of the symptoms of FM, this might help. I

> think he found evidence that the hyperalgesia may be caused by a

> reversal of alpha- and beta- type adrenergic receptors, which is

> linked to thyroid hormone deficiency somehow. I haven't taken the

> time to read the whole textbook section of the book - dealing with my

> own thyroid issues which has been difficult.

>

> He describes FM as being often " set off " by some major stressor - be

> that physical or emotional. I suspect that this has something to do

> with setting off some MAJOR cascade failure in the HPA axis after a

> very large demand for cortisol. That would explain the puzzle of why

> not everyone with hypothyroidism (even untreated, which is most

> people with it..) has FM - even people who have had hypoT for years.

>

> Here's a link to a page that links to the publisher's e-chapter

> site: http://www.drlowe.com/emailnewsletter/2009archive7.htm

>

> Jim

--

Q: How many CDC " scientists " does it take to change a lightbulb?

A: " You only think it's dark. " [CDC has denied a deadly disease for 25 years]

==========

Retrovirus: http://www.wpinstitute.org/xmrv/index.html

[Guest guest]

LDN & Nausea

http://tinyurl.com/mzwxlt

>

> Here is an update ~10d later for anybody who is interested.

>

> For what it's worth.

>

> - I stopped LDN.

> - I am mostly recovered (i.e. within normal variation)

> from the LDN, which is slightly surprising (PEM). Part of it

> might be that the weather improved, which made mold

> better. Still bad, but I don't have to worry as much

> whether I need IV amphoteracin B (which is toxic) or

> whether there is no other solution. I still need to

> find out what is wrong with my immune system that 12

> years of terbinafine tablets, plus Nystatin tablets,

> plus caprylic acid, plus strict mold-free diet, plus

> mold hygeine, plus dry air, is not enough to kill the

> mold, much less prevent the constant bad symptoms.

> - Another part of it might be that LDN somehow made mold

> worse, so stopping it made it better.

> - I was alternating 1.5mg LDN with diphenhydramine

> (Benadryl) and 0.5mg without it. (I always alternate

> Benadryl.) During the 30d of trying LDN, I had 3

> episodes of severe nausea, improved by vomiting. That

> is an unusual frequency, so I stopped LDN.

> - In the 10d following, I have only had mild nausea most

> of the time and moderate nausea once, which is within

> normal variation.

> - I would have continued the LDN if the severe nausea had

> not lasted for hours and included seeming gastroparesis

> (huge stomach contents).

> - I might start LDN again sometime, but if I do, I will do

> 0.5mg, at most, regardless of Benadryl.

>

>

>

> --

> Q: How many CDC " scientists " does it take to change a lightbulb?

> A: " You only think it's dark. " [CDC has denied a deadly disease for 25 years]

> ==========

> Retrovirus: http://www.wpinstitute.org/xmrv/index.html

>

[Guest guest]

On 2010-03-30, art_ldn <rtee54@...> wrote:

> LDN & Nausea

> http://tinyurl.com/mzwxlt

That's helpful, thanks.

I got 2.5mg small capsules with inactivated acidophilus,

immediate release, from a compounding pharmacy. Acidophilus

in probiotics does not bother me that I know of. I asked

specifically about fillers beforehand.

I called the pharmacist just now to confirm:

was the powder mixed? yes so you can split.

was it non-dairy, non-refrigerate, ir acidophilus? yes.

did you use crushed tablets?

she did. YES THEY WERE CRUSHED TABLETS.

You would think a compounding pharmacist who has experience

with LDN would not do that. I told her I wasn't happy about

that. I had reasonably assumed from what she said that

acidophilus was the only filler. It never occurred to me to

screen her for crushed tablets. Not sure I want to go back

there again.

I eyeballed the dosages to 0.5mg and about 1.5mg from the

2.5mg.

QUESTION: could the crushed tablets be the reason for severe

nausea and vomiting and diarrhea and so on at that dose? A

50mg (?) tablet crushed into 2.5mg chunks, then split

further by me.

I don't otherwise react to even full tablets that way that I

know of.

The nausea (and sinuses, diarrhea, etc.) lasted at least 10

hours from waking to 7pm at which time I vomited (large

stomach contents). At 2pm or so it got severe. The nausea

continued, but it was mostly weakness and PEM.

I had taken the LDN the night before, of course.

That is a very long time to have severe nausea. I need to

research ipecac or whatever it is people use to induce

vomiting.

I also want to know what the connection is between LDN and

MOLD. Pointers are very welcome.

Thanks.

>

>

>>

>> Here is an update ~10d later for anybody who is interested.

>>

>> For what it's worth.

>>

>> - I stopped LDN.

>> - I am mostly recovered (i.e. within normal variation)

>> from the LDN, which is slightly surprising (PEM). Part of it

>> might be that the weather improved, which made mold

>> better. Still bad, but I don't have to worry as much

>> whether I need IV amphoteracin B (which is toxic) or

>> whether there is no other solution. I still need to

>> find out what is wrong with my immune system that 12

>> years of terbinafine tablets, plus Nystatin tablets,

>> plus caprylic acid, plus strict mold-free diet, plus

>> mold hygeine, plus dry air, is not enough to kill the

>> mold, much less prevent the constant bad symptoms.

>> - Another part of it might be that LDN somehow made mold

>> worse, so stopping it made it better.

>> - I was alternating 1.5mg LDN with diphenhydramine

>> (Benadryl) and 0.5mg without it. (I always alternate

>> Benadryl.) During the 30d of trying LDN, I had 3

>> episodes of severe nausea, improved by vomiting. That

>> is an unusual frequency, so I stopped LDN.

>> - In the 10d following, I have only had mild nausea most

>> of the time and moderate nausea once, which is within

>> normal variation.

>> - I would have continued the LDN if the severe nausea had

>> not lasted for hours and included seeming gastroparesis

>> (huge stomach contents).

>> - I might start LDN again sometime, but if I do, I will do

>> 0.5mg, at most, regardless of Benadryl.

>>

>>

>>

>> --

>> Q: How many CDC " scientists " does it take to change a lightbulb?

>> A: " You only think it's dark. " [CDC has denied a deadly disease for 25

>> years]

>> ==========

>> Retrovirus: http://www.wpinstitute.org/xmrv/index.html

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

i am one of those that became toxic with mold...even after we demolded..my doctor has me doin a colon clease plus 4 coffee enemas a week to get the mold out.

terri

From: Wales <samologist@...>Subject: [low dose naltrexone] Re: Why I will stop LDN (also MOLD concerns)low dose naltrexone Date: Tuesday, March 30, 2010, 1:45 AM

Here is an update ~10d later for anybody who is interested.For what it's worth.- I stopped LDN.- I am mostly recovered (i.e. within normal variation)from the LDN, which is slightly surprising (PEM). Part of itmight be that the weather improved, which made moldbetter. Still bad, but I don't have to worry as muchwhether I need IV amphoteracin B (which is toxic) orwhether there is no other solution. I still need tofind out what is wrong with my immune system that 12years of terbinafine tablets, plus Nystatin tablets,plus caprylic acid, plus strict mold-free diet, plusmold hygeine, plus dry air, is not enough to kill themold, much less prevent the constant bad symptoms.- Another part of it might be that LDN somehow made moldworse, so stopping it made it better.- I was alternating 1.5mg LDN with diphenhydramine(Benadryl) and 0.5mg without it. (I always alternateBenadryl.)

During the 30d of trying LDN, I had 3episodes of severe nausea, improved by vomiting. Thatis an unusual frequency, so I stopped LDN.- In the 10d following, I have only had mild nausea mostof the time and moderate nausea once, which is withinnormal variation.- I would have continued the LDN if the severe nausea hadnot lasted for hours and included seeming gastroparesis(huge stomach contents).- I might start LDN again sometime, but if I do, I will do0.5mg, at most, regardless of Benadryl.-- Q: How many CDC "scientists" does it take to change a lightbulb?A: "You only think it's dark." [CDC has denied a deadly disease for 25 years]==========Retrovirus: http://www.wpinstit ute.org/xmrv/ index.html

[Guest guest]

,

Have you considered the iodine protocol? There is a list called Iodine on

that discusses this and has resources. Among the many wonderful

things it does, iodine kills pathogens in the body, including candida,

while totally sparing/supporting all our good bacteria. Most people in the

world are iodine deficient.

--

>Here is an update ~10d later for anybody who is interested.

>

>For what it's worth.

>

>- I stopped LDN.

>- I am mostly recovered (i.e. within normal variation)

>from the LDN, which is slightly surprising (PEM). Part of it

>might be that the weather improved, which made mold

>better. Still bad, but I don't have to worry as much

>whether I need IV amphoteracin B (which is toxic) or

>whether there is no other solution. I still need to

>find out what is wrong with my immune system that 12

>years of terbinafine tablets, plus Nystatin tablets,

>plus caprylic acid, plus strict mold-free diet, plus

>mold hygeine, plus dry air, is not enough to kill the

>mold, much less prevent the constant bad symptoms.

>- Another part of it might be that LDN somehow made mold

>worse, so stopping it made it better.

>- I was alternating 1.5mg LDN with diphenhydramine

>(Benadryl) and 0.5mg without it. (I always alternate

>Benadryl.) During the 30d of trying LDN, I had 3

>episodes of severe nausea, improved by vomiting. That

>is an unusual frequency, so I stopped LDN.

>- In the 10d following, I have only had mild nausea most

>of the time and moderate nausea once, which is within

>normal variation.

>- I would have continued the LDN if the severe nausea had

>not lasted for hours and included seeming gastroparesis

>(huge stomach contents).

>- I might start LDN again sometime, but if I do, I will do

>0.5mg, at most, regardless of Benadryl.

>

>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

So true on the Iodine deficiency. I believe it's Brownstein who has a good book out on this issue. I take Iosol Iodine daily and iodine is known to help flush out especially the fluorides that we are loaded with due to the mass medication of our public waters and foods with fluoride...don't get me on that massive fraud.

Re: [low dose naltrexone] Re: Why I will stop LDN (also MOLD concerns)

,Have you considered the iodine protocol? There is a list called Iodine on that discusses this and has resources. Among the many wonderful things it does, iodine kills pathogens in the body, including candida, while totally sparing/supporting all our good bacteria. Most people in the world are iodine deficient.-->Here is an update ~10d later for anybody who is interested.>>For what it's worth.>>- I stopped LDN.>- I am mostly recovered (i.e. within normal variation)>from the LDN, which is slightly surprising (PEM). Part of it>might be that the weather improved, which made mold>better. Still bad, but I don't have to worry as much>whether I need IV amphoteracin B (which is toxic) or>whether there is no other solution. I still need to>find out what is wrong with my immune system that 12>years of terbinafine tablets, plus Nystatin tablets,>plus caprylic acid, plus strict mold-free diet, plus>mold hygeine, plus dry air, is not enough to kill the>mold, much less prevent the constant bad symptoms.>- Another part of it might be that LDN somehow made mold>worse, so stopping it made it better.>- I was alternating 1.5mg LDN with diphenhydramine>(Benadryl) and 0.5mg without it. (I always alternate>Benadryl.) During the 30d of trying LDN, I had 3>episodes of severe nausea, improved by vomiting. That>is an unusual frequency, so I stopped LDN.>- In the 10d following, I have only had mild nausea most>of the time and moderate nausea once, which is within>normal variation.>- I would have continued the LDN if the severe nausea had>not lasted for hours and included seeming gastroparesis>(huge stomach contents).>- I might start LDN again sometime, but if I do, I will do>0.5mg, at most, regardless of Benadryl.>>~~~ There is no way to peace; peace is the way ~~~~--A.J. Muste

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