Ataxia

[Guest guest]

-- Ataxia

Hi All,

Does anyone know about, have worked on, or heard of any NF or nutritional

treatment for Ataxia??

Lori/Brainworks/Alaska

Hi Lori,

I currently have two patients with ataxia. One is an adult female whose

motor functioning has been impaired since birth but whose progression in

loss of functioning is stable. She stumbles more and has greater balance

problems when stressed or socially fearful...such as going in front of a

crowd. We have worked for several sessions on deep relaxation using

Brainmaster 2.0 She feels more positive, more competent, and better able to

handle her balance and leg movement when she does weekly NF in this

modality. She's been " on holiday " from training for about 2 months but has

continued therapy with a lot of support to maintain a predictable daily

routine and to be sure she gets enough rest. She has always tried to

maintain a lot of exercise as she fears loss of function so this is not a

problem. Nutritionally...less red meat, more chicken...broiled etc...fresh

grilled or steamed veggies, some fresh fruits but better poached than raw as

she has IBS symptoms that are more likely autonomic effects of the Ataxia

complicated by gall bladder surgery and rapid transit of food incompletely

digested.

Another adult patient is severely affected by an ataxia of unknown origin.

His brain activity on NF at C3, C4, and Cz is lively but well distributed

across frequencies with elevated Theta as might be expected. He is losing

ground with frequent falls and poor energy primarily because he's been

sitting in a quiet, clean home where his elderly mother does everything for

him. NF SMR has been both relaxing and energizing for him. I have included

guided relaxation during training using my hand initially to place sensory

awareness on the body area on which to focus breath and energy. He can do

this on his own now. I note straightened posture occurring within 10

minutes of a 20 minute NF practice (without prompting). The dilemma is it

is not often enough and he needs occupational therapy at home daily but it's

not available in the frontier town where he lives. He now has agreed to

move more frequently during the day and to assist...even if slowly...in

household tasks. He desperately needs to keep motor function intact and

active to slow progression of cortical atrophy already present.

I am making no pretense of treating the neurological conditions for these

folks, just trying to relieve the incongruences and associated stress with

the NF.

Best Regards,

AA

[Guest guest]

Dear AA,

Thanks so much for your detailed answer. I will pass this info on and let her make the decision. Lori/Brainworks/Alaska

Ataxia Hi All, Does anyone know about, have worked on, or heard of any NF or nutritionaltreatment for Ataxia?? Lori/Brainworks/Alaska Hi Lori, I currently have two patients with ataxia. One is an adult female whosemotor functioning has been impaired since birth but whose progression inloss of functioning is stable. She stumbles more and has greater balanceproblems when stressed or socially fearful...such as going in front of acrowd. We have worked for several sessions on deep relaxation usingBrainmaster 2.0 She feels more positive, more competent, and better able tohandle her balance and leg movement when she does weekly NF in thismodality. She's been "on holiday" from training for about 2 months but hascontinued therapy with a lot of support to maintain a predictable dailyroutine and to be sure she gets enough rest. She has always tried tomaintain a lot of exercise as she fears loss of function so this is not aproblem. Nutritionally...less red meat, more chicken...broiled etc...freshgrilled or steamed veggies, some fresh fruits but better poached than raw asshe has IBS symptoms that are more likely autonomic effects of the Ataxiacomplicated by gall bladder surgery and rapid transit of food incompletelydigested. Another adult patient is severely affected by an ataxia of unknown origin. His brain activity on NF at C3, C4, and Cz is lively but well distributedacross frequencies with elevated Theta as might be expected. He is losingground with frequent falls and poor energy primarily because he's beensitting in a quiet, clean home where his elderly mother does everything forhim. NF SMR has been both relaxing and energizing for him. I have includedguided relaxation during training using my hand initially to place sensoryawareness on the body area on which to focus breath and energy. He can dothis on his own now. I note straightened posture occurring within 10minutes of a 20 minute NF practice (without prompting). The dilemma is itis not often enough and he needs occupational therapy at home daily but it'snot available in the frontier town where he lives. He now has agreed tomove more frequently during the day and to assist...even if slowly...inhousehold tasks. He desperately needs to keep motor function intact andactive to slow progression of cortical atrophy already present. I am making no pretense of treating the neurological conditions for thesefolks, just trying to relieve the incongruences and associated stress withthe NF. Best Regards, AA

[Guest guest]

You are welcome Lori. I hope this is of help. I would be interested in

learning of any approaches you discover that may also help stabilize and/or

improve functioning.

Best Regards,

Aliceann

-------Original Message-------

Dear AA,

Thanks so much for your detailed answer. I will pass this info on and let

her make the decision. Lori/Brainworks/Alaska...

[Guest guest]

My fathers speech is slurred like he is drunk and he cant say some letters like "H", he talks like he is very very drunk, and walks that way too, no balance, falls alot. It is hard to hold a conversation with him . Kathy

[Guest guest]

I guess I could do the research, but to save time I will ask. Would LDN provide

any releif for Ataxia telangiectasia? Tanks for any help that could be provided.

Ice