Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Just another update on my brother with polymyositis. He has been on 4.5 LDN and 5000 IU Vitamin D for about 6 months. He is still on 100 mg of Imuran and will be weaning down to 50 or 75 soon. He quit prednisone and plaquenil before starting on LDN. His most recent pulmonary function test was declared normal! This is excellent. Just over a year ago, he was diagnosed with interstitial lung disease - look it up, the prognosis is poor. His most recent CK test - 173. Anything below 200 is normal. This is his 3rd normal in a row. He has been as high as 1400 (best of my recollection). Something I didn't know until today, he told me that he has not slept in the winter without an electric blanket/heating pad/ or heated waterbed in 15 years - until this year! His Raynaud's is all but gone - no more blue hands. His vitamin D test was 52 last time and has dropped to 46. He will be increasing his vitamin D intake, but is not sure how much. Any suggestions? Steve Quote Link to comment Share on other sites More sharing options...
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