Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Steve, on the D, he could bump it up to 7-8K per day for a while at least. I've NEVER slept with an electric blanket or the likes....just does NOT seem the right way to go FOR ME. That's interesting info. [low dose naltrexone] Still improving... Just another update on my brother with polymyositis. He has been on 4.5 LDN and 5000 IU Vitamin D for about 6 months. He is still on 100 mg of Imuran and will be weaning down to 50 or 75 soon. He quit prednisone and plaquenil before starting on LDN. His most recent pulmonary function test was declared normal! This is excellent. Just over a year ago, he was diagnosed with interstitial lung disease - look it up, the prognosis is poor.His most recent CK test - 173. Anything below 200 is normal. This is his 3rd normal in a row. He has been as high as 1400 (best of my recollection).Something I didn't know until today, he told me that he has not slept in the winter without an electric blanket/heating pad/ or heated waterbed in 15 years - until this year! His Raynaud's is all but gone - no more blue hands. His vitamin D test was 52 last time and has dropped to 46. He will be increasing his vitamin D intake, but is not sure how much. Any suggestions?Steve No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.791 / Virus Database: 271.1.1/2759 - Release Date: 03/19/10 15:07:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Steve~ Congrats on your brother's improvement!! That is wonderful news, and I hope he continues to improve. As far as D goes, the only thing I can tell you is that the liquid or gelcap versions of D3 are much more 'available' than the powdered capsules... at 10,000 per day of a very expensive and well-recommended brand of powdered capsule, my D levels started tanking, while with 10,000 per day of the cheap gelcaps from Whole Foods, my levels went up very nicely. If you brother is at 46, he probably will raise his levels just fine with 5,000 per day - Whole Foods has gelcaps at 1,000 and at 5,000 (weirdly, the 5,000 ones are smaller... I've just started using those, so I can't yet report if they work as well as taking 5 of the 1,000 gelcaps or not).Good luck to you and your brother - keep us updated on his progress, please!~EileenOn Mar 19, 2010, at 11:02 PM, even1 wrote: Just another update on my brother with polymyositis. He has been on 4.5 LDN and 5000 IU Vitamin D for about 6 months. He is still on 100 mg of Imuran and will be weaning down to 50 or 75 soon. He quit prednisone and plaquenil before starting on LDN. His most recent pulmonary function test was declared normal! This is excellent. Just over a year ago, he was diagnosed with interstitial lung disease - look it up, the prognosis is poor. His most recent CK test - 173. Anything below 200 is normal. This is his 3rd normal in a row. He has been as high as 1400 (best of my recollection). Something I didn't know until today, he told me that he has not slept in the winter without an electric blanket/heating pad/ or heated waterbed in 15 years - until this year! His Raynaud's is all but gone - no more blue hands. His vitamin D test was 52 last time and has dropped to 46. He will be increasing his vitamin D intake, but is not sure how much. Any suggestions? Steve Quote Link to comment Share on other sites More sharing options...
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