ALS

[Guest guest]

In a message dated 3/19/2005 1:15:42 AM Eastern Standard Time,

writes:

Subject: Re: Re: does it help to help people?

> these people think they have als not lyme, Im starting

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I also think some people go with the diagnoses of diseases that will get

them disability- and/or more 'acceptable' diseases..... diseases that are

seen

as REAL diseases that are familiar names with familiar treatments.... I

mean, wouldnt it be easier? Unfortunately lyme disease has gotten a bad rap

....... as being curable with a few days of antibiotics.... with no Proof of

long

term/chronic existence.... of course all of those suffering with it, well,

what do they know...... until of course, they or a loved one, gets it.

sigh. c in Vt

[Guest guest]

i know how you feel. i discovered that i had lyme in nov 2003.

after i found out i talk to my good friend about it and she has

fibomyalgis i think i didnt spell that right. i told her about what

i was feeling and she was floored that it was everything she was

going threw. well she wanted to get tested and her boyfriend told

her not too because she can get disability on her diegnosis if she

tested for lyme they would deny her.

[Guest guest]

well she wanted to get tested and her boyfriend told

> her not too because she can get disability on her diegnosis if she

> tested for lyme they would deny her.

He is misinformed. I got approved for Lyme disease with fms and others as

side diagnosis. I dont know of anyone who got approved for diss w/fms

[Guest guest]

Any data of LDN working for ALS?

Thanks