MP Lyme LDN and MS

[Guest guest]

First: Marshall protocol, from all I have read is very outdated for Peop's with

Lyme who show MS type symptoms. I have heard do not follow the MP if you have

Lyme with MS symptoms. I go tanning, once a week, I take vit D - I need to... If

I didn't I am most certain I'd be much worse off today. I HAVE NO OUTWARD MS

SYMPTOMS. I was diagnosed with 7 to 9 lesions on my brain as of last MRI this

past summer… and a sister taking Avonex (I don't think she has MS - either -

probably Mycoplasma or something - some kind of bacteria...)

I have Lyme (3 bands positive since '06 which is when I had my tick incident - I

found it on my thigh just crawling around - no rash, tested Igenex positive in

October '09 negative '07). I have Bartonella, and Mycoplasma pneumonia.

(The Doc who diagnosed me with MS in June did not have this info obviously...)

I'm just finishing up my 4th round on Anitbiotics (Zithro, Doxy, Omnicef, now

Doxy again before last night) with my Natural MD. Took copaxone for 9 days of

complete H$LL in September before I knew of the Lyme for sure after a clinical

diagnosis of MS from the MRIs showing lesion progression. Don't suppress an

immune system full of bugs - they just take over...

Working on an apt with a LLMD as I type this - my Natural MD really isn't

qualified to treat a patient with Lyme though he tries... This is a must if you

have Lyme. Find a LLMD...

If you have MS PLEASE GET TESTED FOR Lyme and its coinfections like Bartonella

and MYCOPLASMA AND CHALYMIDIA (no, not the STD) PNEUMONIA. These are all

horrible bacteria that attack the CNS... Even if you have no recall of a tick

incident! They're EVERYWHERE, even your own backyard, they're tiny, and 1 in 2

ticks carry Lyme.

I take LDN nightly at 3.0 mg and will probably go up to 4.5 mg as I tolerate it

well and believe it helps me.

Last night I started on Minocycline - I'm going to take 225mg per day… I

actually got it from my dermatologist … Yes I cheated. I told her I wanted to

try it for my acne that is caused by my anti-seizure meds (I had a seizure 2

years ago - my only `symptom of MS` - though I also have a small brain tumor

that could have also caused the seizure…). She was reluctant due to my seizure

disorder but gave it anyways - I guess Minocycline can cause brain swelling in

rare cases??? This is because it crosses the blood-brain barrier… This is what I

NEED IT TO DO… I have brain lesions from the buggers so they're in my brain. Go

get `em. She prescribed 75mg twice per day, I'm going to take it 3x's per day…

This is now my 5th round of antibiotics… I'm not going to end up in a wheel

chair…

One of my favorite quotes: " If you are ever diagnosed with a life-threatening

disease, you must pursue, with all of your might, every doctor, of all

varieties, with every healing modality known to them, and never give up, until

you find the ones that heal you. " ~Celeste Pepe … She wrote one of the MS

Healing Books I've read.

This is all while I'm trying to find the right LLMD. I don't care if I have to

cheat to get healthy… I'm going to a Lyme support group meeting Tuesday night

where a LLMD will be speaking. Maybe she'll be my doctor? Who knows... In the

interim, I had to do something. The dosage of Doxy (200 mg per day) I was just

on just wasn't cutting the mustard and my insurance - even though it's one of

the BEST, wouldn't let me do Zithromax again… Gotta keep rotating. I'm not going

to continue to progress with more brain lesions. Minocycline, with all I have

read, is what I needed - so I had to get it and right now!

Ya'll gotta fight! Make sure you get tested for all these bacteria & your Neuro

probably won't do it. Find a Natural Medical Doctor… And don't get tested for

just Lyme - Please. testing for Lyme is not a clear test - I tested false

negative 1 year after my tick incident… Yes I paid a lot of money for my Lyme

test through Igenex, but at least I have the right diagnosis now. But the other

bacteria tests were covered by my insurance… And those bacteria are devastating

to the brain and body… Google the words with MS.

I am still on LDN. 3.0 mg as I believe it protects my brain. Also a bunch of

different supplements. I dry sauna too to sweat out the toxins. I also eat

gluten free and limited dairy (hard cheeses only), and minimal sugar… What is

causing your MS? Don't say " no one knows " . That's what the doctors want ya'll to

believe to keep you on CRAB drugs and fearful... Find the truth.

Janelle

[Guest guest]

Thank you for all the info, Janelle. I would add that it is important to know that no Lyme test is 100% accurate. To rule Lyme disease out you have to see a Lyme literate MD or DO for a clinical diagnosis.

Interestingly, Vanderbilt has a MS clinic that treats MS with antibiotics. They have found that MS patients test high for Chlamyedia pneumoniae,

which is a common co-infection with Lyme, as well as certain Mycoplasma pathogens. In fact, there is a long list of co-infections, but I digress....

I always wondered if Vanderbilt looked at Lyme, not that that would have mattered. If they don't know how crappy Lyme testing is....then they would take the results as gospel...not good!

There are some Lyme researchers that believe it is possible that all these aggressive illnesses like MS, Parkinson's, ALS, etc... are just aggressive strains of Lyme...there are over 100 different strains in the US alone....300 worldwide. Perhaps they are just chronic Mycoplasma infections as Dr. Garth Nicholson's research, a former MD researcher, might suggest. There is definitely a connection...go to www.immed.org to read what they found.

Bottom line is we need more research. The NIH has quite a bit of Lyme research going on or projected...the problem is they exclude the chronically ill Lyme patients, which is the mass majority of the sick with this crap! What a waste of tax payer dollars!

[Guest guest]

Yes, I agreed totally with . Also, depeding each one of us's specific DNA, genetic redepositon, the same infection (such as lyme or different strain of mycoplasma) may cause different disease to different people. For instance, mycoplasma fermenatans may cause fibromyalgia to me but to others it may cause MS, etc. I hope this helps.

jen -

From: Torrey <klcst@...>Subject: [low dose naltrexone] Re:MP Lyme LDN and MS"low dose naltrexone" <low dose naltrexone >Date: Monday, January 11, 2010, 9:03 AM

Thank you for all the info, Janelle. I would add that it is important to know that no Lyme test is 100% accurate. To rule Lyme disease out you have to see a Lyme literate MD or DO for a clinical diagnosis.

Interestingly, Vanderbilt has a MS clinic that treats MS with antibiotics. They have found that MS patients test high for Chlamyedia pneumoniae,

which is a common co-infection with Lyme, as well as certain Mycoplasma pathogens. In fact, there is a long list of co-infections, but I digress....

I always wondered if Vanderbilt looked at Lyme, not that that would have mattered. If they don't know how crappy Lyme testing is....then they would take the results as gospel...not good!

There are some Lyme researchers that believe it is possible that all these aggressive illnesses like MS, Parkinson's, ALS, etc... are just aggressive strains of Lyme...there are over 100 different strains in the US alone.....300 worldwide. Perhaps they are just chronic Mycoplasma infections as Dr. Garth Nicholson's research, a former MD researcher, might suggest. There is definitely a connection.. .go to www.immed.org to read what they found.

Bottom line is we need more research. The NIH has quite a bit of Lyme research going on or projected... the problem is they exclude the chronically ill Lyme patients, which is the mass majority of the sick with this crap! What a waste of tax payer dollars!